Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Support
0

3 posts in this topic

I just found out that my 1 1/2 yr old has celiac - it was triggered by the noro virus and detected by bloodtest. he has done remarkable in a few weeks on the gluten-free diet (behavoir and health) and now i'm thinking the rest of us should get tested - as the more research i do, the more it seems that BOTH sides of the family (mine and my husband) probably have it - i have joined a support group; have been reading my brains off and the frusterating thing is the skeptical responses from family members. they are closedminded and old-school and are sure that my son will grow out of it or that their gi issues (thyroid, constipa :angry: tions etc) are not related - :-\ i'm so frusterated with them - i'm sure none of them will get tested and even if they did and it was positive, they'd be too lazy or ignorant to comply to the gluten-free diet

0

Share this post


Link to post
Share on other sites


Ads by Google:

I know exactly what you are going through as far as "family members". I have came to the "fact" that you can only do so much. My daughter was only diagnosied a month a go. So "I am no expert". I did have my 4 year old tested and she came back negative so far. My husband and I are still waiting for our results. This might seem funny, but I really don't care if my husband and I come back positive or not. I have a family that consists of many kids and I worry about their health. Of course, if I came back positive or my husband we would make changes, but I worry more about the children. I do believe in my heart that after my research on this disease that I probably have the disease or the am the carrier but try to "make your family believe". My biggest problem with Celiac Disease is that everyone thinks thats crazy. I also believe that know one whats to be LABELED as having a problem.

Good luck.

0

Share this post


Link to post
Share on other sites

You cant run everyones life, people at some times have to made decisions for themselves... You cant make everything perfect so dont try to. it'll just stress you out more than you need.

having a child with celiac disease is stressful, and scarey! ...and to think that others may also have it is scarey as well. All the what-ifs. Get yourself tested and get whoever tested to get tested. One of these days the celiac disease will act up and they'll wish they had and they'll get it done then and realize that they should have. But thats that. Just try to stay focused with your little baby and whoever has been diagnosed with celiac disease.

Exactly what MLO said...

No one wants to be labled
. Celiac disease is an answer that many of us have been searching for for years upon years. It may not be sprinkling us with glitter and fairy dust but at least we can get soem alswers. If your family isnt realy or prepared for that then dont push them. Odds are if theyd didnt want to get tested they wouldnt go on the gluten-free diet because they wouldnt realize the importance.

Just stick to whats already on your plate and be there for your celiac disease child.

Good luck on the testing. Hope all turns out well for you and your family!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,878
    • Total Posts
      919,449
  • Topics

  • Posts

    • So I've been glutened....
      That sounds like a plan JMG.  If things aren't working then make a change, hopefully a positive change.  It seems to me we have more noticeable symptoms sometimes after being gluten-free a while.  I made a mistake last night and ate some tuna canned in water.  It definitely wasn't boring.  I usually have more sense than to eat tuna canned in water but screwed up last night.  They canned  it in broth of some sort.  Ingredients say vegetable broth and soy.  Yuck, not good for me.  It sure tasted good though, just ouch.  I am not saying it had gluten in it, but it does have soy and some kind of unnamed veggie monsters.  So it could be soy, or carrots or some other disgusting vegetable that got me.   Not all celiacs have additional food intolerances beyond gluten, but some do.  My gut could testify to that.  Anyway, if you have bloating, cut out all carbs and sugar for starters.  And try peppermint tea or Altoids.  Over here we have something called Pepto Bismol that helps soothe gut pain and another neat thing called aspirin.  And gluten-free beer as needed.  
    • Gluten free apparently not helping entirely
      Jean, Maybe your boss can find you a job in the office for a while?  It's worth asking maybe? It's not easy being on constant travel with celiac disease but it can be done.  Your effort to find safe food is going to be harder than most but it is not impossible.  But if you can't manage it you should really think about getting a non-travel job.  Your boss may be willing to work with you on an office position, even if it's temporary.  That would give you some time to look for a local job and also eat a safer diet. It's really up to you to control your diet and make sure it is safe.  If you can't figure out how to  do that while traveling you owe it to yourself to figure a way out of the travel. Celiac disease isn't always fun and games.  Not always.   I hope you find a way to improve your circumstances.
    • Gluten Free baby food pouches?
      Anyone know of any baby food pouches that are gluten free?  We love to have them on the go for our kids (not just baby), but I have no idea which ones to get now!  We used to get Meijer brand and Plum.   Thanks!
    • gluten free, oat free, egg free breakfast ideas needed for 6 year old
      Thanks for everyone's suggestions!  I think I felt at a loss when we had to cut oats- we used to do cheerios and oatmeal regularly and now those are out.  She has a sensitivity to oats as well as wheat/barley/rye. 
    • So I've been glutened....
      The bloating has, if anything, got worse. It seems better when I'm lay down, when I stand it gets worse. Although the lymph swelling has gone down so maybe I'm through the worst. Hope so anyway... I never used to get a great deal of GI symptoms. Certainly not so serious as the other stuff. It's making me wonder if I just react differently now having been gluten-free for some time. I've noticed lot's of you saying that reactions seem to change over time. Of course its possible the other stuff was masking the GI things. I almost dont trust my memory of those times anymore because a whole chunk of my life seems to have been lived through a brain fog. Tomorrow I'm thinking of going away for a couple of days, maybe just taking some ultra simple food with me so I can try and settle my stomach by boring it into submission      
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,918
    • Most Online
      1,763

    Newest Member
    dae
    Joined