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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Strange Skin Problem On Hands.
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9 posts in this topic

Hi, Im creating this post because I am very confuse about what is going on with me. To brief you a little, Im 20 yo and a couple years ago I started having back pain along with abdominal bloating. At first I tried to not pay attention but it did not seem to get better. I started experimenting with food but wasn't able to pinpoint anything.

I started doing lots of tests, multiple blood/urine samples, colonoscopy,gastroscopy,CAT scan, and everything came back normal. They did test for celiac wich was negative. I tried a strict gluten free diet for 2 months but had no improvments at all.Tried probiotics too. I then started to read about salycilate and other chemical sensivity but even things considered safe everywhere seems to be a problem. This is just a little a brief history of what I tried.. because I tried a lot of things.. :( To get back on topic, I started having weird red skin on hands about 1 year and half ago.

Here is a picture (both hands are the same,sometimes it will crack and "burn(feels hot)" the red is really like a straight cut) :

img0141ec.jpg

Every professionnal I saw about my problems were seeing this for the first time. I'm pretty sure this have something to do with my bloating and food but doctors says it has nothing to do (tired of getting this answer).

I too suffer from low energy and have eye floaters that get really annoying some days. The only wrong thing that poped in the last blood test ive done (got results today) was that I had low vitamin D (51 nmol, normal are 75-150) but I doubt all my problems are related to only this. I'll stop here for this post but I have so many informations that I have accumulated throught time so if you have question just ask. My question is did you ever had/know someone how had similar problems ? What did help ?

Thanks for your help, im seriously running out of idea about what to try now.

Other infos : I exercise daily, eat only organic and food prepared by me (no additive,etc,you name it..),do yoga daily to relax..

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Welcome to the board. I hope I don't overwhelm you with all these questions but here goes.

Are your hands sensitive to cold? Have you seen a dermatologist? Do you work with any chemicals or in someplace like a bakery? Do you use any lotions?

When you went gluten free did you go with whole unprocessed foods and not add any specialty gluten free products? Have you had any C-reactive protein blood work done? I think that checks for inflammation. Do you have a lacey purple pattern to the rest of your skin especially when cold? I see some hints of that in your hand and wrist and it is called livedo reticularis. If you do a search you can see photos of that. I had that until I had been gluten free for a few months but it has resolved now. I think it was caused by the full body inflammation I had. Most doctors just shrugged their shoulders and said they didn't know what it was.

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Welcome to the board. I hope I don't overwhelm you with all these questions but here goes.

Are your hands sensitive to cold? Have you seen a dermatologist? Do you work with any chemicals or in someplace like a bakery? Do you use any lotions?

When you went gluten free did you go with whole unprocessed foods and not add any specialty gluten free products? Have you had any C-reactive protein blood work done? I think that checks for inflammation. Do you have a lacey purple pattern to the rest of your skin especially when cold? I see some hints of that in your hand and wrist and it is called livedo reticularis. If you do a search you can see photos of that. I had that until I had been gluten free for a few months but it has resolved now. I think it was caused by the full body inflammation I had. Most doctors just shrugged their shoulders and said they didn't know what it was.

Hi, thanks for your questions,

cold sensitivity : not really but the red will turn more dark/blue when it is really cold.

chemicals : No at all, currently studying at university. The only lotion I tried was a moisturising but that didn't help.

I have not seen a dermatologist about it cause a lot of time I will feel a burning sensation after or while eating (anything).

C-reactive : from the results I had today(blood sample last week) : CReactive Protein(mg/L) < 3 (0-8)

For the rest of the skin everything looks okay, it is really only the part red on the picture.I will try searching on livedo reticularis.

For the gluten free, I ate nothing prepared gluten free. For grains, I only ate buckwheat, amaranth, millet but even those seems to bother me so I didn't eat a lot.

edit : just searched on livedo reticularis and found a picture where my hand actually look like this when cold :lrhand.jpg

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My advice to you would be to see a derm. Your nail moons are very white and the skin under your nails very dark. I think that would provide some clues to a dermatologist as to what is going on.

Also have you had any vitamin panels done? If you are deficient in some vitamins that can affect the skin and nails.

Hopefully some other folks here will be on soon that might be of more help. If you don't get too many replies you might try reposting in the prediagnosis or related disorders and research section as they get a bit more 'traffic' sometimes.

edit I just saw the picture you added. Yup that is what my whole body looked like. LOL

When you tried the diet did you make sure you were cooking in a 'gluten clean' kitchen? New strainer, toaster, no scratched non-stick cookware and got new butter, nut butters etc?

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My first thought was that you may be dealing with a severe candida or other yeast/fungal overgrowth. It may what's causing your skin and intestinal symptoms. Do you get filmy white stuff on your tongue and corners of your lips in the morning? Have you ever had a genital yeast infection or bad case of foot fungus? Are your hands painful?

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I had the livedo reticularis all over my whole body too. Ravenwood helped me when I first came here so I would know that it "could" be caused by gluten. Of course there are other causes too. I was very concerned about this symptom. It took several months to go away, but it DID completely go away. Could NOT get a Dr. to be concerned about it at all. Ravenwood was my only hope that this condition could be related to gluten. For me the livedo reticularis appeared very suddenly and obviously...and it lasted 7 years until I stopped gluten due to other symptoms. I was very, very relieved that it went away on the gluten free diet. Now it is one of my ways of knowing that I have gotten gluten....my legs look like red lace for a few days. It is pretty obvious to me that mine was all caused by gluten.

You might try strict gluten free and see if it clears your skin. Seems that a whole lot of skin issued are caused by gluten, not only the biggie of DH (Dermatitis Herpetiformis)the skin form of Celiac.

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Hi, thanks for your replies.

My first thought was that you may be dealing with a severe candida or other yeast/fungal overgrowth. It may what's causing your skin and intestinal symptoms. Do you get filmy white stuff on your tongue and corners of your lips in the morning? Have you ever had a genital yeast infection or bad case of foot fungus? Are your hands painful?

My tongue is sometimes a little white but I think it's a normal color. It's nowhere near thrush picture you can see online. I didn't had any genital infection or foot fungus. For my hand it is not painful but I can feel it when it's red.

I really feel it is caused by something I eat, I dropped the nuts beaucase when I hate say cashew butter, I could feel them turn red shortly after.

@eatmeat4good

What is ravenwood?

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What is ravenwood?

Ravenwood is another member on this forum.

I would be very interested to hear if you find out any information on the red burning skin on the backs of your hands. My oldest daughter used to get this often, usually in the wintertime. Her doctor just dismissed it as eczema, but I never really bought that. After a few years, she started getting a similar rash on her neck along with her hands.

The only thing that she said helped was the spray on Eucerin cream.

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I really hope you see this! I had this SAME problem for a long time, all these different tests and blood samples urine samples, and so on, and so on. What about your toes? When you have a flare up, do your toes vary in temperature and color (pink, blue, red, white, purple)? This is a vascular version of Reynaud's Phenom. In addition, the dry and cracking skin IS an intestinal or absorption issue, not enough oils being absorbed into your blood stream. Also, I finally got the diagnosis of Lupus last year. Voltaren gel reallllyy helps this issue, and there are other medications that can help with the blood flow to your fingers. Hope this helps!!!

Hi, Im creating this post because I am very confuse about what is going on with me. To brief you a little, Im 20 yo and a couple years ago I started having back pain along with abdominal bloating. At first I tried to not pay attention but it did not seem to get better. I started experimenting with food but wasn't able to pinpoint anything.

I started doing lots of tests, multiple blood/urine samples, colonoscopy,gastroscopy,CAT scan, and everything came back normal. They did test for celiac wich was negative. I tried a strict gluten free diet for 2 months but had no improvments at all.Tried probiotics too. I then started to read about salycilate and other chemical sensivity but even things considered safe everywhere seems to be a problem. This is just a little a brief history of what I tried.. because I tried a lot of things.. sad.gif To get back on topic, I started having weird red skin on hands about 1 year and half ago.

Here is a picture (both hands are the same,sometimes it will crack and "burn(feels hot)" the red is really like a straight cut) :

img0141ec.jpg

Every professionnal I saw about my problems were seeing this for the first time. I'm pretty sure this have something to do with my bloating and food but doctors says it has nothing to do (tired of getting this answer).

I too suffer from low energy and have eye floaters that get really annoying some days. The only wrong thing that poped in the last blood test ive done (got results today) was that I had low vitamin D (51 nmol, normal are 75-150) but I doubt all my problems are related to only this. I'll stop here for this post but I have so many informations that I have accumulated throught time so if you have question just ask. My question is did you ever had/know someone how had similar problems ? What did help ?

Thanks for your help, im seriously running out of idea about what to try now.

Other infos : I exercise daily, eat only organic and food prepared by me (no additive,etc,you name it..),do yoga daily to relax..

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    • celiac disease is psychosomatic
      I was diagnosed a couple years ago and started gluten-free diet then. Test also showed damage to my small intestine. I explained to this doctor how I was barely able to get out of bed when I ate gluten in the pastand my intestines are still recovering from the damage. I only discussed this briefly. I consulted with this doctor concerning my dizziness explaining that I get dizzy/migraines when I eat gluten due to my celiac disease. I further explained that my dizziness has been cut in half since I went on a gluten-free diet so I am better able to get out of bed. The consult was about taking tests to figure out if something in my brain was causing my dizziness or this doctor specialized in testing the brain for impairments. In her summary, she stated that my memory impairments were probably due to being precoccupied with thinking about my psychosomatic symptoms. However, I only though about the test when I took it. And I only think about whatever task I am trying to remember when I try to remember it! I feel my symptoms rather than think about them all day long.
    • celiac disease is psychosomatic
      If you don't get the diagnosis you are happy with go to another doc.  Try to find a Celiac Friendly doc.  OR you can do what i did and give up and just go gluten free.  I didn't need a doctor to confirm that if my gas, bloating, migraines, depression, joint pain, rash, dry skin and brittle nails went away when i went gluten free that i must have celiac.  AND 6 months after i went gluten free on my own i had some blood tests repeated that i had done when they were trying to figure out what was causing my severe rash, all the things that were "wrong" with me or abnormal in the the first blood tests, went to normal on the second test.  INCLUDING MY THYROID LEVELS! Oh, i didn't mention that during this time they diagnosed me with early hashimotos.. 6 months later i was miraculously cured from this progressive thyroid disorder according to the blood test results.  I didn't have hashimotos to put it bluntly.   I am almost 10 years gluten free with no positive Celiac diagnosis.  But let me tell you this,  My daughter's neurologist did a DNA test on her 1 year after she too went gluten free and it came back positive for Celiac.  so.  js.     That's my story..  in short.
    • celiac disease is psychosomatic
      Were you officially diagnosed with Celiac Disease at the time she wrote that?  And, if so, for how long were you diagnosed & gluten-free but still complaining of those symptoms?
    • Weird Reaction
      Hi Richie By the sounds of it you could have gluten sneaking in somewhere, or maybe blood sugar issues,  or just plain anxiety, but it would be good to know for sure so you know what to do next. I think maybe the best course of action would be to see your GP and  tell him/her all your symptoms.   I dread seeing my own GP because as lovely as she is she is very fond of sending me for blood tests (which always seem to include liver function, thyroid and full blood count) which for someone with health anxiety isn't the recipe for a peaceful night's sleep!  But she is right, those particular blood tests, and others, can hold important clues when one has a lot of vague symptoms.   Celiac testing is of course another set of tests, which Flowerqueen has described well above.    If you do have all these tests and anxiety continues to be a problem, whether caused by celiac disease, another medical condition or it just turns out to be a stand alone problem, one book that I would recommend that really helped me understand the condition is 'At Last a Life' by  Paul David. I found it an immensely helpful tool in my recovery.   There is also a website. http://anxietynomore.co.uk/   Keep us posted Cristiana      
    • celiac disease is psychosomatic
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