Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Accidental Exposure
0

15 posts in this topic

Oh no! I was 2 weeks in on a gluten free diet and I ate soy sauce. I am so nauseated I could kick myself! I really thought soy was made only of soy beans, how naive! I am bloated and I was doing so good and feeling better than I had in such a long time. GRRRRRRRRRRRRRRRRRR

0

Share this post


Link to post
Share on other sites


Ads by Google:

Oh no! I was 2 weeks in on a gluten free diet and I ate soy sauce. I am so nauseated I could kick myself! I really thought soy was made only of soy beans, how naive! I am bloated and I was doing so good and feeling better than I had in such a long time. GRRRRRRRRRRRRRRRRRR

Hi Shannon, I did the very same thing. Soy sauce. Same time frame. Was a bit of a wakup call, I am afraid of everything now :) I hope you start to feel better. And no kicking, you feel bad enough already. ;)

0

Share this post


Link to post
Share on other sites

Hope you feel better soon.. But a good lesson learned Please read labels or ask before putting any food in your mouth!!! This all takes time & knowledge but you too will get there....

0

Share this post


Link to post
Share on other sites

If you have a Whole Foods store near you, they sell a ton of different gluten free sauces that taste great. Gluten-free Tamari Soy Sauce, gluten-free Thai Peanut sauce, gluten-free Teriyaki, gluten-free BBQ sauce - the list goes on...

1

Share this post


Link to post
Share on other sites

If you have a Whole Foods store near you, they sell a ton of different gluten free sauces that taste great. Gluten-free Tamari Soy Sauce, gluten-free Thai Peanut sauce, gluten-free Teriyaki, gluten-free BBQ sauce - the list goes on...

Thank you!

0

Share this post


Link to post
Share on other sites




Hope you feel better soon.. But a good lesson learned Please read labels or ask before putting any food in your mouth!!! This all takes time & knowledge but you too will get there....

Lesson learned! Sticking to basic food for a while

0

Share this post


Link to post
Share on other sites

Hi Shannon, I did the very same thing. Soy sauce. Same time frame. Was a bit of a wakup call, I am afraid of everything now :) I hope you start to feel better. And no kicking, you feel bad enough already. ;)

Im afraid too so basic food only

0

Share this post


Link to post
Share on other sites

It is a very hard lesson to learn but a great lesson. I think when this happens & one gets ill then they usually never will decide to ever cheat!..Feel better soon...

Any mistake can be turned around to make a good lesson so really no bad mistakes if we learn & grow from them...

0

Share this post


Link to post
Share on other sites

That was my first mistake too!

A friend and I went out to "celebrate" my new gluten free diet!

We decided on a chinese buffet!

It was yummy!

And I was sick for a whole week!

And then I read that Soy sauce is actually "wheat sauce" or "gluten-juice. Ugh...oh my god...I feel your pain.

I very quickly started googling everything before I put it in my mouth.

And reading labels.

And soon after that...

Ate at an Arabic restaurant and happily ordered kebabs and rice and NO pita bread. While mindlessly eating my last three bites of rice....I realize there are those little vermicelli things in the rice! Oh no! And there was another week of sickness and horrible migraines. Very shortly I stopped eating out completely because I clearly didn't know enough about this beast called gluten...to know how to avoid him.

Talk about "Scared Straight" !!! :)

That was when I realized that avoiding gluten unsuccessfully was kinda like a playing a contact sport and getting your ass kicked repeatedly.

I started learning then. :)

0

Share this post


Link to post
Share on other sites

That was my first mistake too!

A friend and I went out to "celebrate" my new gluten free diet!

We decided on a chinese buffet!

It was yummy!

And I was sick for a whole week!

And then I read that Soy sauce is actually "wheat sauce" or "gluten-juice. Ugh...oh my god...I feel your pain.

I very quickly started googling everything before I put it in my mouth.

And reading labels.

And soon after that...

Ate at an Arabic restaurant and happily ordered kebabs and rice and NO pita bread. While mindlessly eating my last three bites of rice....I realize there are those little vermicelli things in the rice! Oh no! And there was another week of sickness and horrible migraines. Very shortly I stopped eating out completely because I clearly didn't know enough about this beast called gluten...to know how to avoid him.

Talk about "Scared Straight" !!! :)

That was when I realized that avoiding gluten unsuccessfully was kinda like a playing a contact sport and getting your ass kicked repeatedly.

I started learning then. :)

Yep no more eating out for a while, even though it's hard I'm trying to stick to natural foods. I'm still nauseated but hopefully it's almost over

0

Share this post


Link to post
Share on other sites

That was my first mistake too!

A friend and I went out to "celebrate" my new gluten free diet!

We decided on a chinese buffet!

It was yummy!

And I was sick for a whole week!

And then I read that Soy sauce is actually "wheat sauce" or "gluten-juice. Ugh...oh my god...I feel your pain.

I very quickly started googling everything before I put it in my mouth.

And reading labels.

And soon after that...

Ate at an Arabic restaurant and happily ordered kebabs and rice and NO pita bread. While mindlessly eating my last three bites of rice....I realize there are those little vermicelli things in the rice! Oh no! And there was another week of sickness and horrible migraines. Very shortly I stopped eating out completely because I clearly didn't know enough about this beast called gluten...to know how to avoid him.

Talk about "Scared Straight" !!! :)

That was when I realized that avoiding gluten unsuccessfully was kinda like a playing a contact sport and getting your ass kicked repeatedly.

I started learning then. :)

I'm five weeks into this and I am terrified to eat out! I've been sick for so many years I don't want to take any chances. Do you ever get over this fear? I recently learned that if you kiss someone who just ate gluten that that's cross contamination! My niece found that out the hard way with her boyfriend. She was sick for weeks before they figured it out. I'm single and can't even imagine how I deal with that on new dates. It's embarrassing enough to make the fuss to get a gluten-free meal..... yikes. anyone have advice? Penny

0

Share this post


Link to post
Share on other sites

Help with the kissing or the eating out?? Haha 😝 I learned cross contamination by kissing the hard way, phew that only took me once!! Now eating out is a tough subject, you have got to find a place you can trust. I live in a small town and the restaurants here are owned by people I've become friends with, easy to get aroun gluten when they are well informed. Now, when I travel, I google for gluten-free menus, place phone calls, read comments by other gluten free people, and quiz the wait staff. The biggest thing is for you to be aware of what you can and can't eat and don't be afraid to tell them, it's our health not theirs! Lol another thing I do is leave a comment on their website. If I've had a great experience, I like for them to know, positive feedback reinforces that they are doing well! A properly trained staff is half the battle! Good luck! :)

1

Share this post


Link to post
Share on other sites

I made that mistake 3 months in. I knew about soy sauce and went out for sushi. Did not have soy, but my spicy tuna and my son shared some of his roll with me that was a california roll with tuna on top. woke up the next day to a rash all over my belly. looked online and the imitation crab in the california roll is full of gluten. As far as eating out, I try to call ahead when going somewhere new to see what they offer and knowledgeable they are. Last weekend I was out with my family and we tried a mediterrain cafe on a whim. I asked the owner what she would recommend for me, and she has another customer that is gluten free, so told me the exact plate I should order and knew that her rice, hummus and all salad dressing were gluten-free. I didn't even look at the menu. It seems the best way to eat out is to ask the waiter/waitress what the chef recommends that is gluten-free. when I don't do that, I usually get sick. Hope that helps with eating out.

0

Share this post


Link to post
Share on other sites

Being fearful of eating out will be there- there are good safe places to eat, so long as the person taking care of you knows what they are doing! I have been to Outback and PF Changs each once, both fabulous experiences, great knowledge and super nice and helpful. I also eat at Chipotle once a week, no problem, I order a bowl, they wash hands and change gloves, and get fresh cheese from the back for me. Never had a problem there, I do lots of homework, ask questions, and know how comfortable I feel at a particular place, I stick to dedicated gluten free menus and eat out not very often, but I also want to learn to live with this diet the rest of my life, keep being social, but not being sick in the process.

When I went to PF Changs, I felt like I was being treated special, my own gluten free sauce, a special plate, the manager even bought me a gluten free dessert which was yummmmy!!!

Do your homework, I don't eat anything new without reading a label- I have made probably 20 calls or emails about products, medications, etc to determine if they are gluten free. It takes work, but you will learn to be an investigator!

0

Share this post


Link to post
Share on other sites

Being fearful of eating out will be there- there are good safe places to eat, so long as the person taking care of you knows what they are doing! I have been to Outback and PF Changs each once, both fabulous experiences, great knowledge and super nice and helpful. I also eat at Chipotle once a week, no problem, I order a bowl, they wash hands and change gloves, and get fresh cheese from the back for me. Never had a problem there, I do lots of homework, ask questions, and know how comfortable I feel at a particular place, I stick to dedicated gluten free menus and eat out not very often, but I also want to learn to live with this diet the rest of my life, keep being social, but not being sick in the process.

When I went to PF Changs, I felt like I was being treated special, my own gluten free sauce, a special plate, the manager even bought me a gluten free dessert which was yummmmy!!!

Do your homework, I don't eat anything new without reading a label- I have made probably 20 calls or emails about products, medications, etc to determine if they are gluten free. It takes work, but you will learn to be an investigator!

I LOVE going to PF Changs!!! Its a place I can go to and actually feel comfortable and normal!

There's a couple apps for smart phones that will help you locate gluten free restaurants in your area. They also include reviews and other people will post their experiences at those restaurants. Its been very helpful for me - the apps are "Gluten Free Registry" which is free and "Find Me Gluten Free."

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,697
    • Total Posts
      921,781
  • Topics

  • Posts

    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
    • If you are one of the approximately 2-3 million Americans with celiac disease, ZyGluten™ may be taken before you eat out at a restaurant or a friend\'s house, as it may help break down any gluten cross-contamination that you might encounter. View the full article
    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,702
    • Most Online
      3,093

    Newest Member
    Gigi Fagon
    Joined