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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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6 posts in this topic

Are the Yummy earth lollipops ok for super sensitives? as far as i can see on their website, it should be ok, but i'd like to know if anyone has experience with it

I also have Betty crocker's Fruit by the foot, is that ok for super sensitives ? if anyone reacted I'd like to know because i react to almost everything

thanks for all the help :)

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The Betty Crocker likely says gluten-free on the side of the box

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The Betty Crocker likely says gluten-free on the side of the box

When it says gluten free it usually isn't enough for me. I react to a ton of gluten-free stuff but that only means it needs to contain less than 20 ppm which is not low enough for me, i react to much less

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Sorry I can't help very much. I react to almost everything too. My list of processed items I can have is pretty short. I don't try new things very often any more.

The closest I come to candy these days is one particular honey which is expensive but delicious.

I used to give my kids those lollipops and we didn't ever notice a big reaction. That was near the beginning of being gluten free and we still had lots of cc sources in our diets, and lots of ongoing symptoms.

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The closest I come to candy these days is one particular honey which is expensive but delicious.

Wait-- is honey a problem, or do you just have a preferred type? I'm trying to figure out why I still feel like crap, and I do have honey in my tea...

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I had problems finding a honey which I could tolerate. I don't handle much at all in the way of processed foods. It is not at all typical to have problems with honey.

You could do an elimination/challenge study if you are concerned.

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