Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I Have Celiac, And Am Very Strict With Diet, Yet Still, Am Not Myself
0

3 posts in this topic

Hi! I have Celiac, and was diagnosed in January of 2011. I also have a thyroid disorder - hoshimoto's. I have adhered to a strict gluten-free diet since, and many of my symptoms were gone in weeks (extreme fog head, chest pain, eye dryness, thirst, bloating, fatigue, general feelings of unhealthiness). I have always been a healthy eater. The "strive for five" servings of vege & fruit were a non issue for me, as I regularly ate/eat them. I now eat at least 9 servings of vege/fruit. I eat an occasional gluten-free treat, such as pasta, or rice or potato, but normally I just avoid starchy foods. I have gained weight since my diagnosis, regardless, about 20 pounds to be exact. Is there a hidden secret between gluten and metabolism? I have researched and most Celiac victims seem to have just the opposite problem. I avoid high glycemic fruits and veges, and exercise daily (run about 12 miles a week, and walk around 10 miles a week). I eat a low sodium diet based on my family history of high blood pressure. I work a lot of hours a week. I am just wondering if there is anyone else out there who feels my pain! or has tips! I have lost roughly 5 pounds since I added the running into my schedule (6 months ago), and it makes me feel better, but where in the world is a girl to put the other 15 pounds! Also, I have periods of time where I just feel horrid - like my old undiagnosed self, for a few days at a time, even though no gluten, maybe dairy? I am just looking for feedback, or common thoughts..

thanks!

Megan

0

Share this post


Link to post
Share on other sites


Ads by Google:

I could have written your post a year ago--I was a lifelong jogger and ate a diet high in vegetables and fruits....and, yet, I had gained weight since going gluten free. I was absolutely mystified and read everything on the planet to help me find the answer. What I finally discovered is that I wasn't eating enough healthy fats and protein. I thought I was well educated about what a good diet entailed and what was necessary to maintain excellent health...but I was completely wrong. I had believed the "pyramid" and the so-called "experts" and didn't bother to read the science behind how the body uses nutrients. I found the answer to my extremely long journey in the book, "Primal Body, Primal Mind," by Nora Gedgaudas. "Truths" that I had accepted all of my life turned out to be merely advertisements for food manufacturers and crop growers. The pure science presented, along with the chemistry, astounded me. My understanding of nutrition and how the body utilizes food is now much broader than before, and I can tell you that, after applying the principles, the weight just fell off with little or no effort. My main problem is that I was scared to eat fat, but healthy fat is needed to digest fat-soluble vitamins and to power the brain. There are others on this forum who follow the principles of this book and who have also had wonderful results. Mine will be lifelong and beneficial, because I plan to follow this book's advice from now on. This is not a fad diet--it's the way we were meant to eat. I can highly recommend it. By the way, the author is death on gluten and grains, in general, and she discusses thyroid conditions in detail.

0

Share this post


Link to post
Share on other sites

Hi Megan,

Are you being treated for your Hashimoto's thyroiditis? People with Hashimoto's may need thyroid supplements to maintain adequate thyroid hormone levels and metabolism.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,131
    • Total Posts
      919,521
  • Topics

  • Posts

    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
    • I'm so confused about my daughter's diagnosis.  I hope somebody can help.   My 4 year old daughter has a swollen belly, stomachaches, and lots of gas.  She does not have diarrhea or delayed growth.  Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac.   She was weak positive for TTG (IGA)  and strong positive for DGP (IGG)   TTG (IGA)  8   (0-3 neg, 4-10 weak positive, greater than 10 positive) TTG (IGG)  2   EMA: Negative DGP (IGG)  47  (0-19 negative, 20-30 weak positive, greater than 30 positive) Last week, she had her endoscopy.  The doctor found inflammation and little holes or bumps on her duodenum.  He started her on prevacid and said based on his observations, he was suspicious of celiac, but he would not be able to confirm until the biopsy came back. The biopsy showed no signs of celiac disease.  He said that he could not diagnose her with celiac without the biopsy report saying there was celiac damage.  He said he would categorize her as a potential celiac, keep her on a gluten diet and redo the endoscopy in a year or two to check for damage again.  My questions are: 1.)  If it is not celiac, something is causing her duodenum to be inflamed and have little holes or bumps on it, right?  Could it be a wheat allergy or gluten sensitivity?  What else could it be and how do they test for it?  Given her elevated celiac antibodies, how likely is it to be anything besides celiac causing the damage?  2.)  How likely are false positives for TTG and DGP?  I've heard they are pretty sensitive and specific.  Does getting two positives make false positives less likely? 3.) What have you done in this situation?  I want her to have an official diagnosis to make things easier at school and to feel confident that we are eliminating gluten permanently for a worthy reason, etc.  But, I'm having a hard time imagining keeping her on gluten and waiting for her to get more sick and have more intestinal damage just for a diagnosis.     Thanks in advance for your help.  I'm so overwhelmed and confused.  I hope someone has some insight and experience that will help clear things up for me.            
    • Yeah I actually live in Japan which is pretty similar, because Coeliac disease is rare over here so is the understanding and accommodating it. When I mention Gluten to some restaurants they think I am talking in English and they are unfamiliar with the word in Japanese.    So it seems I can write off my chances of getting some authentic Chinese gluten-free food at the airport, but at least there is a Thai restaurant in T3 so I won't starve. Its called  'Phrik Thai' for future reference. http://en-shopping.bcia.com.cn/store/739.html  
    • While in Boston I found Cheer's  Bloody Mary mix that says gluten-free on the bottle and have had no issues and  tastes pretty good 
    • I always assumed plain coffee was, but I have seen some controversy online about this. I know someone who is gluten free and only buys whole beans and grinds them herself because she doesn't trust how the grounds are processed.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,166
    • Most Online
      1,763

    Newest Member
    jen4az
    Joined