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Fell Off, Now To Get Back On!
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8 posts in this topic

I was diagnosed with gluten intolerance earlier this year and had been doing really well. Until the past month. I fell off the wagon. I've been eatting gluten and feeling miserable. I hate feeling this way and I hate what it does to my children and friends. Today is my first day back on and it's a struggle. I need to get my life back and relationships. Sorry having a HUGE pity party today. I hate withdrawal. The hard part with the gluten free diet for me is I LOVE gluten, and am a vegitarian who is a picky eatter. Sigh.......

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Sometimes I wish we could all be put into an induced coma until the withdrawal passes. (It would work for smoking too.)

Hang in there and when you need to vent, this is the place. :)

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The good news is, it will pass and soon, you will feel great again!

Hang in there and if you have a craving, make yourself some gluten-free muffins or something to take the edge off.

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Thanks everyone! Its been about 4 days now, I'm feeling LOTS better. My attitude has improved, and my head is much better. Along with a ton of other things. I'm also down 2.2 pounds! Whahoo! Stupid GLUTEN. I hate how it draws me in. I need to not cave anymore!

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Think of it the same way I do: RAT POISON. ANTHRAX. CYANIDE. MAGGOTS. :lol:

Should I continue??

Welcome back to "clear head central"!!

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The brain fog is so powerful a motivator for me, I know I'll never knowingly ingest gluten again.

I think of it like Irish as well, poison.

I've heard drug addicts tell me how glorious a cocaine binge can be, and I've never been tempted because I know where that goes for so many people. Gluten is just as dangerous for me.

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Think of it the same way I do: RAT POISON. ANTHRAX. CYANIDE. MAGGOTS. :lol:

Should I continue??

Welcome back to "clear head central"!!

I couldn't agree more, that's exactly how you have to think about it! Good luck!!😃

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Personally, I think the people who don't think of gluten as POISON are the ones who struggle the most....are the most tempted...have the most doubt. Even when they've proven what gluten was doing to them...

Somebody should make a Gluten Scared Straight video...with the sickest among us being interviewed... It should be required viewing in medical school, too. IMO

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    • No worries!!! 

      Yes I've been completely gluten free for over a year now, except when I get glutened from restaurants etc. My 'traces symptoms' have always been major bloating and lots of bathroom breaks but now during my gluten challenge so far I've had some super crazy symptoms... varying from loose stools to severe constipation, bloating 24/7, shortness of breath, rash, joint pains, mood swings, brain fog, headaches and some sharp pains similar to brain freeze but worse... the list goes on, but I'm determined to have a definite result! 
    • Ennis_TX - Your post rings true with me. I was only diagnosed in May, but from May through.... basically two weeks ago, I was out of my mind. I completely understand when you describe it. I had zero self control. I retired from the Army after 21 years and had always had pride in myself that I could handle just about anything thrown my way. That was until this disease. I found myself sobbing uncontrollably, not getting out of bed till late afternoon, hiding in the bedroom from my own family, missing work, not being able to make simple decisions, I was getting at most, 3 hours of sleep a night. I would sit up in bed and literally scream out loud in frustration. I asked my wife several times to bring me to the VA Psyc. ward (which she talked me out of). I had no pleasure or happiness in my life even though I have a very supportive wife of 32 years, and two ideal kids with three grandkids. I had NO reason to feel the way I did, but yet, there I was. And like you mentioned, I too had a "Bucket List" per say.  To top it all off, I had this horrible muscle pain in my legs and arms. Joints a little, but the muscles were in constant pain. One month ago they diagnosed me with Fibromyalgia. At this point I am not willing to accept that diagnosis.  They started me on Gabapentin and these last two weeks I have actually started feeling less pain in the muscles and my mind is bouncing back too. Although the muscle pain came back a bit Sunday, and has me a little concerned. I keep telling myself it has only been 4 months gluten-free, and that it will take time. But I have to admit, I do not have much patience and I want to start feeling better now.   I ran into an old Army friend a few weeks back, and he had been diagnosed in 2009. He told me everything he went through and other than diarrhea and an inflamed throat, his biggest symptoms were depression/anxiety and brain fog. He said his wife was so worried she sold all of his guns. He would sometimes find himself in the backyard just curled up in the grass wondering when it would end for him. Absolute craziness. When I shared the issues I was having he could relate 100%. He said he hasn't met anyone else that went through the same things as him and it was therapeutic for us both. He told me of some places that were Celiac friendly, and we agreed to let each other know when something new hits the market, or any other good news via text. Back in May I searched for a celiac support group near by, but no luck. I stumbled on this forum and it has helped me tremendously. Stories like yours helped to insure me I was not losing my mind. Which, I might add, I told many VA & civilian Psychiatrists that indeed I was. Thanks for your post, and I hope nothing but the best for you, here forward. Dharwood
    • It is enough for the endoscopy, but not for the blood panel.  It could be worth trying for the blood test, but there is a greater chance of it being negative.  I assume you have been gluten-free for a while.  I admire that you were able to do the gluten challenge!  (I guess I should have pulled up your previous posts, but I was busy getting my kid to school.)
    • The doctor suspected celiac specifically, and he said 3-4 weeks would be enough... I understand that there are multiple recommendations varying from 3 weeks to 3 months but from what I've read I think 4 weeks will most probably not be enough for a positive result in the case that I am celiac. 
    • The tests you provided can not provide any information pertaining to celiac disease.  You must be consuming gluten daily for 8 to 12 weeks in order for any of the celiac blood tests to work.  Only 2 to 4 weeks for the intestinal biopsy.  But both, yes, both are needed for a celiac diagnosis because many other things can cause intetinal villi damage.  Why isn't your doctor following the standard algorithm for diagnosis.  Does he even suspect celiac disease?   Got to head to school.  More later!  
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