Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Introduction
0

4 posts in this topic

This looks like the place to introduce myself before I start posting all over the place and people are wondering who I am. My name is Amanda, 28, currently living in Houston, Texas. I do environmental work in the gas and oil industry. I got my undergrad in watershed science at colorado state and along with working full time I am getting my Masters at Texas A&M. I've got a great supportive boyfriend and we've got two dogs that are on grain-free diets because my golden retriever is allergic. I love outdoor activities like camping and hiking so I'm trying to figure out how I ended up in Houston :rolleyes:

I have had health "problems" for the last 15 years or so. As I'm sure most are familiar with I'd say the typical Celiac type symptoms. When I was 20 I was tested for Celiac, among other things, and was told by my awful doctor that I just had the most severe case of IBS he'd ever seen and I just had to deal with it. His suggestion was to take 2 immodium before every meal. I was heart broken and ended up gaining about 75 pounds by the time I was 23 and graduated college. After college I took a job in a very small mountain town and had a complete life style change. There was no fast food and everyone ate very healthy. I wanted to lose all the excess weight so unknowningly I went almost gluten free and I felt better. I lost 80 pounds and felt great. Then I got transferred to Houston about a year and a half ago. The lifestyle here is very very different. Lots of eating out and meeting for drinks. Slowly I started feeling awful again and spending more and more time in the bathroom plus I've put on about 20 pounds. I just wasn't feeling good either; tired, headaches, body hurts, crabby, mouth sores, and the weirdest mucous production that I don't even want to get into. Then a few months ago I started having awful stomach pains. I went to the doctor and after rounds and rounds of tests, poking, and prodings here I am- not 100% sure I have or don't have celiac but on a wheat/gluten free diet. It's been about 2 weeks now and I'm already noticing a difference in my bathroom habits and stomach pains. My boyfriend and I live together and he is VERY supportive. We're moving at the beginning of August and the new house will be gluten free. Over the weekend he went though the pantry and fridge to seperate all the gluten containing food out to make sure he eats it all so we don't have to trash it when we move.

Thanks for taking the time to read and I look forward to surfing the forums, learning a lot, asking questions, and getting to know you all here!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome!

Glad you are finding something that helps. I hope they did the Celiac blood work before you went gluten-free?

My son will be a sophomore at CSU this year! He loves it. However, he and his friends are devastated by the High Park Fire damage. All the favorite CSU handouts for biking, hiking and camping are destroyed. Some of his friend that stayed or live nearby have gone to fight the fires. He is stuck here in Kansas City.

In your new place, vacuum out the drawers. Then wipe good with a wet paper towel. Crumbs have a way of dropping into the not quite closed drawers.

0

Share this post


Link to post
Share on other sites

They did do the bloodwork and it came back negative. I went gluten free right after my endoscopy/coloscopy because I figured that was as clean as my guts will get! I get the results back from my biopsies this Thursday. Thanks for the advice on the cupboards; I didn't even think about that!

The High Park fire is awful. I grew up in the Loveland/Fort Collins area and have many friends who have also felt the effects of the fire. My brother will go out with the fire crews but right now they are so short handed that when he goes to the offices there isn't even anyone to assist him to get on a crew!

Welcome!

Glad you are finding something that helps. I hope they did the Celiac blood work before you went gluten-free?

My son will be a sophomore at CSU this year! He loves it. However, he and his friends are devastated by the High Park Fire damage. All the favorite CSU handouts for biking, hiking and camping are destroyed. Some of his friend that stayed or live nearby have gone to fight the fires. He is stuck here in Kansas City.

In your new place, vacuum out the drawers. Then wipe good with a wet paper towel. Crumbs have a way of dropping into the not quite closed drawers.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,503
  • Topics

  • Posts

    • I already did. Thats how i found the place. Its amazing to actually go to a restraunt again.
    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined