Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I'm Feeling Lonely Because Of Celiac
0

20 posts in this topic

I am a 19 year old guy, currently a college student (home for break though). I have had celiac for five years, so I'm familiar with the disease and everything. I also have Type 1 diabetes, which I've had for six years. So I got two life-changing diseases within one year of each other.

Basically, I am sick and tired of having these diseases. I have no one to talk to and I feel lonely. All of my friends have told me that they think I have a great attitude about life while dealing with these.....I always act positive. But on the inside, I cannot stand it anymore. Every time I go out with friends, I have to bring my diabetic stuff and on top of that, I cannot just eat anywhere because of celiac. I have to make plans all the time and call restaurants or just order salads, which makes me and my friends feel awkward. When I'm out with friends and we're all hungry, they ask where I can eat at and it just makes me feel like crap when they have to adjust plans for me. It's torture being around girls when eating and then you have to tell them that you just can't eat pretty much everything.....then they think it's weird. There's so much more too, but I am really just getting tired of it.

I don't know what I need, but I feel terrible and alone. I went to a couple support group meetings but there really wasn't anyone my age there and I couldn't relate. One time in the dining hall at college, I met a girl who overheard me and a friend talking about gluten and she said she was celiac too, but I was so stupid and didn't become friends with her and I've never seen her again. I just want to meet someone who also has celiac or a gluten intolerance at the least so I don't feel so alone, but I can't find any (they don't just come up). I also was asymptomatic, so if I ever do eat gluten, I don't feel bad, which is usually motivation for others.

Sorry for the rant here, but my point is that I have two diseases that take a huge toll on my social life and interactions with people. I am really, really getting tired of this and I feel so lonely because there is no one to really talk to about it. I'm losing motivation (not for life.....but I'm losing motivation to stay gluten-free). How do I deal with this feeling/lack of motivation? I really need help. Thanks!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hello, I'm a 17 year old girl with Celiac, and I know just what you mean. I have a cousin with Celiac and Type 1 Diabetes, and she also is often told she has a great attitude about life. Myself, having only Celiac cannot fully relate on a personal level, but I see what she really goes through. She is asymptomatic as well, so she often cheats and eats gluten.

I get very sick when I eat gluten, so I can't ignore having Celiac. I feel awkward with my friends, and even my family, when they have to change plans just so I can eat. They are all very accomodating and kind when it comes to finding food I can eat, but its just a hassle. I went to a party last night, and all the food they had was planned around me. It's very nice that they will do that for me, but I feel bad knowing they went so far out of their way just to feed me.

I live in a pretty rural area, and I feel like my cousin and I are the only ones with Celiac for miles and miles and miles. I want to find a support group, so I can find people that are going through the same things as I.

Don't lose motivation to stop eating gluten-free. As much of a pain it is to find things to eat, being healthy is certainly worth it!

0

Share this post


Link to post
Share on other sites

Welcome!! and do not be sorry for venting. :) We get to do that on here. You have every right to squawk a little ---as you have had to deal with so much at such a young age.

I cannot imagine how hard it is for you having two AI diseases that require dietary compliance, especially when you do not have an overt reaction to gluten. If anyone would be tempted to cheat, it would be you. So, I applaud you for doing such a great job and taking excellent care of yourself.

Is there a celiac support group in your area? If so, maybe you should go!

I know someone who deals with both diabetes and celiac disease and I'll get him to chime in here.

You are not alone, kiddo--we are here for you.

IH

2

Share this post


Link to post
Share on other sites

Welcome to the board! Do you mind an answer from an adult? Because I sure feel the way you do sometimes.

I'm going to a party tonight. They will serve beer and I will have to bring my own cider if I want something to drink. I've eaten dinner ahead of time because I will not be able to snack at the party. Even if there is gluten-free food there will be cracker crumbs everywhere because nobody cares that their crumbs make me unable to eat. I will have a bag of dried fruit in nuts in my purse in case the party goes late and I get hungry. I HATE that, not being able to even pick up a stupid carrot stick for fear of CC. I will enjoy the company though, so that's why I'm going.

You have to enjoy the friendships you have, even if they're not celiac/diabetic and don't fully understand what you're coping with. It sounds like your friends are pretty cool if they go out of their way for you. And yeah, I know that salad dinner all too well. And that awkward feeling that I'm asking my friends to change plans...again. Thing is, my friends really don't mind. I bet yours don't either. We like hanging out and the food really isn't that important.

As far as dating, we have a built-in jerk detector. If a girl is more interested in what you eat than who you are, you know right away that she is shallow and probably not worth your time. I don't even bother with a second date if the guy gives me a hard time about my diet. I mean what will he give me a hard time about next??? There will be a time when a girl will come along who thinks you're awesome, and she won't care in the least that you eat a lot of salad and carry insulin with you.

On the bad days, you just gotta grit your teeth and hang in there. Come here and we'll commiserate because we all go through the same awkward social stuff.

2

Share this post


Link to post
Share on other sites

Welcome to the board! Do you mind an answer from an adult? Because I sure feel the way you do sometimes.

I'm going to a party tonight. They will serve beer and I will have to bring my own cider if I want something to drink. I've eaten dinner ahead of time because I will not be able to snack at the party. Even if there is gluten-free food there will be cracker crumbs everywhere because nobody cares that their crumbs make me unable to eat. I will have a bag of dried fruit in nuts in my purse in case the party goes late and I get hungry. I HATE that, not being able to even pick up a stupid carrot stick for fear of CC. I will enjoy the company though, so that's why I'm going.

You have to enjoy the friendships you have, even if they're not celiac/diabetic and don't fully understand what you're coping with. It sounds like your friends are pretty cool if they go out of their way for you. And yeah, I know that salad dinner all too well. And that awkward feeling that I'm asking my friends to change plans...again. Thing is, my friends really don't mind. I bet yours don't either. We like hanging out and the food really isn't that important.

As far as dating, we have a built-in jerk detector. If a girl is more interested in what you eat than who you are, you know right away that she is shallow and probably not worth your time. I don't even bother with a second date if the guy gives me a hard time about my diet. I mean what will he give me a hard time about next??? There will be a time when a girl will come along who thinks you're awesome, and she won't care in the least that you eat a lot of salad and carry insulin with you.

On the bad days, you just gotta grit your teeth and hang in there. Come here and we'll commiserate because we all go through the same awkward social stuff.

^This made me smile! Probably because it's so true and so very well said, Skylark. Yes...what she said! ;)

1

Share this post


Link to post
Share on other sites




Thanks for all your responses, they did help. Once again, sorry for ranting.....it's literally been in my head for five years and I needed to get it all out. I go to school in a large city so there's a lot of options for eating, so I guess I have it pretty good. It would be so nice to meet someone at my school with celiac though.....there are a few diabetics, but I'd much rather have diabetes than celiac. It's much easier. But thanks for all your responses, they did help.....especially the "built in jerk detector" when dating.

0

Share this post


Link to post
Share on other sites

Hi, and welcome.

I have been dealing with T1 diabetes for 26 years, and have been gluten-free for 12, following a diagnosis of celiac disease.

Of the two, celiac disease has had more impact on my life--pre diagnosis. I was very sick, and for years, nobody could figure out why. As time went on, my symptoms continued to worsen. At the end, I was barely able to function.

These two autoimmune diseases have a statistical correlation. If you have either one, you likelihood of having the other is greater than if you don't. It has been suggested more than once that anyone with T1 should be screened for celiac disease, whether they have symptoms of not.

Both conditions involve dietary restrictions. Of the two, celiac disease is the more rigorous. As a diabetic, I can have occasional sweets, as long as I factor them into my total carbohydrate content, and balance them with insulin. A person with celiac disease must never have any gluten at all. You can not "cheat" occasionally.

Prepared gluten-free baked goods are often higher in carbohydrates (and fat) than their regular equivalents, so we have to eat less of them.

I don't let my life revolve around food. In social situations, it is the people that matter, not what they are (or are not) eating. Have a drink in your hand, and most people won't notice that you aren't eating something. If offered unsafe food, I politely, but firmly, say "no."

At first, dealing with each one was a big deal. Today, it just isn't.

I do realize that, at 19, you are at a different stage in your life than I am at 57. Peer pressure at school can be tough. But things will work out for you.

0

Share this post


Link to post
Share on other sites

Thanks for all your responses, they did help. Once again, sorry for ranting.....it's literally been in my head for five years and I needed to get it all out. I go to school in a large city so there's a lot of options for eating, so I guess I have it pretty good. It would be so nice to meet someone at my school with celiac though.....there are a few diabetics, but I'd much rather have diabetes than celiac. It's much easier. But thanks for all your responses, they did help.....especially the "built in jerk detector" when dating.

Glad you found that funny/helpful. B)

Please don't apologize for ranting. It's why the most popular section of the board by far is called "coping with celiac". As you well know, celiac is not something you can just forget about or ignore in our bread-centric society. This is where you can come to get the frustration out and we all completely understand!

Please come here and ask for help when you need it. That's much better than eating gluten. I really hope you can find a celiac friend or two but if not, you now have hundreds of celiac and even celiac/diabetic pen pals!

Answering your post helped me too. I got to the party last night and sure enough there was bread and cheese on the appetizer table and crumbs scattered everywhere. How do people make so many crumbs??? :lol: I could have eaten the olives and corn chips/salsa if the hostess had happened to put the cheese board somewhere else, but no such luck. Since I had replied to your post just before I left I was fully expecting it so it didn't bother me. I had a great time. :)

0

Share this post


Link to post
Share on other sites

I feel the same way, i am a 22 year old female. You just cant let things get you down. Its good to have friends that support you, i have some who think i am kidding about CC and just go "well you can just eat it now it won’t hurt you". I am a nurse so its good because i get to rant to all my co-workers, and in-turn they understand everything more. I always eat before i go out, and bring a snack bar with me everywhere i go. I get down sometimes to and think how nice it would be to just take a pill everyday and then eat everything i see :D how great would that be ! (We can dream can’t we ?? haha). I don’t know why girls would think it’s weird, you’re looking after your health to look and feel better, just like they do when they do their hair and make-up and eat salad to stay fit. Whenever I feel down I go to work (I work on a Peds floor) and see all the very sick and dying kids then get mad at myself for feeling like this, we get to do what we want see who we want live where we want. I have had the same issue, I cant seem to find anyone around my age who has celiac too, and I feel adults don’t really get it sometimes. We don’t plan our lives like they do, so when its 3am and ur hungry and all your friends want to go to a burger joint and just look at you, you just want to die. I always bake some really good like banana bread and cake then freeze it so when I am hungry I can just pull it out and have some normal tasting food. I have the same lonely feeling at time, even though I have a big family that supports me lots of friends and a boyfriend who does everything. So I don’t think there is really anything we can do, well I bought a bunch of pets and they make me feel better :P . Just remember you need to do it, people are fighting for their lives every day in the hospitals you can’t let food get you down. Maybe volunteer at a cancer floor or on a Peds floor, it might bring up your spirits to help other and see people worse off and still happy and enjoying life to the fullest. Just a thought. Hope this helped a little, I feel for ya

0

Share this post


Link to post
Share on other sites

sorry for all the bad spelling :s

0

Share this post


Link to post
Share on other sites

If you can't find a support group on campus - start one ..

Put a sign up at Student Health, the Pastoral office of any campus ministers, the Notice Board near the Food Hall, the College pharmacy/drugstore .. Pro-active! ... You have done very well, at a young age - keep it up!

College life can be a pain in the butt sometimes, so swing it around to your advantage - take charge ... I think that it would be unlikely that you are the only student in this predicament.

0

Share this post


Link to post
Share on other sites

We all feel this way a lot of the time I think. Young and old, it is so hard. I just went to a swim meet with my young kids and I felt the same as you, that I have to explain my diet and life issues. Sometimes I feel people must think I'm wierd. I think the good thing here is you have awsome and I mean awsome caring friends. We are teaching people to be caring and sensive to other peoples' needs as they learn to be caring and sensive to our needs. Take those teenagers from New York for example, they were clueless to being sensitive in any respect. The goal in society is to teach people to be sensitive to all peoples' needs. These are our needs and we can't help it. We are doing nothing wrong. We have to eat this way and yes it is a pain. But the big D is a bigger pain.

The Celiac Disease Foundation has some young people blogging right now. Look up their blog and see if you can meet and comunicate with them. I think 2 kids are teaching 2 newbie kids how to live and eat gluten free. Call the Celiac Disease Foundation or e-mail them to learn about it.Also there is a young girl who has a blog called Gluten Freed. I met her at CDF conference. She is awsome. See if you can contact her somehow. PM me if you need more ideas and I'll work on that for you. Hang in there. I think you are a strong person. Eating out isn't everything in life. There is so much more. When you get out of college it will be easier and willnot be such an issue.

0

Share this post


Link to post
Share on other sites

I know your pain exactly. I'm 18 and I find it hard to imagine a girl who will actually support my disease and deal with all of my set-backs. I get very depressed when I think about traveling, because a dream of mine is to travel to Japan and I don't know how much I'll enjoy it thanks to Celiac. We just have to hang in there man and be grateful that we don't have even worse things happening to us. I've felt very lonely ever since I've been taking my disease very seriously, and it's hard to be completely happy, but I honestly do think things will get better as time goes on and there will always be someone that has a comparable situation. Keep going.

0

Share this post


Link to post
Share on other sites

Hi! I'm a 20 year old girl with celiac so I can relate. It sounds like your friends are willing to go to places where you can eat so I wouldn't worry about adjusting plans..people are flexible. Also don't worry so much about food. If you think you can only eat a salad, then eat before you go and ordering the salad won't seem like such a big deal. Or bring a protein drink with you (I love Orgain, it's lightly sweetened so I'm not sure if this is a good idea for your diet).

As for feeling alone at college.. I've met about 6 other people with celiac or gluten sensitivity at my school..and my school isn't that big and in a rural area. It really is great having a couple friends who know exactly what I'm going through. I've also met countless people who live with/are friends with/are related to someone with celiac. Any time you make a connection like that you should try to reach out to that person...email/facebook/whatever can get you in touch with them.

I also recommend talking to your school's dining service, they probably have a special diet chef on staff who might be able to help you connect up with other gluten free people. The chefs at my school actually prepared an individual meal for me every dinner because I was struggling to get a safe/healthy meal in the regular lines. It was like having a personal "gourmet" chef (compared to the mass produced mush they give everyone else). My friends would always tell me, "AH I'm so jealous." And I would just look at them like.. don't be. :D

Wow sorry this was a novel. PM me if you ever need to talk it out.

0

Share this post


Link to post
Share on other sites

Dude, from a guys perspective i feel your pain. What i just read right there was story of my life lol ive gone through exactly what you did. The girls, the having to bring it up, basically it taking over your life. I remember this one time i was at school and this girl had these brownies and she was literally putting it close to my mouth and im like uh, no thanks. I didnt want to tell her cause she'd think im crazy and i didnt want to go through the whole process of explaining.

Anyway, i turned it down and she kept saying "why? just eat it" and i would just put her hand down. A few weeks later it happened again. Coincidentally she had a bag of chips that had gluten in them and she offered. I said no im fine, and she was like "oh my god, you never eat!" and i had nothing to say but to smile it off. On the inside, i felt like crap. Sucks we cant enjoy something so small sometimes. When you meet a girl that has celiac, keep in touch. I already have a girlfriend but if i ever meet someone who has the disease i would probably be all over her lol id love to be friends with you if you want? remember you have a whole family here, im not on much but seeing this post makes me want to actually be much more involved (:

1

Share this post


Link to post
Share on other sites

You are definitely not alone in this. I don't have type 1 diabetes, but I am pre type 2 diabetic (thanks to a hormonal condition I have) along with being gluten intolerant and I know how tough it is to not only have to be concerned about keeping your blood sugar stable, but also having to stay away from anything with gluten in it. Also, as someone who just graduated from college, I know how frustrating it is to be a young adult with these conditions, especially when it comes to going out with friends and them not understanding what it's like. As far as motivation goes, try to focus less on what you CAN'T eat and more on what you CAN eat. Even though you didn't have any symptoms before you stopped eating gluten, also remember that if you truly have Celiac, you can get really sick if you go back to eating gluten. Like I said at the beginning, you're not alone in this and I really do hope that things start to look up for you =]

1

Share this post


Link to post
Share on other sites

I am hypoglycemic and I have celiac disease. No one ever asks me where I can eat when we're out. Because of my hypoglycemia I have to have a balanced meal so I generally end up having to eat wheat and I get sick. I have a horrible migraine because I had to eat wheat yesterday. You are very lucky your friends care.

0

Share this post


Link to post
Share on other sites

I'm 18 and Non-Celiac Gluten Intolerant, and I'm in the process of trying to work with my college about mandatory meal plans for freshmen. They can't properly accommodate so it's looking like I will most likely have an exemption, which is what I wanted, but it's a bit depressing too as it means I can't really eat with my friends in the dining hall. It sucks, but I'll do whatever it takes to stay healthy. Hang in there...the diabetic restrictions must add to the intensity.

0

Share this post


Link to post
Share on other sites

If you can't find a support group on campus - start one ..

Put a sign up at Student Health, the Pastoral office of any campus ministers, the Notice Board near the Food Hall, the College pharmacy/drugstore .. Pro-active! ... You have done very well, at a young age - keep it up!

College life can be a pain in the butt sometimes, so swing it around to your advantage - take charge ... I think that it would be unlikely that you are the only student in this predicament.

If your school has a website with a forum or even a classified section, post to ask if anyone would be interested in a support group. You could also use Facebook and publish your post to the whole school.

I've had food allergies my whole life and recently gave up the gluten that seems to be causing my fibromyalgia symptoms (they're slowly going away since I gave it up). I have found that the people who are worth your time, male or female, will not judge you for refusing certain types of food. I have never been turned down for a date or dumped because of it either. People may think it's weird if you don't explain why you don't eat certain things, but if you're willing to explain, those who are worth it won't judge you for avoiding gluten.

0

Share this post


Link to post
Share on other sites

I am hypoglycemic and I have celiac disease. No one ever asks me where I can eat when we're out. Because of my hypoglycemia I have to have a balanced meal so I generally end up having to eat wheat and I get sick. I have a horrible migraine because I had to eat wheat yesterday. You are very lucky your friends care.

Sheesh. Those don't sound like very good friends. True friends would not want to make you sick. If you've explained your condition and vocalized your problems with their restaurant choices, they should try to accommodate your food needs. Sometimes they will fail or will want to try a place where you cannot eat, but many restaurants will understand if you bring your own bread or will try to accommodate you. It's always good to keep a snack on hand in case there's an unplanned meal.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,366
    • Total Posts
      917,513
  • Topics

  • Posts

    • What Are Your Brands & Flavors Of Gluten Free Ice Cream ?
      I don't worry about the same facility, but I check if it is on the same lines. I think it is usually a good idea to find out if things are made on shared lines. And if they are made on the same line as gluten-containing products how good is the cleaning in between? Chocolate is a good example of this. For example, I contacted a company whose chocolate I used to eat before being diagnosed and they outright told me they are not good about cleaning on shared lines and it is not safe for allergies or celiac. I have had this response from other companies as well (especially when it comes to chocolate sadly). I think this is why Godiva is not safe. Its just a good idea to check.
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      Wow you all have more balls than I do. I've been gluten free since 2007 and I'm still afraid of offending people. It gives me lots of troubles, really. I'm more like rockstarkate I guess...the "people pleasing" aspect.  I love how you all just have the flat out rule I Will Not Eat It Unless I or a Celiac Made it. (Or a trusted family member).  I still simper and grovel and cringe and apologetically turn things away.  People still put dishes in my face and say "This should be gluten free..."  and I have to awkwardly not eat it and then seem rude.  I've done the whole...checking the bottles thing too.  I do try to dart out of things more though now. I volunteered in other countries in recent years and I felt as vulnerable as all heck, having to rely on them to make food, as well as definitely feeling like I offended people who didn't get it at all. I was feeling brave when I signed up for those but after the second time I was like okay, the fear/anxiety/stress about the food is too much. I managed to dodge out of getting sick, and for the most part people humored me...but it was pretty difficult because I don't like offending people, especially other cultures, with them trying to be nice and make food for me...pretty sure I did offend people as well as annoy many others.  Anyway...no OP, you are not alone. For sure I have trust issues eating other people's food. They say they know but I do truly doubt they are as strict as I would be.   A few times I will still brave eating something...like some little mozzarella balls with vinegar...though, I did still look at the labels.  Someone had to give me a persuasive speech and show me all ingredients (just salt and pepper) after making me chicken wings once. I do tell people, basically, NOT to make me stuff. But they still do.  Another time a friend had worked really hard and was having a terrible time and offered me a burger patty when I arrived, assuring me it was gluten free. I knew I hadn't been there to watch whether she used the "bun spatula" on it or not...but I just didn't feel like giving her a fight about it since she was having a rough time and hosts like to feel they are feeding guests, blah blah. So I ate it. And got glutened. And wailed and gnashed my teeth haha. Lesson learned.  I need to stick to my guns more. I just always feel like I'm being too "difficult" as it is. But...sigh.  It is refreshing for me to read these empowered no BS responses though. You all remind me of where I'm coming from, and not that I'm just being some kind of high maintenance, rude, crazy person. You'd think after, what, nine years now, I wouldn't still be bothered by it...
    • Mashed potato soup during healing
      I was on pretty much a liquid diet for 8 months waiting for my nausea to go away completely. I mostly had mashed potato soup, 1/2 fat ice cream (mostly whey, not milk), chocolate drink (no added milk) and gummy vitamins. The soup tasted yummy and I'm still alive so I figured I'd share it for people not feeling well in the beginning. I've been noticing people with alot of trouble keeping food down in recent posts. I couldn't have milk or eggs, but the cheese in the recipe didn't bother me at all. Notice the lack of spices. Makes it easy on the stomach.   Mashed potato soup: Boiled yukon gold potatoes (5lb bag) 1 package cauliflower, steamed 4-6 slices of Land O'Lakes white American cheese 4 tablespoons butter salt 16 cups homemade chicken broth, salted   Chop steamed cauliflower into teensy bits (pureed is better). Put in mixer with butter, cheese and a potato or two. Blend while slowly adding potatoes. Keep whipping for a few minutes to insure the cauliflower and potatoes are not lumpy at all. Salt to taste.   Combine 1/2 cup mashed potatoes to 1 cup salted chicken broth. Mix with spoon until mashed potatoes have completely dissolved. Enjoy. Individual servings can be frozen.   Homemade chicken broth: makes 8 - 10 cups of broth   1 organic chicken (regular chickens are too big) 1 stalk celery 1 carrot 1 large bay leaf 1/2 package fresh thyme from the  herb section of the vegetables area   Put all ingredients in pressure cooker along with 1.5 liters water. Bring to pressure. Cook for 35 minutes. Separate broth from solids. Separate broth from fat. Add ridiculous quantities of salt until it tastes like soup. Sorry I use a salt grinder so I don't have precise salt quantities.    
    • I have kidney stones...spent last night at the ER
      Hey ArtG, I saw the urologist today...unfortunately for me they can still see my stones on an xray.  Sigh.  The largest is 3x6 in my right kidney.  He does not believe I can pass this one on my own.   All of my bloodwork came back fine.  Nothing alarming in the urinalysis either. His recommendations...keep drinking tons of water.  I had 4.2 liters of urine output when I tested.  Add in a fish oil supplement.  Decrease sodium intake.  Limit meat to 10 ounces per day.  Increase dietary calcium.   Work at lowering oxalate consumption...my urinary oxalate was 45.  They want it between 20 and 40.  But he gets people that are over 100 so mine is not all that high. 3 options...1. watch and wait.  Recheck in a few months to see if there is stone growth.  2. Shock wave lithotripsy.  3. Let it come out when it decides to and see what happens. I just don't know.  I hate the idea of being put under as they would do for the shock wave thing.  I've had too many surgeries already.  It scares me to be honest.  I also don't want to deal with another episode.   I don't know what I'll do.  We've got a vacation planned at the end of the month and I just want to go and enjoy that.  Not worry about kidney stones. I'm sorry to hear about your upcoming surgery...it really is always something!
    • celiac disease is psychosomatic
      I know what food products are. Probiotics was a recent example I saw on the news about things labeled gluten free that were not gluten free. So, supplement labels in addition to food labels.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,513
    • Most Online
      1,763

    Newest Member
    ajrosales
    Joined