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Selfish/lazy To Stay In Bed?
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current symptoms: intense fatigue, bleeding/sore gums, headache, blurred vision, stiff neck, muscle pains, emotional.

I've been sleeping or otherwise in bed on my laptop for three days now. I have no idea what "got" me but i think it was the gluten-free soup and bread at the little crumby cafe I risked eating at in Oxford. I didn't trust them with CC to save my life but was hungry and with company so took the risk since the ingredients themselves were all fine. . .

I want to cycle for 30 days straight in about eight days. (been planning for months.) haven't trained properly at all and this is cutting in to my preparation time. I also have to clean up this flat and get ready for the trip (if I don't postpone it, which I might)

... plus I have art I promised to make for people, writing to do, but my head hurts at an unable to think kind of level

every day I spend in bed without exercising or accomplishing anything makes me feel like a fattening lazy slob worthless human being and I'm lonely and want to shout and scream that gluten is poison and the world is dying.

luckily, no reflux, which was usually my major symptom?? in fact, nothing gastrointestinal at all except mild constipation and gas at first which is gone now. bit weird. but I know I'm not sick with a virus or something because no flu symptoms, no fever. congestion at levels it's been at for weeks.

seems like my autoimmune symptoms change every week (well every time i get sick it's different)

how do you ever know what's going on, what got you, how paranoid you have to be and when you can relax and when will i ever stop wanting to throw up when i think of food? when will i stop wanting to scream and kick donut stands over in the grocery store? throw bread down the aisles in rage? (actually did this once when they put gluten bread in the gluten free section, I threw it at the regular bread and stormed off)

HOW LONG DOES IT LAST. oh man I'm not going to have D for a week again like i did last time am i? that reaction was delayed by like 7 days it seemed. this reaction started after 1 day if my calculations are correct (imcac). guess i will know over the weekend

god this poetry is vile is it not

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mmm, yes, selfish. You should be out at the mall, screaming at people to stop poisoning the world, dropping bloody tissues, and groaning to make your point. This is your supreme chance to truly make the world understand how awful it is to be glutened and you're wasting it by lounging about in bed writing bad poetry.

Or just accept that you are healing your body, which is really hard work. Realize that every minute you give yourself to recover means that much more energy for your trip.

And next time bring a friend with a video camera when you go bread shopping. :)

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Ugh, sounds like depression is a big gluten symptom for you. Forgive yourself for being sick and needing rest! I hope you feel better soon.

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Well, my two kids have been fending for/ feeding themselves for 48 hours, the laundry is piled up, the dishes piled up and the place looks disgusting- all because I was starving and took a chance on a protein bar that was gluten free- but processed on equipment with wheat....ok...confession: I ate TWO of them.

Getting out of bed and being mom isn't an option. So...yes, I too feel guilty and lazy. But oh well, nothing you can do.

Hope you feel better in time for your trip!

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So sorry you are feeling so badly right now. It sounds like you have a lot on your plate and getting glutened isn't helping you to accomplish all you want or need to do. You are not selfish or lazy. You have an autoimmune disease that you are fighting. Do what you can and forgive yourself for what you can't.

If you haven't been able to train for the 30 straight days of bike riding don't beat yourself up if you need to put off the trip. Putting it off is better than pushing a still healing body beyond it's physical limits.

I do hope you get over being glutened soon. Do what you feel you can do, spend a bit of time outside if you can and keep in mind that this will pass and you will feel better before too long.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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