5 replies to this topic

[RPM]

I know that about 10-15% of Celiac's react to gluten-free oats because of the avenin in it...my question is, is the reaction different than a gluten one? My gluten reactions are usually very neuro/mental so if the avenin reaction is a different kind of reaction, then I wouldn't mind taking the risk because there's been some products recently that have certified gluten-free oats that I've been wanting to try

[sa1937]

Since no two people react the same to anything, how will you know if you don't try them?

[Roda]

For the most part my reactions to the avenin protein is very similar to my gluten reaction. When I actually ate the gluten free oats I ended up with horrible reflux, horrible abdominal pain/bloating and constipation for a week. This was my typical gluten reaction at the time. I did have an additional symptom with the oats. I got a painful blistering rash on my bottom!

I am sensitive to the gluten free oat cross contamination also. It kept me sick for 8 months with fat malabsorption, reflux, diarrhea, caused inflammation and stomach ulcer (showed up on scope) before I figured that out. I avoided the oats but didn't think to ask about CC.

I avoid any gluten free product that has potential oat CC. There are brands I do trust.

You'll just have to try them to see how your body reacts. There are plenty of celiacs/gluten intolerent people that eat them without incident.

[DougE]

I would like to turn this question around. I have Celiac Disease but without telling symptoms. Therefore I am careful about not eating gluten because I know it is damaging to my intestines, but have no way to know if I accidentally consumed it. Does avenin work the same way? Should I be avoiding gluten-free oats just in case? Or is the reaction to gluten-free oats strictly one of discomfort?

[Skylark]

I know that about 10-15% of Celiac's react to gluten-free oats because of the avenin in it...my question is, is the reaction different than a gluten one? My gluten reactions are usually very neuro/mental so if the avenin reaction is a different kind of reaction, then I wouldn't mind taking the risk because there's been some products recently that have certified gluten-free oats that I've been wanting to try

It is a gluten reaction, complete with TTG antibodies and villous atrophy. I suppose people could be oat intolerant too, but the real concern is that oats are so closely related to wheat that some celiacs react as if they are a gluten grain.

I would like to turn this question around. I have Celiac Disease but without telling symptoms. Therefore I am careful about not eating gluten because I know it is damaging to my intestines, but have no way to know if I accidentally consumed it. Does avenin work the same way? Should I be avoiding gluten-free oats just in case? Or is the reaction to gluten-free oats strictly one of discomfort?

If I recall, CSA recommends you wait a full year after going gluten-free before you introduce oats.
http://www.csaceliacs.info/guide_to_oats.jsp
Then you're supposed to go to the doctor and get re-tested for antibodies after you've been eating oats for a few months. As I mentioned above, it's possible to have a celiac reaction to avenin.

[Cheryl_C]

I eat gluten-free oats, but not by the bowlful. I use them in baking - cookies, granola bars, that sort of thing. So far I haven't reacted to them, though my stomach has so many issues that sometimes it's hard to tell. In any case, if you were thinking about eating some, I wouldn't recommend eating a huge amount until you know how your body will handle it.