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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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I just found out that my 1 1/2 yr old has celiac - it was triggered by the noro virus and detected by bloodtest. he has done remarkable in a few weeks on the gluten-free diet (behavoir and health) and now i'm thinking the rest of us should get tested - as the more research i do, the more it seems that BOTH sides of the family (mine and my husband) probably have it - i have joined a support group; have been reading my brains off and the frusterating thing is the skeptical responses from family members. they are closedminded and old-school and are sure that my son will grow out of it or that their gi issues (thyroid, constipa :angry: tions etc) are not related - :-\ i'm so frusterated with them - i'm sure none of them will get tested and even if they did and it was positive, they'd be too lazy or ignorant to comply to the gluten-free diet

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I know exactly what you are going through as far as "family members". I have came to the "fact" that you can only do so much. My daughter was only diagnosied a month a go. So "I am no expert". I did have my 4 year old tested and she came back negative so far. My husband and I are still waiting for our results. This might seem funny, but I really don't care if my husband and I come back positive or not. I have a family that consists of many kids and I worry about their health. Of course, if I came back positive or my husband we would make changes, but I worry more about the children. I do believe in my heart that after my research on this disease that I probably have the disease or the am the carrier but try to "make your family believe". My biggest problem with Celiac Disease is that everyone thinks thats crazy. I also believe that know one whats to be LABELED as having a problem.

Good luck.

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You cant run everyones life, people at some times have to made decisions for themselves... You cant make everything perfect so dont try to. it'll just stress you out more than you need.

having a child with celiac disease is stressful, and scarey! ...and to think that others may also have it is scarey as well. All the what-ifs. Get yourself tested and get whoever tested to get tested. One of these days the celiac disease will act up and they'll wish they had and they'll get it done then and realize that they should have. But thats that. Just try to stay focused with your little baby and whoever has been diagnosed with celiac disease.

Exactly what MLO said...

No one wants to be labled
. Celiac disease is an answer that many of us have been searching for for years upon years. It may not be sprinkling us with glitter and fairy dust but at least we can get soem alswers. If your family isnt realy or prepared for that then dont push them. Odds are if theyd didnt want to get tested they wouldnt go on the gluten-free diet because they wouldnt realize the importance.

Just stick to whats already on your plate and be there for your celiac disease child.

Good luck on the testing. Hope all turns out well for you and your family!!

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    • Can treatment for Giardia reverse active Celiac
      I haven’t found any large scale studies on this, but only a handful of individual case reports suggesting that in rare cases giardia can temporarily mimic celiac (both the serology & villous atrophy) until it is treated.   I think this is a  complex matter as giardia effects patients differently (most are asymptomatic whilst others suffer from chronic symptoms including malabsorption) for reasons that may not be well understood. In my case - My GI agrees that Giardia can directly cause villous atrophy that cannot be distinguished from Celiac.  As the healing of the villi can be a slow process, I will schedule a repeat endoscopy 6-12 months after my giardia was treated.   Ttg antibodies can also take 6-12+months to completely normalise, especially if the starting levels are high. 6 months would have elapsed at the end of this month, so will schedule a repeat test, hoping for a normal Ttg result to prove the theory.   I have decided to remain on a normal gluten diet until it can be proven that I’m a celiac and not just suffering from a giardia infection.  I have reason to be optimistic as my Gliadin IgA levels are negative (not iga deficient) and also given the sharp decrease in ttg levels 4 weeks after giardia was treated.
    • celiac disease is psychosomatic
      It took all of 3 years before ALL of my symptoms resolved and it was the neuro ones that were the last to go.  If you have been careful about your diet, then you may not be getting glutened as much as you think.  It sounds like you have been careful because you are questioning things you should question to get clarification on.  I am sure if you were doubtful, you would refrain from eating something until you know for sure. Neuro symptoms can last for much longer than other symptoms.  Please be patient because my last neuro symptom was the one that took 3 years.  Have you been tested for vitamin deficiencies?  The B vitamins are important for neuro health, especially B12.
    • Week late aftershock!?
      I had a similar problem, I was glutened after a meal out at the beginning of April and am still experiencing problems, obviously not as bad now, but bad enough.  I have also become intolerant to  xanthan gum since, which cuts down the foods I can eat even more. I'm already intolerant to dairy, soya, and a whole lot of other stuff.  Cyclinglady is right about the auto-immune disorders, and I've noticed I have similar problems to her.  I too, eat easy to digest foods until the glutening symptoms pass. The sinus infection might also be a reaction to the glutening, it effects people in different ways.
    • celiac disease is psychosomatic
      Thanks, I'll check out the information in the link. Do you remember how long you were on a gluten-free diet before your vertigo disappeared? I have been on the diet for 2 years, but I might be glutened from time to time since I am not an expert food label reader. My dizziness still persists.
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