My Kids' 6-Month Blood Recheck
Posted 19 June 2012 - 03:45 PM
Then, she goes on to say that they (the kids) must be cheating on the diet. This is greatly upsetting to me because 1) I was diagnosed with Celiac around the same time (we all got tested when we found out one of my kids had it), and 2) I buy the food AND feed the kids, and I KNOW that NO ONE ate gluten. We changed out all of our kitchen utensils, pots and pans, EVERYTHING. We are ALL eating gluten free, and my kids, especially the oldest, is very anal about checking to make sure whatever he eats is gluten free. To hear they think our kids are sneaking food or whatever just makes me upset.
So -- it's really about 5 month's later for one of my kids (by the time we got the initial diagnosis, etc). 6 months for the other.
Is it that it hasn't been enough time, yet? I thought going strictly gluten free would have made a difference by now. I mean, barely no eating out, and only ordering off of the gluten-free menu. Maybe eating out 2 times a month! ONLY buying food that is gluten free, vitamins, toothpaste, etc. I should know -- our grocery bills have gone up significantly making sure we are only buying gluten-free cereals, pasta, pretzels, oatmeal. We eat a lot of salads and chicken, vegetables, fruit, some dairy. Even our condiments -- gluten free!
I argued (well, strongly suggested) to the NP that, no, my kids are NOT cheating on the diet, and that we were all eating gluten free. She said she'd talk to the doctor and get back to us. We actually have a follow up appt. in a couple of weeks.
What do you think?
Confirmed diagnosis via endoscopy on 1/16/12; gluten-free since 1/16/12
Posted 19 June 2012 - 04:15 PM
So depending on how elevated their Celiac Panel numbers were it can take awhile to normalize. Keep up the good work!
Son-diagnosed Sept. 2011 with numbers off the chart, positive biopsy, hypothyroidism, ADHD, PDD (totally mainstreamed in School)
Daughter-diagnosed Jan. 2012 with no symptoms blood test positive, biopsy negative, hypothyroidism. Chose to go Gluten Free, dancer and straight A high school student
Husband-positive blood test, hypothyroidism and decided to skip the endoscopy
Posted 20 June 2012 - 04:59 AM
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