Celiac With Throat Squeezing
Posted 19 June 2012 - 07:51 PM
Posted 20 June 2012 - 03:17 PM
Diagnosed Hypothyroid - 2006
Posted 21 June 2012 - 07:11 AM
My daughter was diagnosed as Celiac first, gluten free for 4 years and then these symptoms started. Really close to "glutening", but take on the vomitting. "Food came back up and went back down" in the throat. Honestly if the eosinophils are causing damage the swelling is causing the throat to close up (stricture). Food particles can get stuck in the throat.
This does seem to be increasing in diagnoses, still most medical professionals don't even know what it is. Do some homework and make sure your Ped. gastro. knows what to look for. It is mostly diagnosed through an upper endoscopy with biopsy. On diagnoses the patient is prescribed a modified steroid inhaler. (the spray is needed to swallow not inhale) Be carefull to prevent a thrush infection. Prevacid is usually prescribed too. You should be reffered to an allergist for testing.
Alas, EoE is not a "true allergy", most do not test positive for what the "triggers" are. An elimination to determine what "allergens" cause the eosinophil production. A Food journal is essential during this time. The tiggers can be food and/or airborn. Once acitivated eosinophils are active for 12 days.
Do a quick check yourself. Are the tonsils enlarged? Creamy patches in the back of the throat? An odd smell?
Posted 21 June 2012 - 10:19 AM
When I was a child I often complained of a 'chokey' feeling!! I felt like my throat was closing in on me and I felt nauseated. I was a terrible eater with little appetite and my mum thought I was just being picky and making it up because I didnt want to eat my food. I was checked out over and again by the doctor who always said there was nothing wrong (which didn't help my cause as he was basically saying it was all in my mind)
I just grew up living with it and like everything else a celiac does, just thought that it was me and that was how it was supposed to be and feel. You just get used to your own kind of normal in the end.
I did end up having bouts of tonsilitis as a teenager and had my tonsils out at aged 18. The feeling I think eased over many years - that and I had got used to it so probably desensitized to it.
It was only reading this that I remember how traumatic and stressful it was for me all those years ago.
As an adult, looking back I have had it on and off over the years but of course never ever ever thought of any connection with what I ate - like I say, I only recently fitted all the jigsaw together and got myself an unofficial diagnosis (positive DQ2 genes, symptoms, and then totally symptom free feeling like a new person on a gluten-free diet) so docs have accepted in principal I am celiac though I will never go back on gluten to get the endo.
Sorry I cant be of help as to what to do but I would bet the 2 are absolutely related
Posted 22 June 2012 - 05:18 AM
Are you better off with a food allergist specialist or GI?
How is the best way to bring up the 'idea it could be this' to the dr?
Posted 22 June 2012 - 05:04 PM
There seems to be a seasonal "flare" of symptoms, illness, and diagnoses. (late summer to fall) Get back into the ped. gastro. for diagnoses. An allergist referral was not helpful for my daughter's case at all.
Gastro. is needed for diagnoses and an allergy specialist is reffered for treatment.
Posted 23 June 2012 - 08:12 AM
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