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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Feeling Glutened After Ice Cream Cone
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6 posts in this topic

I keep a very detailed food log.. the only new thing I've introduced is Goldbaum's ice cream cones. After the first one I ate, I woke up at night from my stomach gurgling and couldn't go into work the next day I felt so ill.

Well here I am at 2 in the morning with horrible gas and stomach pain, after another cone. Say it ain't so.

I can't find a single bad review on these cones. Am I off the mark and it's the ice cream? (Perry's Chocolate Peanut Butter Cup, labeled gluten-free).

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Goldbaum's is a dedicated facility, from what I have read, and I have indulged myself with one of their cones recently with coconut ice cream and felt no ill effects. And I am a "quick responder".

I have no idea if you can tolerate dairy, chocolate or peanuts, but a mix of ice cream flavors makes it really difficult to pinpoint what is making you feel ill.

Is there a big black G F in the circle on the Perry's, or just the words "gluten free" on the package? Are the various ice cream flavors run on shared lines?

Next time, try a plain flavor and no cone and see what happens.

More importantly, if you are newly diagnosed, anything could be giving you grief still. It takes a long time to heal.

Stick to a whole foods diet and no dairy for a few weeks and see if you feel better. Dairy gives those same symptoms you describe in a gut that is still healing. It cannot tolerate the lactose just yet maybe.

Just some thoughts!

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I just looked those up and they look delicious.

Even among super sensitives, sensitivity levels vary, so just because someone else can eat it doesn't mean that you can, unfortunately. I think that it can be difficult for dedicated facilities to get super pure starting food materials due to farming practices which can include crop rotation and shared equipment and facilities. I buy grains, seeds, and beans whole and sort and wash them before eating. I have found what looked like gluten grains in many places where they should not be.

Although you did post in the super sensitive section, I will add that I am sensitive to very low levels of gluten.

I hope you feel better soon.

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I called Perry's ice cream and they assured me they sanitize the facilities every 24 hours and the gluten-free flavors wouldn't be contaminated by non-gluten-free ones.

I've been gluten-free for 11 months. Prior to healing I couldn't tolerate dairy, but for months I've been eating it without any issues. Peanut butter is fine. I'm not positive about chocolate and will keep an eye on it.

Dilettantesteph-- the cones are absolutely delicious. I've been looking for cones since my diagnosis and was thrilled when I found 12 for $3.50 at the grocery store. I am really hoping they aren't the culprit.

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I called Perry's ice cream and they assured me they sanitize the facilities every 24 hours and the gluten-free flavors wouldn't be contaminated by non-gluten-free ones.

I'll be totally honest, a teeny, selfish part of me is hoping it's your ice cream. :unsure: I just bought a package of these cones today for my son to try, so I really don't want it to be them! I think I'll be calling them up to double check on processing.

I don't know anything about the ice cream company's facility. But there's a question that might be good to ask them: do they test for gluten cc for their gluten free products? Many companies in the USA do not, and if they don't test, and they don't have a gluten free facility, then there can be a slight risk of gluten cc.

Many companies have gluten free facilities instead of processing their gluten products with their gluten free ones. I imagine that this is because it eliminates some of that risk.

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Along with a sensitivity to wheat gluten, celiacs are often sensitive to other things such as annatto, a natural yellow food coloring that is often used in ice cream and yellow cheese, (Johnsonville Brats also contain annatto as a coloring agent, and I can't keep them down for 5 minutes!). Tartrazine, (FD&C Yellow #5) is another one that affects me, but it's made from coal-tar along with all the other AZO food colorings! Who would want to eat that, anyway? Unfortunately, it's very commonly used in foods, candy, medicines and vitamin pills.

Ask your doctor when it's a good idea to ingest petroleum distillates, and he'll tell you, "NEVER!". Then, ask him why they put it in the medicines he expects you to take....

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