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I Have Celiac, And Am Very Strict With Diet, Yet Still, Am Not Myself
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Hi! I have Celiac, and was diagnosed in January of 2011. I also have a thyroid disorder - hoshimoto's. I have adhered to a strict gluten-free diet since, and many of my symptoms were gone in weeks (extreme fog head, chest pain, eye dryness, thirst, bloating, fatigue, general feelings of unhealthiness). I have always been a healthy eater. The "strive for five" servings of vege & fruit were a non issue for me, as I regularly ate/eat them. I now eat at least 9 servings of vege/fruit. I eat an occasional gluten-free treat, such as pasta, or rice or potato, but normally I just avoid starchy foods. I have gained weight since my diagnosis, regardless, about 20 pounds to be exact. Is there a hidden secret between gluten and metabolism? I have researched and most Celiac victims seem to have just the opposite problem. I avoid high glycemic fruits and veges, and exercise daily (run about 12 miles a week, and walk around 10 miles a week). I eat a low sodium diet based on my family history of high blood pressure. I work a lot of hours a week. I am just wondering if there is anyone else out there who feels my pain! or has tips! I have lost roughly 5 pounds since I added the running into my schedule (6 months ago), and it makes me feel better, but where in the world is a girl to put the other 15 pounds! Also, I have periods of time where I just feel horrid - like my old undiagnosed self, for a few days at a time, even though no gluten, maybe dairy? I am just looking for feedback, or common thoughts..

thanks!

Megan

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I could have written your post a year ago--I was a lifelong jogger and ate a diet high in vegetables and fruits....and, yet, I had gained weight since going gluten free. I was absolutely mystified and read everything on the planet to help me find the answer. What I finally discovered is that I wasn't eating enough healthy fats and protein. I thought I was well educated about what a good diet entailed and what was necessary to maintain excellent health...but I was completely wrong. I had believed the "pyramid" and the so-called "experts" and didn't bother to read the science behind how the body uses nutrients. I found the answer to my extremely long journey in the book, "Primal Body, Primal Mind," by Nora Gedgaudas. "Truths" that I had accepted all of my life turned out to be merely advertisements for food manufacturers and crop growers. The pure science presented, along with the chemistry, astounded me. My understanding of nutrition and how the body utilizes food is now much broader than before, and I can tell you that, after applying the principles, the weight just fell off with little or no effort. My main problem is that I was scared to eat fat, but healthy fat is needed to digest fat-soluble vitamins and to power the brain. There are others on this forum who follow the principles of this book and who have also had wonderful results. Mine will be lifelong and beneficial, because I plan to follow this book's advice from now on. This is not a fad diet--it's the way we were meant to eat. I can highly recommend it. By the way, the author is death on gluten and grains, in general, and she discusses thyroid conditions in detail.

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Hi Megan,

Are you being treated for your Hashimoto's thyroiditis? People with Hashimoto's may need thyroid supplements to maintain adequate thyroid hormone levels and metabolism.

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    • Below is copied & pasted from this thread:   My celiac doctor is Dr. Syed Jafri, in Webster, TX (just south of Houston -- basically the Clear Lake City area), saved my LIFE.  I would recommend him to the whole, entire world.  I was desperately ill, and am still struggling, and he's a wonderful, sweet man who listens and is very proactive in helping you solve whatever problems you're having.  I wish all doctors were like him.  I have to fight and struggle with too many doctors to just listen to me and what I live with, day in and day out.  He's not like that.  Good luck to you.     There are recommendations on this thread too:  
    • I never worried about cross contamination because i was originally told i was just intolerant. after going gluten free i felt so much better up until this last march. dairy and fructose have been giving me problems but both lactose and fructose test came back negative.  this is what my gi doctor emailed me today 
    • Any place you know of to find more info? Seems like I am still in so much pain/bloat, I am not even sure if I would pick the right 5 foods!
    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
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