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I just found out that my 1 1/2 yr old has celiac - it was triggered by the noro virus and detected by bloodtest. he has done remarkable in a few weeks on the gluten-free diet (behavoir and health) and now i'm thinking the rest of us should get tested - as the more research i do, the more it seems that BOTH sides of the family (mine and my husband) probably have it - i have joined a support group; have been reading my brains off and the frusterating thing is the skeptical responses from family members. they are closedminded and old-school and are sure that my son will grow out of it or that their gi issues (thyroid, constipa :angry: tions etc) are not related - :-\ i'm so frusterated with them - i'm sure none of them will get tested and even if they did and it was positive, they'd be too lazy or ignorant to comply to the gluten-free diet


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I know exactly what you are going through as far as "family members". I have came to the "fact" that you can only do so much. My daughter was only diagnosied a month a go. So "I am no expert". I did have my 4 year old tested and she came back negative so far. My husband and I are still waiting for our results. This might seem funny, but I really don't care if my husband and I come back positive or not. I have a family that consists of many kids and I worry about their health. Of course, if I came back positive or my husband we would make changes, but I worry more about the children. I do believe in my heart that after my research on this disease that I probably have the disease or the am the carrier but try to "make your family believe". My biggest problem with Celiac Disease is that everyone thinks thats crazy. I also believe that know one whats to be LABELED as having a problem.

Good luck.


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You cant run everyones life, people at some times have to made decisions for themselves... You cant make everything perfect so dont try to. it'll just stress you out more than you need.

having a child with celiac disease is stressful, and scarey! ...and to think that others may also have it is scarey as well. All the what-ifs. Get yourself tested and get whoever tested to get tested. One of these days the celiac disease will act up and they'll wish they had and they'll get it done then and realize that they should have. But thats that. Just try to stay focused with your little baby and whoever has been diagnosed with celiac disease.

Exactly what MLO said...

No one wants to be labled
. Celiac disease is an answer that many of us have been searching for for years upon years. It may not be sprinkling us with glitter and fairy dust but at least we can get soem alswers. If your family isnt realy or prepared for that then dont push them. Odds are if theyd didnt want to get tested they wouldnt go on the gluten-free diet because they wouldnt realize the importance.

Just stick to whats already on your plate and be there for your celiac disease child.

Good luck on the testing. Hope all turns out well for you and your family!!


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    • This is a great information piece on Celiac in Kids esp, followup care.
    • Hey all- just thought I would send an update. I worked out hard but not too long or too hard last week on Thursday- one hour pilates class (which isn't too strenuous to me) and then did squats and some other arm/back lifts. But i couldn't do my third set of squats because my quads were cramping up.I took my Glutamine twice that day, vegan protein and tried to eat more, I tried to avoid more than 1 drink for two days, and waited until I wasn't too sore anymore. and just did pilates reformer on friday.  So I did it! I paced myself well. I missed my normal Monday pilates reformer time (sinus infection now from my last cold ) But did make it on tuesday. Today I only had 1 hour of work out time (the child watch was closing!) so I busted out bench, straight leg dead lifts, upright row, reverse lunges with military press, and then finally squats. Let's just say i went pretty hard compared to last week and got 3 sets in for everything  it was great!. so now I am eating like a mad person, I didn't get any quad cramping this time so that was good. Maybe because I have been off dairy that i am absorbing stuff better who knows.  But I know i have to stay on track with my supplements and eating and not drinking.. much  
    • Cyclinglady -  Negative was also what I was thinking. The reference range at my lab does not give a negative, weak positive, and positive range, rather just a normal range. I just found that while scouring the internet. Seem like a lot of other people on here are give weak positive ranges as well. Anyways, I'm sure I'm reading way into this and it's nothing.  Very interesting that you never presented with a positive tTG IgA with such damage to your intestines.  No mention from my doctor concerning the low ferritin either. I only saw it when I was reading my own lab tests. Do you have any suggestions for what could be causing this? For the full celiac panel, is that something I should probably see a GI for? Thanks again for all your helpful suggestions!  
    • Kept the quote short for ease of reading but yeah I've cut a few people loose in the past few weeks after seeing their reactions. Fortunately balanced out by the positive, helpful comments on here though. Main reason for putting myself through this gluten challenge business isn't so much to get the diagnosis but more to find out just how bad the damage is (expecting the villi to be flat as pancakes so anything less will be a bonus). Over here in UK I can apparently get certain gluten-free foods on prescription with the official diagnosis too so that's the other reason I've been given for doing it. I'm hoping that having done the first week back and took the initial hit that the glutening symptoms may not be as bad for the next 3 weeks. Not quite sure how I've got through it at times but at least I know what the problems are caused by now whereas 6 months ago it was a complete mystery. Managed to summon up all my energy reserves for some sport last night, suffering for it today but forgetting about everything for a while makes it worth the pain!
    • I'd say that TTg IGA is negative and would not consider it a weak positive, but....I am not a doctor!  😏  I do know that each lab has different ranges and you should just compare your results with the ranges the lab uses (not from the Internet).  Your ferritin is low and your doctor should find the reason why it is low.  Again, celiac disease can not be ruled out until you have  the complete panel run.  Why?  I have never had a positive TTG test even in follow-up testing (biopsies: Marsh Stage IIIB).  I test positive ONLY to the DGP IGA.   Get the rest of the celiac panel.  
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