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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Hearing Loss - Plugged Ears
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10 posts in this topic

OK, so I'm about to go crazy here. This is not really a celiac question but I trust the wisdom here and am just bouncing ideas.

Of course, I'm celiac on gluten-free diet. I'm pretty strict but I do have to eat out for my job occasionally. Have had one or two small CC incidents in the past month but nothing major.

Three weeks ago, I woke up one morning with no hearing. Both ears "blocked" like when you are on an airplane and they feel like they need to "pop". Somewhat painful at times, comes and goes. I waited a week and then went to doctor and she said "There's nothing I can do...take sudafed." I hate sudafed and hadn't tried it but have been on it now continuously for a week (the

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I've had unexplained ear pressure/pain with a loss of balance. I saw an ENT and had all sorts of tests. It showed up nothing.

I was told to avoid any foods I thought might be causing it.

I was told it could be a reaction to a food or it could be a "silent migraine" triggered by a food or something in my environment. Not very helpful.

Mine seems to have resolved after increasing the Amitriptylene I was taking. It's a migraine preventing medication.

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I have had precisely this issue, and while it's not a good thing, I'm glad I'm not the only one! Sometimes my ears get 'weepy' along with being blocked. And of course, gluten made them itchy too. So being gluten-free helps a lot with the itchy-ness, but for the swelling / blocking issue, I've finally figured out that it's primarily MSG and sulfites that I need to avoid. I just figured out the sulfite part of the equation about a month ago, or so.

Let me know if you'd like some resources / links and HTH!

Edited by ciamarie
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It may not be food related at all either. My hubs gets literally "plugs" of wax that the nurse or doc has to pluck out with a tool like tweezers. The plug actually makes a loud sound when it hits the metal catch pan. He never gets anything out of his ears when he cleans them; it's like his wax is so hard it never runs. Sorry to be so detailed but..... When he gets the plugs it affects his hearing a lot. And this is not something either that they just do the ear wash for these are actual plugs of hard wax. They also give a feeling of pressure for him.

Just throwing the info. out there for you.

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I have had precisely this issue, and while it's not a good thing, I'm glad I'm not the only one! Sometimes my ears get 'weepy' along with being blocked. And of course, gluten made them itchy too. So being gluten-free helps a lot with the itchy-ness, but for the swelling / blocking issue, I've finally figured out that it's primarily MSG and sulfites that I need to avoid. I just figured out the sulfite part of the equation about a month ago, or so.

Let me know if you'd like some resources / links and HTH!

Ciamarie, I'd like the resources. Thanks for the help!

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It may not be food related at all either. My hubs gets literally "plugs" of wax that the nurse or doc has to pluck out with a tool like tweezers. The plug actually makes a loud sound when it hits the metal catch pan. He never gets anything out of his ears when he cleans them; it's like his wax is so hard it never runs. Sorry to be so detailed but..... When he gets the plugs it affects his hearing a lot. And this is not something either that they just do the ear wash for these are actual plugs of hard wax. They also give a feeling of pressure for him.

Just throwing the info. out there for you.

Thanks the doc said I had no wax problems - she could see the eardrum well.

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I have had this issue on and off since an infant. Finally tracked it to dairy. I get sinus-y and congested with a lot of dairy, but even small amounts trigger Eustachian tube issues that make the eyes clogged. Went away pretty quick when I eliminated dairy.

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I have had this issue on and off since an infant. Finally tracked it to dairy. I get sinus-y and congested with a lot of dairy, but even small amounts trigger Eustachian tube issues that make the eyes clogged. Went away pretty quick when I eliminated dairy.

Thanks Chad. I think that's something I'll have to do. Since my DS is gluten-free/DF and my DD is mostly gluten-free/DF, going DF will be easy for me (but sad).

I've read here and other places that giving up dairy helps with sinus issues, so it must be similar. I'll start with diary and if that doesn't help, I'll try eliminating tomatoes, melons and kiwi.

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Ciamarie, I'd like the resources. Thanks for the help!

You're welcome. I actually hope it's dairy in your case, because that's easier to avoid than MSG and sulfites, in many cases. Except for butter, I was dairy free for about a year or so, now I have plain yogurt with my own added fruit, and cheese on occasion. Still testing the cheese.

A couple of good sites for sulfites:

http://holdthesulfites.com/

http://www.readingtarget.com/nosulfites/

As well as a thread I found on here:

For MSG:

http://www.msgtruth.com/

http://www.msgfacts.net/

http://www.truthinlabeling.org/

I also thought I'd mention that my ears don't seem to always react right away after having something I should have avoided, though sometimes they'll start ringing louder. But then they'll get blocked up at night when I'm sleeping, and it will take 2 days for them to unblock. Also, I'll usually get a headache too.

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I'm with ciamarie on this as I too have eliminated msg, soy, caffeine, nitrates and sulfites as recommended by my neurologist who suspected I had migraine (silent) associated vertigo. The above foods act as a trigger. Along with the vertigo my ears would pain me incessantly.

Since eliminating all the above foods, my ear issues have resolved.

That 'truthinlabeling' website that ciamarie gave is awesome. It's amazing (and infuriating) how much msg is snuck into food under other names.

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    • Will my doctor test me? So many symptoms...
      Remember that you have to be eating a normal gluten diet for the testing so don't cut back & don't stop eating it. Make sure they do the full, current celiac panel: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
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      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG
    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
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    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
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