Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Bad Is Cheating On The Gluten Free Diet Periodically
0

59 posts in this topic

You are still missing the meaning of "ppm." The middle letter is an abbreviation of "per." Parts per million. So you don't do it per hour, per week, per year, etc.--the "per" is already there. 20 ppm is 0.002% of whatever you eat, whenever you eat it.

You can consume amounts appropriate to your caloric intake which contain less than 20 ppm (0.002%) gluten every day--several times per day--if the total intake of such foods remains appropriate to your caloric requirements.

Less is better, but finding a product that will make a label declaration (and thus risk a legal liability) less than 20 ppm is unlikely. A few companies use tests sensitive to levels as low as 5 ppm or even 3 ppm, but for legal reasons they will not make a claim on the label to that effect.

Thank you, Peter. I think I understand what you are saying.

I keep thinking of the visuals people are providing: the crumb of toast or the 1/8tsp flour and how that could fit into my day (I am trying hard to avoid those things). I guess I'm wondering how many parts per million, compared to my 1500 to 2000 calorie day, that crumb or 1/8tsp of flour would be?

That 20ppm doesn't mean much to me when I think of it in reference to say... a small smear of peanut butter on a slice of apple. If I was to divide the peanut butter smear into a million parts, and more than 20 parts of the smear had gluten, would that really cause a reaction in me? It would be such a small amount.

As I understand it, I should keep the gluten content in my total food below 20ppm. But what if that 20ppm of my total fdaily food intake comes in a concentrated dose? Say my 4 year old double dips in my gluten-free peanut butter and I get a good sized crumb of bread in my peanut butter smear on my apple; if I have had no gluten at all for a good time period, and then get a small yet concentrated dose all at once (if the crumb is more than 20ppm of my overall daily intake, or even half of my daily intake) would that make me react?

I guess I have some confusion because I don't have extreme gluten reactions, so I may not realize I am glutening myself in the future once I get settled into this diet. (I am only on week 2 and still get lots of aches and bloating and C - which has been the norm for my life - but it doesn't slow me down.) I know that no gluten is best, I'm just trying to definitively understand what is safe. Perhaps I'm thinking too black and white...

I appreciate everyone's advice.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Actually, I'm not sure that is the " big question". I think the big question is why you are quibbling over the amount you can cheat with?

Yes!...Well said! :D I think MOST of us agree...DON'T CHEAT! Plain and simple! :lol:

Really people....do you need to be hit by a car....to learn NOT to play in the street...espesially after several people you've met ALLREADY got run over playing in the street! REALLY!...can't you just take our word for it! :rolleyes:

Its allright if you don't beleive...stick your hand in the fire and burn it good! it hurts...doesn't it...see Thats why we told you not to eat gluten...because the end result can be VERY bad....sure you don't have any bad signs right away when you smoke...but many many years later...when your lungs are black(and it will happen) you get Copd...then empaseama...then maybe cancer! but its better just to take a lung cancer victoms word for it...this is the same thing! It might take YEARS before you know the REAL damage your doing....is that one krispy kreame worth it...because if you get away with that...it might be a slice of pizza next...maybe occassional cake...you might get away with it..once your gut healed enough..you might not even feel it...but its there, nawing away at you!The people with severe reactions are actually kind of lucky, because the reaction is SO bad they don't WANT to put they're hand in the fire! its the people who think they can get away with it...because the reaction is not so bad....your the ones who end up with a blown out intestine..or worse! you should take heed to those who have been there...some of these stories scare the crap out of me!

yeah its not easy...most things worth doing..(especially health wise) arn't!

Were not perfect..I cheated yesterday...and I'm itching like crazy...in a lot of pain...and it hasn't hit my lower intestines yet...that will be fun!(I tend to get hives)so I know its not easy, but after reading some ofthese stories...I'm thinking...what the ....am I DOING! IT WASN'T/ISN'T worth it in the long run...because they're right...no matter what kind of pain I'm tollarating now (my thinking was as I put that little bit of heavenly chocolate B-Day cake in my mouth) was what the heck...I'm only hurting me...no one else! but thats not true...when your family watches you suffer...when your in the hospital with severe gut damage...when you have cancer...or SEVERAL autoimune diseses...the list goes on and EVERYONE who knows you is affected in some way...a ripple effect! :blink::) People...we don't want to steal your donuts...we just don't want to see you get hurt...like us...or people we know!

But you know the saying...you can lead a donkey to the river.....(I know its horse...but horses have more sense!) :lol:

2

Share this post


Link to post
Share on other sites

Wow...this is a great thread! It should be pinned, if it isn't already...

0

Share this post


Link to post
Share on other sites

After losing nearly 3 years of my life trying to figure out what the heck has been making me so sick all the time, and I'm still not through it yet, I don't ever want to be miserable again. Quality of life is too important. I won't take it for granted after this experience. I'm glad this post is here for anyone who is tempted to cheat. My Dr told me I would be able to cheat once in a while when I'm healed. After reading this, it's clearly just not worth it. We're so lucky to have this site.

0

Share this post


Link to post
Share on other sites

Hmmm..I'm still confused. I got sick for a week after drinking out of someone else's water bottle but I don't react to gluten free processed foods. if something I can't see ( cc on a water bottle) can make me sick, how come 1/8 a tsp of flour, which you would be able to see, is supposed to be something I can handle? I'm sorry, I'm honestly confused. :P

I think someone didn't calculate the 1/8 tsp of flour properly or something. A teaspoon of flour is ~2.5 grams. 1/8 of 2.5g is 0.3125grams. Flour is ~10% gluten, usually a little less, sometimes more in pastry flour. 10% of 0.3125 is 0.03125 grams, or 31.25mg of gluten. The quote was that 1/8 tsp of flour is around 10mg. 10mg of gluten, from what I've calculated, would actually be 1/24 of a tsp. of flour; still visible, but much smaller.

I could be wrong in that the % of gluten of flour is not based off of weight though.

I'm still of the opinion that villous atrophy isn't what causes many celiac symptoms though, or rather that what is enough for villous atrophy might be more than enough for, say, a headache. And villous atrophy was what was mentioned in that study(studies?), not symptoms. Afterall, people are gluten sensitive without celiac disease, and they by definition don't have villous atrophy.

And as loathe as it is to say, placebo effects exist in both good and bad directions, making us feel better and making us feel worse all because of our expectations.

0

Share this post


Link to post
Share on other sites




Benni: Trying to find some actual studies about single doses of gluten.

http://gut.bmj.com/content/23/3/202.full.pdf+html

30 years old and rather odd, but demonstrates intestinal changes from one dose of 30g of gluten. They find differences in permeability of molecules due to the gluten, stuff that I hadn't realized was studied 30 years ago, I thought that was all just recent.

http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2036.2007.03413.x/full

This study is actually a drug trial to see if it's effective in preventing celiac disease. Nothing quite reached significant values in terms of the drug working well. For the purposes of this discussion, they used a single dose of 2.5g of amygluten 160, (not sure wat that is but it's 45% gliadin and 45% glutenin, so I figure its got to be acting like 90% gluten) and there were significant increases in interferon-y measurements in both control and placebo groups after eating the 2.5g of 'gluten' which remained elevated for 4 days until the study ended. (So they could have remained elevated for longer than 4 days.) Interferons are, from wikipedia "...proteins made and released by host cells in response to the presence of pathogens such as viruses, bacteria, parasites or tumor cells". Despite that as a group there was a significant increase in interferon, not every individual had a significant increase in it after ingesting the 'gluten'.

http://qjmed.oxfordjournals.org/content/50/1/83.short

Another older one, and it's only a case study, and I don't have access to the whole thing, but the abstract says that "The two coeliac subjects showed pronounced mucosal changes which developed a few hours after challenge and which showed the features of an Arthus-type reaction. The healthy volunteer was unaffected." I don't know how much the challenge was.

http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2036.2006.02768.x/full

I believe this is exactly the sort of article you'll want to fully read Benni, although it still sort of dances around the question of how much damage a SINGLE dose of gluten causes. It's a summary of what doses are safe and which ones aren't and looks at various different studies and what they've found. What they surmize is kinda old news to us now, and has already been mentioned in other studies, that 10mg/day of gluten is safe, but 100mg/day isn't, and it was written in regards to changing the standard for what is gluten free, which is now 20ppm, not 200ppm.

If I find any other articles that may be pertinent, I'll link them too.

0

Share this post


Link to post
Share on other sites

I have been gluten free for a long time and I do not cheat. I was recently gluten ( my granddaughters were making pinatas and with out thinking I started to clean up the table )

I was so sick just from clearing the table of flour that I dont even want to imagine how sick I would get if I actually ingest gluten .

I do not and will not cheat. I have worked to long and to hard to become healthy to throw it away by cheating .

0

Share this post


Link to post
Share on other sites

Thanks for that important reminder. I live alone, so at home I'm lucky to have control of my surroundings. At work sometimes though I have to handle food, and I have to remember to wear gloves. That sneaky gluten is everywhere!

0

Share this post


Link to post
Share on other sites

I don't/won't ever cheat. That is not to say I won't accidentally ingest gluten but never on purpose. I truely believe if we had not figured out that I have Celiac I would have been dead within a year. I am getting so much better and the suffering I endure is just not worth a piece of cake or whatever. When I am tempted I just ask myself..... "Do you really want that piece of bread or do you want to be able to walk?" If you ask me it is a no brainer! I accidentally ingested some gluten a week ago....... It was awful! I was in so much pain I stayed in bed for 3 days, ran a fever of 103.4, I could barely walk to the bathroom. It took almost a week to recover. Not worth it for me.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,662
    • Total Posts
      918,514
  • Topics

  • Posts

    • Food tolerance issues post-diagnosis
      In light of the studies that found some probiotics that are labeled gluten-free yet tested over 20ppm I wouldn't touch them. Now those would be the powder or pill forms. Yogurt is not affected by that. Since you don't have a problem with dairy then I would say eat some yogurt every day. I like Chobani Greek because it has more kinds of cultures. Remember now that powder or pill forms of probiotics do not come under the gluten-free labeling law. The same for OTC & prescription meds. You need to check every single one of those. There are a few online sites where you can check things like that or ask here but as far as prescription meds -- call the manufacturer EVERY TIME. I also wanted to tell you in case you didn't already know that since celiac is genetic and can present at ANY age then all your first degree relatives need to be tested every 2 years in the absence of symptoms and immediately if symptoms present between the 2 year periods. As far as the digestive enzymes go, I tried Digest Gold for a short time & it really didn't seem to do anything for me however I will say I had a lot of issues going on at the time so I might not know if they helped or not. I decided to quit them in order to take that out of the equation so I could try to pin down what was causing me distress. The fewer things in the mix you know. I have heard people report the same as your consultant said. Some say they helped & some say they didn't. Remember Jammy, you're just in the beginning stages. I KNOW you want to heal & heal FAST. Been there, done that! It's like this: you didn't get sick overnight & you're not going to heal overnight. Patience is the watchword here. It's hard I know! You just want to get on with your life. We can all relate.  Again, I'm going to say to eat foods easy on your gut. WELL cooked foods. No raw carrots, coconut, nuts & stuff like that. Easier on your gut would be nut butters.... peanut butter, cashew butter, almond butter etc.... It's sort of like being a baby ---  soft, easy to digest foods. Bone broth is a great healer for you gut & extremely nutritious as well as being easy on the digestion. Here's just one recipe: http://wellnessmama.com/5888/how-to-make-bone-broth/
    • Food tolerance issues post-diagnosis
      Thanks for the tip! Will try that out in the next few days. By the way, has anyone had any joy with probiotics or digestive enzymes in terms of symptom relief/speeding up the healing process? I asked my consultant about this when I saw him last week and he said that some people find them beneficial while others don't, but obviously I'm keen to try anything that may help, with uncomfortable fullness/bloating/gas still being my main issue  - is it worth giving them a go?
    • Are The Following Gluten-free?
      I realize that this is an old thread but I would just like to say something about label reading. Just because a product says gluten free on the label doesn't mean that you don't have to read any further and can have complete trust in the product.  There are a lot of products that state that they are gluten free on the package and then you find out that they are processed in plants that also produce wheat products. If you are super sensitive, you need to know that information. I am afraid that there is no escaping reading labels in supermarkets unless you know that the company makes it's products in a truly gluten free environment (even then you should read labels because ingredients can and do change, even in products made in gluten free facilities), It's a pain to stand there and read labels but if you are super sensitive, you might just have to do that. For example, I am gluten and lactose intolerant but also sensitive to nuts and sesame. While it may be fine for other gluten intolerant people to eat something that's labeled gluten free which is produced in a gluten free facility that also processes nuts, for me it is not.. 
    • Golden Bell Pepper Soup (Gluten-Free)
      Dipping your spoon into this bell pepper–sweet potato combo is like dipping into a bowl of sunshine. It's stunning—and the perfect antidote to a gloomy winter's day. This soup also freezes well, so if you're not serving a crowd, store the leftovers for a later date (or make a double batch). I like to enjoy this soup accompanied by my Massaged Kale Salad with Spicy Hazelnuts View the full article
    • Southern-style BBQ Chicken (Gluten-Free)
      Barbecue season is upon us once again, and when I want barbecued chicken, nothing else will do. This recipe makes a sweet, tangy barbecue chicken that will have people smiling. View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,753
    • Most Online
      1,763

    Newest Member
    The sweet cheeks
    Joined