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I Have Celiac, And Am Very Strict With Diet, Yet Still, Am Not Myself
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Hi! I have Celiac, and was diagnosed in January of 2011. I also have a thyroid disorder - hoshimoto's. I have adhered to a strict gluten-free diet since, and many of my symptoms were gone in weeks (extreme fog head, chest pain, eye dryness, thirst, bloating, fatigue, general feelings of unhealthiness). I have always been a healthy eater. The "strive for five" servings of vege & fruit were a non issue for me, as I regularly ate/eat them. I now eat at least 9 servings of vege/fruit. I eat an occasional gluten-free treat, such as pasta, or rice or potato, but normally I just avoid starchy foods. I have gained weight since my diagnosis, regardless, about 20 pounds to be exact. Is there a hidden secret between gluten and metabolism? I have researched and most Celiac victims seem to have just the opposite problem. I avoid high glycemic fruits and veges, and exercise daily (run about 12 miles a week, and walk around 10 miles a week). I eat a low sodium diet based on my family history of high blood pressure. I work a lot of hours a week. I am just wondering if there is anyone else out there who feels my pain! or has tips! I have lost roughly 5 pounds since I added the running into my schedule (6 months ago), and it makes me feel better, but where in the world is a girl to put the other 15 pounds! Also, I have periods of time where I just feel horrid - like my old undiagnosed self, for a few days at a time, even though no gluten, maybe dairy? I am just looking for feedback, or common thoughts..

thanks!

Megan

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I could have written your post a year ago--I was a lifelong jogger and ate a diet high in vegetables and fruits....and, yet, I had gained weight since going gluten free. I was absolutely mystified and read everything on the planet to help me find the answer. What I finally discovered is that I wasn't eating enough healthy fats and protein. I thought I was well educated about what a good diet entailed and what was necessary to maintain excellent health...but I was completely wrong. I had believed the "pyramid" and the so-called "experts" and didn't bother to read the science behind how the body uses nutrients. I found the answer to my extremely long journey in the book, "Primal Body, Primal Mind," by Nora Gedgaudas. "Truths" that I had accepted all of my life turned out to be merely advertisements for food manufacturers and crop growers. The pure science presented, along with the chemistry, astounded me. My understanding of nutrition and how the body utilizes food is now much broader than before, and I can tell you that, after applying the principles, the weight just fell off with little or no effort. My main problem is that I was scared to eat fat, but healthy fat is needed to digest fat-soluble vitamins and to power the brain. There are others on this forum who follow the principles of this book and who have also had wonderful results. Mine will be lifelong and beneficial, because I plan to follow this book's advice from now on. This is not a fad diet--it's the way we were meant to eat. I can highly recommend it. By the way, the author is death on gluten and grains, in general, and she discusses thyroid conditions in detail.

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Hi Megan,

Are you being treated for your Hashimoto's thyroiditis? People with Hashimoto's may need thyroid supplements to maintain adequate thyroid hormone levels and metabolism.

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    • gluten intolerance, dairy intolerance and fructose
      Look into The Paleo Approach by Sara Ballentyne, PhD.  Great resource and will probably answer your questions.  I have the same problem. You have to really read labels.  The only coconut milk I can use is an organic canned one.  Others have too many ingredients that are problematic.  For now, stay with meat and vegetables as someone else has recommended.  If rice works for you, great.  If not, winter squash is good.  The diet change is overwhelming at first but then it starts to make sense.  The one good thing about an intolerance versus allergy is the possibility of someday being able to add it back into your diet once your gut has healed.
    • Anyone experience brain fog like this?
      I went gluten free about a month ago, and was finally feeling *great* last week when wham -- my well-meaning Dad cooked me dinner and forgot to check the ingredients on the fish sauce he used. The upside of being glutened for the first time is that, after a couple weeks of feeling good, I feel like I can discern the symptoms a lot better now. I've noticed that the worst part, aside from the nausea, is the "brain fog," but I'm curious if my experience of brain fog is the same as or similar to what other people are feeling. For me, it becomes almost physically painful to concentrate on anything. If I try to read a book, or watch a TV show, it makes me feel dizzy, overwhelmed, and nauseous. For a couple days, I feel like all I can do is try to stay still and do as little as possible while I wait it out. It feels similar to anxiety, but not quite the same, and none of the usual tricks for getting through a panic attack help. Do any of you experience brain fog in a similar way? Where it basically makes you feel sick to try and concentrate on anything, even fun and relaxing things?
    • gluten intolerance, dairy intolerance and fructose
      I've never gone fructose free so can't help much with that.  But any fruit is probably a problem.  If you are serious about avoiding fructose you could do a search and print out a list of foods to avoid. http://www.mayoclinic.org/fructose-intolerance/expert-answers/faq-20058097 Yes, it very possible to have multiple food intolerance issues.  Many people have multiple food intolerances.  It might help to avoid any foods that are sweet for now.  Meat and most veggies are probably the way to go.  You may want to get some jerky to eat for snacks.  Peanuts might be ok but you'll need to verify that.  Boiled eggs are probably ok.  Most soda would be a no-no.      
    • Help
      Hi Courtney, You asked about dairy, and RMJ got it right.  Celiac disease destroys the villi lining of the small intestine.  Those villi make the lactase enzyme we need to digest dairy. Sigmoid colon thickening could be related to diverticulitis.  Which according to Wiki is a fairly common condition but doesn't always cause symptoms.  Diverticulitis can cause a problem if there is an infection though.  The sigmoid colon is part of the large intestine.  Celiac disease affects the small intestine, so celiac isn't likely involved.  I am not sure why the resident suggested celiac, unless there were some other reason to do so.  Possibly the weight loss, which could be explained by celiac disease.  Thickening of the colon may happen with Crohn's disease also.  And I'm not sure about UCD (ulcerative colitis disease) but it might cause that also, not sure https://en.wikipedia.org/wiki/Diverticulosis https://en.wikipedia.org/wiki/Sigmoid_colon http://biology-pages.info/G/GITract.html#pancreas http://www.ccfa.org/what-are-crohns-and-colitis/what-is-ulcerative-colitis/
    • News: Celiac.com: Government of Canada Invests in Gluten-Free Awareness
      Sticking to a gluten-free diet, which is the only accepted treatment for celiac disease, can be challenging and costly because of limited food choices. View the full article
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