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Selfish/lazy To Stay In Bed?


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4 replies to this topic

#1 Strawberry_Jam

 
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Posted 21 June 2012 - 03:57 PM

current symptoms: intense fatigue, bleeding/sore gums, headache, blurred vision, stiff neck, muscle pains, emotional.

I've been sleeping or otherwise in bed on my laptop for three days now. I have no idea what "got" me but i think it was the gluten-free soup and bread at the little crumby cafe I risked eating at in Oxford. I didn't trust them with CC to save my life but was hungry and with company so took the risk since the ingredients themselves were all fine. . .

I want to cycle for 30 days straight in about eight days. (been planning for months.) haven't trained properly at all and this is cutting in to my preparation time. I also have to clean up this flat and get ready for the trip (if I don't postpone it, which I might)

... plus I have art I promised to make for people, writing to do, but my head hurts at an unable to think kind of level

every day I spend in bed without exercising or accomplishing anything makes me feel like a fattening lazy slob worthless human being and I'm lonely and want to shout and scream that gluten is poison and the world is dying.

luckily, no reflux, which was usually my major symptom?? in fact, nothing gastrointestinal at all except mild constipation and gas at first which is gone now. bit weird. but I know I'm not sick with a virus or something because no flu symptoms, no fever. congestion at levels it's been at for weeks.

seems like my autoimmune symptoms change every week (well every time i get sick it's different)

how do you ever know what's going on, what got you, how paranoid you have to be and when you can relax and when will i ever stop wanting to throw up when i think of food? when will i stop wanting to scream and kick donut stands over in the grocery store? throw bread down the aisles in rage? (actually did this once when they put gluten bread in the gluten free section, I threw it at the regular bread and stormed off)

HOW LONG DOES IT LAST. oh man I'm not going to have D for a week again like i did last time am i? that reaction was delayed by like 7 days it seemed. this reaction started after 1 day if my calculations are correct (imcac). guess i will know over the weekend

god this poetry is vile is it not
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gluten-free 25 Feb 2011
soy-free 30 March 2011

dairy-free 30 August 2011 (roughly)

25 yrs old
diagnosed Celiac through biopsy and blood test (WAY positive) as of 25 Feb 2011


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#2 Jestgar

 
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Posted 21 June 2012 - 04:40 PM

mmm, yes, selfish. You should be out at the mall, screaming at people to stop poisoning the world, dropping bloody tissues, and groaning to make your point. This is your supreme chance to truly make the world understand how awful it is to be glutened and you're wasting it by lounging about in bed writing bad poetry.

Or just accept that you are healing your body, which is really hard work. Realize that every minute you give yourself to recover means that much more energy for your trip.

And next time bring a friend with a video camera when you go bread shopping. :)
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#3 Skylark

 
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Posted 21 June 2012 - 06:02 PM

Ugh, sounds like depression is a big gluten symptom for you. Forgive yourself for being sick and needing rest! I hope you feel better soon.
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#4 MitziG

 
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Posted 22 June 2012 - 03:27 AM

Well, my two kids have been fending for/ feeding themselves for 48 hours, the laundry is piled up, the dishes piled up and the place looks disgusting- all because I was starving and took a chance on a protein bar that was gluten free- but processed on equipment with wheat....ok...confession: I ate TWO of them.

Getting out of bed and being mom isn't an option. So...yes, I too feel guilty and lazy. But oh well, nothing you can do.

Hope you feel better in time for your trip!
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#5 ravenwoodglass

 
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Posted 22 June 2012 - 05:01 AM

So sorry you are feeling so badly right now. It sounds like you have a lot on your plate and getting glutened isn't helping you to accomplish all you want or need to do. You are not selfish or lazy. You have an autoimmune disease that you are fighting. Do what you can and forgive yourself for what you can't.
If you haven't been able to train for the 30 straight days of bike riding don't beat yourself up if you need to put off the trip. Putting it off is better than pushing a still healing body beyond it's physical limits.
I do hope you get over being glutened soon. Do what you feel you can do, spend a bit of time outside if you can and keep in mind that this will pass and you will feel better before too long.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)




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