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Accidental Exposure


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#1 ShannonA

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Posted 28 June 2012 - 12:02 PM

Oh no! I was 2 weeks in on a gluten free diet and I ate soy sauce. I am so nauseated I could kick myself! I really thought soy was made only of soy beans, how naive! I am bloated and I was doing so good and feeling better than I had in such a long time. GRRRRRRRRRRRRRRRRRR
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#2 GF Lover

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Posted 28 June 2012 - 12:08 PM

Oh no! I was 2 weeks in on a gluten free diet and I ate soy sauce. I am so nauseated I could kick myself! I really thought soy was made only of soy beans, how naive! I am bloated and I was doing so good and feeling better than I had in such a long time. GRRRRRRRRRRRRRRRRRR



Hi Shannon, I did the very same thing. Soy sauce. Same time frame. Was a bit of a wakup call, I am afraid of everything now :) I hope you start to feel better. And no kicking, you feel bad enough already. ;)
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#3 mamaw

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Posted 28 June 2012 - 12:47 PM

Hope you feel better soon.. But a good lesson learned Please read labels or ask before putting any food in your mouth!!! This all takes time & knowledge but you too will get there....
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#4 LauraB0927

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Posted 28 June 2012 - 06:24 PM

If you have a Whole Foods store near you, they sell a ton of different gluten free sauces that taste great. Gluten-free Tamari Soy Sauce, gluten-free Thai Peanut sauce, gluten-free Teriyaki, gluten-free BBQ sauce - the list goes on...
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"Dark and difficult times lie ahead ahead - soon we must all face the choice, to do what is right, or what is easy..." - Albus Dumbledore (Harry Potter)

Diagnosed Celiac in May 2012 by TTG level and endoscopy
Acid reflux/GERD (stopped since eating gluten-free)
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#5 ShannonA

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Posted 29 June 2012 - 03:03 AM

If you have a Whole Foods store near you, they sell a ton of different gluten free sauces that taste great. Gluten-free Tamari Soy Sauce, gluten-free Thai Peanut sauce, gluten-free Teriyaki, gluten-free BBQ sauce - the list goes on...

Thank you!
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#6 ShannonA

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Posted 29 June 2012 - 03:04 AM

Hope you feel better soon.. But a good lesson learned Please read labels or ask before putting any food in your mouth!!! This all takes time & knowledge but you too will get there....

Lesson learned! Sticking to basic food for a while
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#7 ShannonA

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Posted 29 June 2012 - 03:06 AM

Hi Shannon, I did the very same thing. Soy sauce. Same time frame. Was a bit of a wakup call, I am afraid of everything now :) I hope you start to feel better. And no kicking, you feel bad enough already. ;)

Im afraid too so basic food only
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#8 mamaw

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Posted 29 June 2012 - 05:31 AM

It is a very hard lesson to learn but a great lesson. I think when this happens & one gets ill then they usually never will decide to ever cheat!..Feel better soon...

Any mistake can be turned around to make a good lesson so really no bad mistakes if we learn & grow from them...
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#9 eatmeat4good

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Posted 29 June 2012 - 03:19 PM

That was my first mistake too!
A friend and I went out to "celebrate" my new gluten free diet!
We decided on a chinese buffet!
It was yummy!
And I was sick for a whole week!
And then I read that Soy sauce is actually "wheat sauce" or "gluten-juice. Ugh...oh my god...I feel your pain.
I very quickly started googling everything before I put it in my mouth.
And reading labels.
And soon after that...
Ate at an Arabic restaurant and happily ordered kebabs and rice and NO pita bread. While mindlessly eating my last three bites of rice....I realize there are those little vermicelli things in the rice! Oh no! And there was another week of sickness and horrible migraines. Very shortly I stopped eating out completely because I clearly didn't know enough about this beast called gluten...to know how to avoid him.
Talk about "Scared Straight" !!! :)
That was when I realized that avoiding gluten unsuccessfully was kinda like a playing a contact sport and getting your ass kicked repeatedly.
I started learning then. :)
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#10 ShannonA

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Posted 29 June 2012 - 04:27 PM

That was my first mistake too!
A friend and I went out to "celebrate" my new gluten free diet!
We decided on a chinese buffet!
It was yummy!
And I was sick for a whole week!
And then I read that Soy sauce is actually "wheat sauce" or "gluten-juice. Ugh...oh my god...I feel your pain.
I very quickly started googling everything before I put it in my mouth.
And reading labels.
And soon after that...
Ate at an Arabic restaurant and happily ordered kebabs and rice and NO pita bread. While mindlessly eating my last three bites of rice....I realize there are those little vermicelli things in the rice! Oh no! And there was another week of sickness and horrible migraines. Very shortly I stopped eating out completely because I clearly didn't know enough about this beast called gluten...to know how to avoid him.
Talk about "Scared Straight" !!! :)
That was when I realized that avoiding gluten unsuccessfully was kinda like a playing a contact sport and getting your ass kicked repeatedly.
I started learning then. :)

Yep no more eating out for a while, even though it's hard I'm trying to stick to natural foods. I'm still nauseated but hopefully it's almost over
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#11 PennyH

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Posted 13 July 2012 - 04:30 PM

That was my first mistake too!
A friend and I went out to "celebrate" my new gluten free diet!
We decided on a chinese buffet!
It was yummy!
And I was sick for a whole week!
And then I read that Soy sauce is actually "wheat sauce" or "gluten-juice. Ugh...oh my god...I feel your pain.
I very quickly started googling everything before I put it in my mouth.
And reading labels.
And soon after that...
Ate at an Arabic restaurant and happily ordered kebabs and rice and NO pita bread. While mindlessly eating my last three bites of rice....I realize there are those little vermicelli things in the rice! Oh no! And there was another week of sickness and horrible migraines. Very shortly I stopped eating out completely because I clearly didn't know enough about this beast called gluten...to know how to avoid him.
Talk about "Scared Straight" !!! :)
That was when I realized that avoiding gluten unsuccessfully was kinda like a playing a contact sport and getting your ass kicked repeatedly.
I started learning then. :)


I'm five weeks into this and I am terrified to eat out! I've been sick for so many years I don't want to take any chances. Do you ever get over this fear? I recently learned that if you kiss someone who just ate gluten that that's cross contamination! My niece found that out the hard way with her boyfriend. She was sick for weeks before they figured it out. I'm single and can't even imagine how I deal with that on new dates. It's embarrassing enough to make the fuss to get a gluten-free meal..... yikes. anyone have advice? Penny
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#12 ~**caselynn**~

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Posted 13 July 2012 - 06:35 PM

Help with the kissing or the eating out?? Haha 😝 I learned cross contamination by kissing the hard way, phew that only took me once!! Now eating out is a tough subject, you have got to find a place you can trust. I live in a small town and the restaurants here are owned by people I've become friends with, easy to get aroun gluten when they are well informed. Now, when I travel, I google for gluten-free menus, place phone calls, read comments by other gluten free people, and quiz the wait staff. The biggest thing is for you to be aware of what you can and can't eat and don't be afraid to tell them, it's our health not theirs! Lol another thing I do is leave a comment on their website. If I've had a great experience, I like for them to know, positive feedback reinforces that they are doing well! A properly trained staff is half the battle! Good luck! :)
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#13 MichelleD

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Posted 17 July 2012 - 07:31 PM

I made that mistake 3 months in. I knew about soy sauce and went out for sushi. Did not have soy, but my spicy tuna and my son shared some of his roll with me that was a california roll with tuna on top. woke up the next day to a rash all over my belly. looked online and the imitation crab in the california roll is full of gluten. As far as eating out, I try to call ahead when going somewhere new to see what they offer and knowledgeable they are. Last weekend I was out with my family and we tried a mediterrain cafe on a whim. I asked the owner what she would recommend for me, and she has another customer that is gluten free, so told me the exact plate I should order and knew that her rice, hummus and all salad dressing were gluten-free. I didn't even look at the menu. It seems the best way to eat out is to ask the waiter/waitress what the chef recommends that is gluten-free. when I don't do that, I usually get sick. Hope that helps with eating out.
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#14 Mom-of-Two

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Posted 18 July 2012 - 06:33 AM

Being fearful of eating out will be there- there are good safe places to eat, so long as the person taking care of you knows what they are doing! I have been to Outback and PF Changs each once, both fabulous experiences, great knowledge and super nice and helpful. I also eat at Chipotle once a week, no problem, I order a bowl, they wash hands and change gloves, and get fresh cheese from the back for me. Never had a problem there, I do lots of homework, ask questions, and know how comfortable I feel at a particular place, I stick to dedicated gluten free menus and eat out not very often, but I also want to learn to live with this diet the rest of my life, keep being social, but not being sick in the process.

When I went to PF Changs, I felt like I was being treated special, my own gluten free sauce, a special plate, the manager even bought me a gluten free dessert which was yummmmy!!!

Do your homework, I don't eat anything new without reading a label- I have made probably 20 calls or emails about products, medications, etc to determine if they are gluten free. It takes work, but you will learn to be an investigator!
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#15 LauraB0927

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Posted 29 July 2012 - 08:47 AM

Being fearful of eating out will be there- there are good safe places to eat, so long as the person taking care of you knows what they are doing! I have been to Outback and PF Changs each once, both fabulous experiences, great knowledge and super nice and helpful. I also eat at Chipotle once a week, no problem, I order a bowl, they wash hands and change gloves, and get fresh cheese from the back for me. Never had a problem there, I do lots of homework, ask questions, and know how comfortable I feel at a particular place, I stick to dedicated gluten free menus and eat out not very often, but I also want to learn to live with this diet the rest of my life, keep being social, but not being sick in the process.

When I went to PF Changs, I felt like I was being treated special, my own gluten free sauce, a special plate, the manager even bought me a gluten free dessert which was yummmmy!!!

Do your homework, I don't eat anything new without reading a label- I have made probably 20 calls or emails about products, medications, etc to determine if they are gluten free. It takes work, but you will learn to be an investigator!


I LOVE going to PF Changs!!! Its a place I can go to and actually feel comfortable and normal!

There's a couple apps for smart phones that will help you locate gluten free restaurants in your area. They also include reviews and other people will post their experiences at those restaurants. Its been very helpful for me - the apps are "Gluten Free Registry" which is free and "Find Me Gluten Free."
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"Dark and difficult times lie ahead ahead - soon we must all face the choice, to do what is right, or what is easy..." - Albus Dumbledore (Harry Potter)

Diagnosed Celiac in May 2012 by TTG level and endoscopy
Acid reflux/GERD (stopped since eating gluten-free)
Syncope
Raynaud's Syndrome
Iron Deficient


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