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Extreme Fatigue & Brain Fog
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4 posts in this topic

Hello everyone,

I am a 31 yr old woman. I was diagnosed with Celiac disease about 3 years ago. It was a long process to finally get diagnosed. I went from 160 lbs to 112 lbs in a year and was severely malnourished by the time i was finally diagnosed. But anywho, After being diagnosed, i went completely gluten-free and have stayed gluten free ever since.I am now 130 lbs, 5' 6".

Here is my problem though. I have complete brain fog. I am extremely weak and tired all the time. My muscles seem to ache the next day after lifting something minor, or doing some kinda of exercise. I just dont feel like i can function. I dont know if i am deficient in certain vitamins. I dont take any vitamins or supplements right now. I am worry and very scared that i am dying or something crazy. I am a bit of a hypochondriac but this weakness and fatigue i feel is serious and has gotten worse within the last week.

And help would be greatly appreciated!

thank you

Sophie

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Hello everyone,

I am a 31 yr old woman. I was diagnosed with Celiac disease about 3 years ago. It was a long process to finally get diagnosed. I went from 160 lbs to 112 lbs in a year and was severely malnourished by the time i was finally diagnosed. But anywho, After being diagnosed, i went completely gluten-free and have stayed gluten free ever since.I am now 130 lbs, 5' 6".

Here is my problem though. I have complete brain fog. I am extremely weak and tired all the time. My muscles seem to ache the next day after lifting something minor, or doing some kinda of exercise. I just dont feel like i can function. I dont know if i am deficient in certain vitamins. I dont take any vitamins or supplements right now. I am worry and very scared that i am dying or something crazy. I am a bit of a hypochondriac but this weakness and fatigue i feel is serious and has gotten worse within the last week.

And help would be greatly appreciated!

thank you

Sophie

My brain fogginess, fatigue, and weakness are going away. I almost died 5 years back, then I didn't feel so well. (See My Story) I got on some good supplements recommended by my chiropractor and started to live again. Yet, only recently we discovered I was gluten intolerant. Now, I think I found the root of my problem. There is hope for you too.

You will probably need some supplements. If you can have some tests done to see what nutrients you need. This will help you decide which ones are needed and which are unnecessary. Make sure that you are not allergic to anything you are eating. Be careful when you do get supplements as 1/4 of them contain gluten! .

I feel poor again when I take in the wrong items. Actually, I even feel bad if I am just near them.

I went grain free when I still felt fatigued. It helped me. IF you make from scratch you can have complete control of what goes in.

I know that it is hard when you feel so tired to take care of yourself, but one can do it.

Oh, I do so hope we will get a good report of your progress in the future.

Maybe you could try some feel good foods? I feel so good when I have salmon and beets. Beans is another food that really seem to give me energy.

If you live next door(I am in MN)by all means I would like to help you. But for now here are some get well flowers.

******************************************************

Diana

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Hi Sophie,

Welcome to the forum! The definition of gluten free can vary and awful lot among people. For some fad dieters it could mean not eating pizza or donuts on Friday nights, For some very sensitive celiacs it means washing all their grains and produce before cooking it or eating it. And for others it means no processed or few processed foods, including gluten-free foods. So, what does it mean to you? :) If we know what you typically eat it might help us help you.

But assuming you are totally gluten-free, and not getting cc'd from vitamins or meds or tea or other drinks or pet food or shared condiments or kissing a GE, or shampoo etc, then you might need to look into other food intolerances. Did you know solar flares have gluten in them? OK, kidding on that one of course. But there are lots of places it can hide, and barley and rye are just as much of a problem as wheat.

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I'll chime in with GFinDC about the 'other food intolerances', though for me it's not other foods (except soy) so much as it is additives. Ingredients processed with sulfites will make me tired and give me brain fog (maltodextrin and corn syrup are the worst for me in that respect).

A food diary would probably be helpful, but just in case, here are some links I have related to sulfites:

http://www.naturalpedia.com/Sulfites-6.html

"In one study, 2,000 micrograms of sublingual vitamin B12 significantly prevented reactions to sulfites in 17 of 18 sulfite-sensitive subjects challenged with sulfites.

Here's an old thread from these forums:

and another good resource: http://www.readingtarget.com/nosulfites/

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    • by the way, I do find the lab who does the gluten sensitive test Gluten Allergy IgE Test This test is used to determine if a person has an allergic reaction to gluten, a protein found in wheat, barley, and rye.  Roughly 1 in 30 adults and 1 in 40 children suffer from a Gluten Allergy.  An IgE test looks for antibodies which develop in a person who has a particular allergy.  Gluten Allergy can display symptoms similar to other conditions such as Celiac Disease.  Unlike an allergy, Celiac Disease can do permanent harm to the body if left untreated.  Allergy testing when a person is experiencing symptoms can help identify or rule out an allergy as the cause.

      Gluten Allergy is typically less severe than other Gluten related conditions like Celiac Disease.  People with Gluten Allergy will often experience abdominal discomfort, bloating, gas, constipation, or diarrhea when they eat products containing gluten.  These symptoms usually stop when a person cuts gluten out of their diet.

      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
    • so does it mean a person who carry dq2 or dq8 gene will have high chance to develp celiac disease if they continue to eat gluten or some other stuff trigger it??      
    • I just wanted to share my experience. I started with the endoscopy because I was having symptoms of a hernia + I had a colonoscopy at the same time to test for Chron's. While getting the scope the doctor noticed damage of the small intestine and did biopsies and they came back positive for Celiac disease. We followed up with the necessary blood work to confirm and those all came back like yours, negative, however my genetic testing was positive. So although rare, it is possible to test negative on the blood work and still have damage and be a positive. I don't know why my blood work was off, but I am glad I had the scope first because I would have never known the damage I was doing if I relied solely on the blood work. 
    • You're welcome. Good that you're having the gene test as well. If you DO have the gene(s) then you realize one can present with celiac at any point in life -- any age -- so you would need to be tested like you were, every 2 years in the absence of symptoms. If one develops symptoms then they need to be tested right away instead of waiting for the 2 yr. mark. It's not common, but is possible to test negative on the blood and still have villi damage on endoscopic biopsy. So depending on the results of the gene test....... you might see if your doc will do a endoscopy for you OR you might be what they refer to as something like a pre-celiac where you're not testing positive yet but most likely will soon.
    • Just don't give up.  Good luck and best wishes to you.  Let me know how it's going for you.  Been there, done this.  It ain't fun.
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