Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Could It Really Be My Problem?


Mnicole1981

Recommended Posts

Mnicole1981 Enthusiast

I have been gluten free for a month now. I am still having good and bad days, of course, but they are better than they were two months ago.

I am self-diagnosed, because everything came back negative. But if I am getting better, then gluten was my problem, right? This would all be easier if my family just got tested.

My sister has an obvious gluten intolerance. She has hidradenitis supparativa bad on her armpits. My mother has IBS. There are a host of autoimmune diseases in my family.

It feels like it is all in your head when you don't have an official diagnosis or that it is something worse.

I am just feeling weird today.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KMMO320 Contributor

You described me exactly. Yesterday, I found out all my results which were.negative. I told my dr..but I feel.better being gluten-free how do you explain that. She said I cant...all my evidence says you do not have.a.gluten issue. I was not.gluten.free until after testing..

I had a.bad day yesterday and today. Im doubting everything. I.feel like I imagined feeling better without gluten. So now there is nothing to do but challenge myself I guess.

Link to comment
Share on other sites
sallyalewis Rookie

I have been gluten free for about 4 months now. I was not tested, but am allergic to so many other things the doc suggested I try removing gluten from my diet. My 2 year Migraine, and 2 year long sinus infection were gone by the end of the first week! I was not tested, but I KNOW when I've been glutened! I have the big D within 1/2, sometimes followed a few days later by terrible muscle and joint ache, and Brain Fog! I have not accidentally glutened myself for 9 days strait now, and have felt great!

It can ONLY be the Gluten!

Link to comment
Share on other sites
robertwilburn35 Newbie

they can say whatever they want with what ever test they want. but I went gluten free and feel better. I do not need a dx to treat myself with a gluten free perscription

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,201
    • Most Online (within 30 mins)
      7,748

    Sohaib Askar
    Newest Member
    Sohaib Askar
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
    • knitty kitty
      Here's a link... Thiamine Deficiency Causes Intracellular Potassium Wasting https://www.hormonesmatter.com/thiamine-deficiency-causes-intracellular-potassium-wasting/
    • Soleihey
      Has anyone experimenced enlarged lymph nodes with celiac? Both in the neck and groin area. Imaging of both areas have said that lymph nodes are reactive in nature. However, they have been present for months and just wondering how long this may take to go down. Been gluten-free for about two months. Blood counts are normal.
    • Kmd2024
      Hmm interesting I just assumed that any “IGA” tests including the DPG iga would be negative in a person who is IGA deficient but maybe that is not the case for the DPG test.
    • Scott Adams
      If you were just diagnosed I can say that if you go 100% gluten-free should should see dramatic improvement of your symptoms over the next few months, but the hard part is to stay gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...