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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Will Nutrients Still Get To My Baby If My Body Doesn't Absorb Nutrients Properly?
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I was just diagnosed with Celiac Disease in April. I have been strictly following the gluten-free diet, but due to continuing symptoms and with an elimination diet, I recently found out I am also allergic to Casein. How long do I need to be on the gluten-free/CF diet before my husband and I start trying to have kids? I am worried that since I cannot digest nutrients properly, that the baby will also receive less nutrients until my intestines are healed more fully. Thoughts? Advice?

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Hi and welcome :) every body heals at a different rate, and it depends on what kinds of deficiencies you may or may not have. In general, it takes 6 months to a year of iron supplements to get iron levels up to normal if you're anemic.

I would talk to your doctor, tell him/her that you want to start trying soon, and ask for regular blood panels so you can see where your levels are.

Good luck :)

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I think you're right about wanting to be well-nourished before having a baby. If the timing were reasonable I think I'd want to wait a year or so before TTC. I've just been reading Deep Nutrition: Why Your Genes Need Traditional Food by Catherine Shanahan and she talks about the subtle effects of being really well-nourished on babies. Also start your prenatal vitamin a few months before TTC; you want all the goodies to be around the moment the baby gets going. You could even start on them now.

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I agree. Folic acid is very important the first few weeks after conception. I routinely check my blood levels with the routine labs recommended for women to check for any red flags.

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I agree. Folic acid is very important the first few weeks after conception. I routinely check my blood levels with the routine labs recommended for women to check for any red flags.

I would advise eating whole foods and taking a high level probiotic! My first pregnancy did not receive the right nutrition, and was subsequently a very high risk pregnancy. It was very scary and my lil girl has complications from it to this day. I think a year on a good probiotic and Gluten-Free sounds like a perfect amount of time!

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I want to wait until I both feel better and the endoscopy comes back clean. I suspect this will be more than a year for me, but you never know. I haven't talked about it with a doctor though. I 100% think you should wait, just not sure how long. I don't think your baby will right if you're still not nourished right.

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Smart decision!! My sister and I both have Celiac disease and went through multiple pregnancies without knowing. Our pregnancies were hard and high risk and our children have numerous problems (autism, apraxia, MERLD, heart condition). While we have no *proof* that the Celiac caused any of the disorders, I think science will discover that it is really bad. I know a neurologist at Children's Hospital in Washington, DC who is researching pregnancies with undiagnosed Celiac. So far, he said his preliminary findings were very troubling.

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Good luck to you. I do think it's a delicate balance and frankly depends a lot on age. I had two healthy pregnancies with undiagnosed Celiac. Fortunately both boys were full term and healthy. But my first did drop markedly in size after two months (I exclusively breast fed) and I think it's because of both of our celiac. But I had a hard time getting pregnant the second time, just didn't seem to ovulate, had to use clomid. I'm sure in retrospect it was the celiac. My second son was born even bigger and is off the charts still at 8 months, also BF. But that pregnancy knocked me out.

I think, in general, your body will take what it needs for the baby. It might mean you lose your teeth, feel like you have to sleep 20 hours a day, go bald...but the body looks after the baby. It's you that will suffer and you already are suffering. So I'd talk to your doctor about this. On the one hand you have to think about needing more time to get pregnant but you also have to think about the impact to you and also the risk of losing a pregnancy.

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I had undiagnosed celiac during which I had one misscarriage and 5 children. I was really sick and could hardly eat for several months of each pregancy. However, each pregnancy resulted in the birth of a healthy baby. My point is that it doesn't usually end in disaster; the body is designed well to protect both mother and baby. Children are blessings. They help motivate to live right and one has someone that needs you. I was so glad that I had a baby that needed me after I went through surgery once. While all of the other surgery patients had to consider how they should recover. I had a little one that needed me. It was a good feeling.

I don't recommend not treating celiac and having 5 babies. I think the toll on my body is pretty steep. However, I guess it would be anyway with 30 years of celiac. I have these nice young people to show for it! They are worth it.

Diana

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      I agree. As an adult its a little easier to withstand the rolling of eyes and exaggerated sighs from people who think you are over reacting and being too fussy.  My youngest has anaphylaxis to fish and seafood and people are incredibly understanding and careful - but it seems celiacs has become a "fad" due to gluten intolerant people removing credibility from true celiacs.  Adults can argue but kids are vulnerable. Socially its really isolating for them.    I totally relate to the waiting on endoscopy. For my very sick 12 year old the 8-9 weeks we waited for sheer hell and I felt I was feeding him rat poison. Now my 17 year old is waiting on his, booked for later this week.  Its a total nightmare waiting knowing you can start the healing if only you could stop feeding them gluten.  But I figure for future reference, having a solid diagnosis via biopsy is important. Good luck to you and your son.
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