Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Will Nutrients Still Get To My Baby If My Body Doesn't Absorb Nutrients Properly?
0

9 posts in this topic

I was just diagnosed with Celiac Disease in April. I have been strictly following the gluten-free diet, but due to continuing symptoms and with an elimination diet, I recently found out I am also allergic to Casein. How long do I need to be on the gluten-free/CF diet before my husband and I start trying to have kids? I am worried that since I cannot digest nutrients properly, that the baby will also receive less nutrients until my intestines are healed more fully. Thoughts? Advice?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi and welcome :) every body heals at a different rate, and it depends on what kinds of deficiencies you may or may not have. In general, it takes 6 months to a year of iron supplements to get iron levels up to normal if you're anemic.

I would talk to your doctor, tell him/her that you want to start trying soon, and ask for regular blood panels so you can see where your levels are.

Good luck :)

0

Share this post


Link to post
Share on other sites

I think you're right about wanting to be well-nourished before having a baby. If the timing were reasonable I think I'd want to wait a year or so before TTC. I've just been reading Deep Nutrition: Why Your Genes Need Traditional Food by Catherine Shanahan and she talks about the subtle effects of being really well-nourished on babies. Also start your prenatal vitamin a few months before TTC; you want all the goodies to be around the moment the baby gets going. You could even start on them now.

0

Share this post


Link to post
Share on other sites

I agree. Folic acid is very important the first few weeks after conception. I routinely check my blood levels with the routine labs recommended for women to check for any red flags.

0

Share this post


Link to post
Share on other sites

I agree. Folic acid is very important the first few weeks after conception. I routinely check my blood levels with the routine labs recommended for women to check for any red flags.

I would advise eating whole foods and taking a high level probiotic! My first pregnancy did not receive the right nutrition, and was subsequently a very high risk pregnancy. It was very scary and my lil girl has complications from it to this day. I think a year on a good probiotic and Gluten-Free sounds like a perfect amount of time!

0

Share this post


Link to post
Share on other sites




I want to wait until I both feel better and the endoscopy comes back clean. I suspect this will be more than a year for me, but you never know. I haven't talked about it with a doctor though. I 100% think you should wait, just not sure how long. I don't think your baby will right if you're still not nourished right.

0

Share this post


Link to post
Share on other sites

Smart decision!! My sister and I both have Celiac disease and went through multiple pregnancies without knowing. Our pregnancies were hard and high risk and our children have numerous problems (autism, apraxia, MERLD, heart condition). While we have no *proof* that the Celiac caused any of the disorders, I think science will discover that it is really bad. I know a neurologist at Children's Hospital in Washington, DC who is researching pregnancies with undiagnosed Celiac. So far, he said his preliminary findings were very troubling.

0

Share this post


Link to post
Share on other sites

Good luck to you. I do think it's a delicate balance and frankly depends a lot on age. I had two healthy pregnancies with undiagnosed Celiac. Fortunately both boys were full term and healthy. But my first did drop markedly in size after two months (I exclusively breast fed) and I think it's because of both of our celiac. But I had a hard time getting pregnant the second time, just didn't seem to ovulate, had to use clomid. I'm sure in retrospect it was the celiac. My second son was born even bigger and is off the charts still at 8 months, also BF. But that pregnancy knocked me out.

I think, in general, your body will take what it needs for the baby. It might mean you lose your teeth, feel like you have to sleep 20 hours a day, go bald...but the body looks after the baby. It's you that will suffer and you already are suffering. So I'd talk to your doctor about this. On the one hand you have to think about needing more time to get pregnant but you also have to think about the impact to you and also the risk of losing a pregnancy.

0

Share this post


Link to post
Share on other sites

I had undiagnosed celiac during which I had one misscarriage and 5 children. I was really sick and could hardly eat for several months of each pregancy. However, each pregnancy resulted in the birth of a healthy baby. My point is that it doesn't usually end in disaster; the body is designed well to protect both mother and baby. Children are blessings. They help motivate to live right and one has someone that needs you. I was so glad that I had a baby that needed me after I went through surgery once. While all of the other surgery patients had to consider how they should recover. I had a little one that needed me. It was a good feeling.

I don't recommend not treating celiac and having 5 babies. I think the toll on my body is pretty steep. However, I guess it would be anyway with 30 years of celiac. I have these nice young people to show for it! They are worth it.

Diana

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,503
  • Topics

  • Posts

    • I already did. Thats how i found the place. Its amazing to actually go to a restraunt again.
    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined