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Still Constipated!


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18 replies to this topic

#1 Skittles

 
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Posted 28 June 2012 - 06:51 PM

Well I have had chronic constipation since I was an infant. I have been recently diagnosed with celiac and have been gluten free for 2 months (feels MUCH longer than that haha) and dairy free for a month. Since going dairy and gluten free I feel a lot less gassy. I don't feel like I have trapped air bubbles in my stomach as much. But I still suffer from constipation, very badly. I am getting so frustrated and just feel so full and big and uncomfortable all of the time. I eat tons of fiber and drink tons of water, and feel like I am doing everything right. I am at my wits end! I feel very depressed and don't want to do anything. I just feel defeated because I have literally been dealing with and trying to figure this out as long as I can remember. I feel like no one understands because all anyone ever says to me is, oh you need more fiber, or exercise more or drink more water. But i've done it all!! I am turning to you guys because I am sure I am not the only one in this group going through this. I need help please!
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Diagnosed with celiac by blood test in the beginning of April 2012 and confirmed with endoscopy April 20th 2012.
Gluten free since May 2012 (for 5 months.. relapsed for about a month and have been gluten free again since Nov 2012)
Corn & corn syrup free since May 2012
Dairy limited since Aug 2012
Nightshades limited since Aug 2012

Fructose limited since Nov 2012

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#2 SleepyBunny

 
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Posted 28 June 2012 - 06:59 PM

You may want to get your thyroid checked. I know what you are going through. It's not fun :( I went to a dr that has been helping me through diet and supplements. I just started back on thyroid meds. The diet and supplements have helped a lot. The dr said after I get my thyroid meds where they should be it should help with the c so I won't need the supplements. Be careful with fiber powders and stuff cause they can actually make the problem worse. Also you have to factor in the damage the gluten may have done to your digestive tract. It's going to take time but give it time to heal.
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Gluteny - the 8th deadly sin

#3 Skittles

 
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Posted 28 June 2012 - 07:09 PM

You may want to get your thyroid checked. I know what you are going through. It's not fun :( I went to a dr that has been helping me through diet and supplements. I just started back on thyroid meds. The diet and supplements have helped a lot. The dr said after I get my thyroid meds where they should be it should help with the c so I won't need the supplements. Be careful with fiber powders and stuff cause they can actually make the problem worse. Also you have to factor in the damage the gluten may have done to your digestive tract. It's going to take time but give it time to heal.



Thanks SleepyBunny! how exactly do you get your thyroid checked? what kind of test is it?
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Diagnosed with celiac by blood test in the beginning of April 2012 and confirmed with endoscopy April 20th 2012.
Gluten free since May 2012 (for 5 months.. relapsed for about a month and have been gluten free again since Nov 2012)
Corn & corn syrup free since May 2012
Dairy limited since Aug 2012
Nightshades limited since Aug 2012

Fructose limited since Nov 2012

#4 SleepyBunny

 
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Posted 28 June 2012 - 10:56 PM

Unfortunately it's a blood test. I hate needles! Lol You can ask your dr to test it. There are others on here who know more about what tests to ask for and what they mean. Hopefully some of them will chime in :)
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Gluteny - the 8th deadly sin

#5 mamaw

 
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Posted 04 July 2012 - 07:41 AM

Jumping in here late ! There is such a thing as chronic C....mineral oil or daily dosing of miralax will get things moving...It does take time. I was in hospital for 7 days for this problem. Two weeks & nothing so I understand.. Hospital tried everything except dynomite.......what I mentioned above worked finally... Some will say drink more fluids,, eat more fiber & so on but for chronic C this just doesn't work .. I do drink 64 ounces of water , eat raw veggies & fruits everyday,. eat two salads a day but still does not curb the big C.. So for normal moving bowels this regime works but for chronic it doesn't .. With that being said I'm not saying to not eat veggies, fruits & such we need those items & can bebefit in other ways from eating them daily...Miralx is safe non-habit forming , gluten-free... you can take it three times a day at first & it works best on an empty stomach to get the best results....
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#6 Skittles

 
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Posted 04 July 2012 - 12:15 PM

Jumping in here late ! There is such a thing as chronic C....mineral oil or daily dosing of miralax will get things moving...It does take time. I was in hospital for 7 days for this problem. Two weeks & nothing so I understand.. Hospital tried everything except dynomite.......what I mentioned above worked finally... Some will say drink more fluids,, eat more fiber & so on but for chronic C this just doesn't work .. I do drink 64 ounces of water , eat raw veggies & fruits everyday,. eat two salads a day but still does not curb the big C.. So for normal moving bowels this regime works but for chronic it doesn't .. With that being said I'm not saying to not eat veggies, fruits & such we need those items & can bebefit in other ways from eating them daily...Miralx is safe non-habit forming , gluten-free... you can take it three times a day at first & it works best on an empty stomach to get the best results....



Thanks! Is the mineral oil a suppliment?
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Diagnosed with celiac by blood test in the beginning of April 2012 and confirmed with endoscopy April 20th 2012.
Gluten free since May 2012 (for 5 months.. relapsed for about a month and have been gluten free again since Nov 2012)
Corn & corn syrup free since May 2012
Dairy limited since Aug 2012
Nightshades limited since Aug 2012

Fructose limited since Nov 2012

#7 mamaw

 
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Posted 04 July 2012 - 12:22 PM

You can find mineral oil at any drug store/Walmart .. It is in a bottle & just says mineral oil, very cheap. Years ago that is what they gave babies... But remeber it works much better with a not so full stomach... Once I get moving I do every other day ..with the miralx as once you get a routine & continue it will make for D .. so you will adjust to meet your needs..
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#8 cap6

 
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Posted 04 July 2012 - 01:03 PM

Well I have had chronic constipation since I was an infant. I have been recently diagnosed with celiac and have been gluten free for 2 months (feels MUCH longer than that haha) and dairy free for a month. Since going dairy and gluten free I feel a lot less gassy. I don't feel like I have trapped air bubbles in my stomach as much. But I still suffer from constipation, very badly. I am getting so frustrated and just feel so full and big and uncomfortable all of the time. I eat tons of fiber and drink tons of water, and feel like I am doing everything right. I am at my wits end! I feel very depressed and don't want to do anything. I just feel defeated because I have literally been dealing with and trying to figure this out as long as I can remember. I feel like no one understands because all anyone ever says to me is, oh you need more fiber, or exercise more or drink more water. But i've done it all!! I am turning to you guys because I am sure I am not the only one in this group going through this. I need help please!



I am running out the door but had to take a minute to answer you as I soo understand!

I have been gluten-free for 2 years and constipation has been the bane of my existence, and still is. At first, after being gluten-free for about 3 months I had a bout of constipation that four enemas didn't take care of. I understand being told drink more water, eat more fiber ~ I ate and drank so darn much there wasn't room for anything else. Three different doctors have told me that some people just have a problem with it. I have done the miralax, the warm (disgusting) prune juice, the orange juice, every single reccomend that has been offered. My solution? here it is (for what it is worth):

as close to a gallon of water per day as I can get down (some days are easier and some harder)
a good liquid probiotic 2 x's a day
metamucil 2x's a day
unsulphered molasses 1T in the morning and 2 T in the evening (for iron and healing the gut)
aloe 5 oz 2 x's a day (liquid not gel and start off at 3 oz 2x's per day. You can buy it at Walmart cheap)
veggies, veggies and more veggies (even just a small amount 3 x's a day)
4 stool softners per day (2 in the a.m. and 2 at bed) (check with your dr first maybe on this one and I would start with 1 2 x's a day)
cut the "junk" (good lol) food down to a couple times a week. Splurge on some chips now and then but make it a treat.
Keep the processed food to as little as possible.
I drink Smooth Move tea every other night. At first I did it every night (for the first 3 or 4 months) but was then able to cut it back.

That is my personal solution. And, having mentioned that I have done everything, and I mean everything, that has been suggested that is what works for me. I think that everyone finds their own cocktail so to speak. I have also found that I am an every other day sort of person. If it goes on longer then I have to resort to a ducolx to get things moving again.

It is my hope that as I continue to heal this will become better as well. I and older so my body is taking longer to heal but....

I know the desperation that you feel. You want to curl up in a corner and cry. Hard to explainto someone that you are crying over [poop - or lack there of!

For what it is worth i hope this might help you. It's all about finding the right cocktail.

Oh yeh ~ I have a glass of wine every evening - but that's for me not the constipation issue!! lol :P
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#9 Skylark

 
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Posted 04 July 2012 - 03:25 PM

We can also be kind of low on magnesium from malabsorption, which will back you right up.
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#10 JNBunnie1

 
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Posted 04 July 2012 - 06:27 PM

At the risk of sounding uneducated, as this has never been one of my problems- exactly the opposite! I do know that coffee has an extremely laxative effect on some people, perhaps that would help? I know coffee make me poo, but then breathing makes me poo... I'm one of those 'Oh, there goes that pair of pants' Celiacs. But in general I do know that coffee makes people go. Worth a shot? Also, try getting that fiber from flax, chia, hemp seeds, rather than a supplement. It's working for Adalaide right now! She's putting flax in smoothies.
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If you're going through hell, keep going. ~Winston Churchill

#11 cap6

 
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Posted 05 July 2012 - 02:13 PM

At the risk of sounding uneducated, as this has never been one of my problems- exactly the opposite! I do know that coffee has an extremely laxative effect on some people, perhaps that would help? I know coffee make me poo, but then breathing makes me poo... I'm one of those 'Oh, there goes that pair of pants' Celiacs. But in general I do know that coffee makes people go. Worth a shot? Also, try getting that fiber from flax, chia, hemp seeds, rather than a supplement. It's working for Adalaide right now! She's putting flax in smoothies.



I wish coffee had that affect! Have tried drinking it, not drinking it but makes no difference. I do flax oil caps, magnesium supps, flax seed sprinkled on veggies & salads..... Honestly, I think I have tried it all. Imho it just comes down to finding your own personal "cocktail" so to speak.
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#12 SleepyBunny

 
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Posted 07 July 2012 - 06:44 PM

I have tried all these other methods and they did not help. I truly believe when something isn't working in your body there is a reason. Do you really want to be taking all these meds possibly for the rest of your life? I didn't! And when people told me to drink a bunch of water it irritated me to no end. You try feeling like you have a ton of cement in your tummy and drink a bunch of water. No thank you! Try going to a dr that uses natural methods and see if maybe you have some tummy bugs and also get your thyroid checked. If you've been eating stuff that has been causing damage to your body wether it's your tummy or your thyroid it's going to take time to heal. No offense to any of the other responses I just hated the idea of taking so many meds for this problem especially at my age. If our body is in correct working order it'll take care of problems like this.
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Gluteny - the 8th deadly sin

#13 mamaw

 
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Posted 08 July 2012 - 07:31 AM

We all are not made perfect we all come with flaws, some big issues some little problems but none of us were made perfect...I spent a week in the hospital for C, I also use alternative meds & docs. I was tested many times over for cancer , perforatrated bowel & so on but all came back good. My alternative doc also said some people just have issues with a certtain thing that we maybe were just not perfect by design. Not that we are not perfect in the eyes of our maker--- just the way he wanted us to be.
I have tried & still try crazy things now & then. After two weeks of no movement I understand the pain..I eat all my fruits & veggies, drink water according to my body weight, take vits & min excersise but I still take meds for C.... I found that mineral oil & miralax are two of the safest things to use. I will not use something I can become addicted to or something that makes the bowels stop functioning on there own , on occasion...I use very little from mainstream drug companies because I am super sensitive to everything & I found I can use these two things on occasion ...

Also I'm a BIG fan of alternative meds & solutions but one can also take to much of these things & also have problems. Esp. when a vitamin or mineral is being taken & the body doesn't need it... Then the alternative meds get a BAD rap & the docs are called quacks...I believe we should be tested for vits & mins to see if we need it before just willy nilly going to the health food store & picking at random...
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#14 UKGail

 
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Posted 08 July 2012 - 02:39 PM

A couple of weeks ago I had a session with a dietitian who works closely with my gastroenterologist, who is a celiac specialist. She said something which I have not read anywhere else, and I read as much as I can get my hands on. Basically she said that fibre from fruit and vegetables is all very well, but that the digestive tract specifically needs cereal fibre to be able get peristalsis moving decently. She said that people following a gluten free diet usually have too little cereal fibre in their diet, and that they need to pay attention to this to prevent constipation. Sufficient intake of water is also vital. Suitable sources of cereal fibre were brown rice and buckwheat. There were others, but I'm afraid I don't remember, as they weren't part of my normal diet. Gluten free pasta was of limited value as it usually tended to be low in fibre. Ditto cereal flakes, unless specially formulated to be high fibre.

Whilst I don't seem to feel too good if I eat too much cereal, and if I eat too much brown rice etc, I end up with D again, I have noticed that just a modest increase to my (previously very low)cereal intake seems to be keeping me relatively regular and reduces lower abdominal pain. Finding the right balance for me is still a work in progress though. I have a sachets of psyillium husk (spelling?) to use as a supplement if I need it, but am keeping reasonably regular without it so far. It has helped that the Genius bread I buy in the UK has recently be reformulated to have a much higher fibre content, even the white bread. I also have a high fibre breakfast cereal.

I should add that I didn't suffer C as badly as the above posters, as I would go once or twice a week. Still a painful interval though, with knock on effects of bloating and gas etc. C is new to me as I suffered from D until going gluten free. It took a few weeks for the D to properly settle down after starting the gluten free diet, and then my digestion became too sluggish.

For those interested, the dietitian also said that those following a dairy free diet due to lactose or casein intolerance must take a daily calcium supplement, and that iron intake of celiacs might be a bit on the low side too, even if your blood level was measured to be within the normal range. She was also generally supportive of probiotics.
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#15 Skittles

 
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Posted 08 July 2012 - 03:17 PM

I have tried all these other methods and they did not help. I truly believe when something isn't working in your body there is a reason. Do you really want to be taking all these meds possibly for the rest of your life? I didn't! And when people told me to drink a bunch of water it irritated me to no end. You try feeling like you have a ton of cement in your tummy and drink a bunch of water. No thank you! Try going to a dr that uses natural methods and see if maybe you have some tummy bugs and also get your thyroid checked. If you've been eating stuff that has been causing damage to your body wether it's your tummy or your thyroid it's going to take time to heal. No offense to any of the other responses I just hated the idea of taking so many meds for this problem especially at my age. If our body is in correct working order it'll take care of problems like this.


I know what you mean! I feel like I have done everything and I can't even fit anymore water in my body! Have you gotten a colonoscopy? I have a dr app tmr and I thinkk I am going to suggest that to her. I just would like to know if it's something more. And yes I am also going to get my thyroid checked!
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Diagnosed with celiac by blood test in the beginning of April 2012 and confirmed with endoscopy April 20th 2012.
Gluten free since May 2012 (for 5 months.. relapsed for about a month and have been gluten free again since Nov 2012)
Corn & corn syrup free since May 2012
Dairy limited since Aug 2012
Nightshades limited since Aug 2012

Fructose limited since Nov 2012




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