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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Soy Intolerance, Questions
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5 posts in this topic

I have an intolerance to soy in addition to celiac. I am giving up soy but see it is in so many foods.

For those who do not eat soy do to an intolerance, do you avoid all forms of soy?

Also are there any good marinades that do not contain soy? I eat a lot of chicken and frequently marinade it but all my gluten free marinades contain soy as an ingredient

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I have an intolerance to soy & avoid it completely. The only exception was my mayo & I used it very sparingly until I found Hellman's aka Best Foods has a canola oil mayo with no soy. YAY!

Can't help you with the marinade question --- I never liked soy based marinade.

I do like to marinate chicken (cut up) in wine vinegar, olive oil, & spices of your choice & then bake.

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I have had a intolerance to soy for quite a few years now...it gives me mucousy diarrhea. Even the little bit of soy lecitin in a candy bar used to cause mucous in my system so I avoid all soy. Yes, it is very hard to find things without soy. The only store bought marinade for chicken without soy in it I ever saw was Rao's Homemade Lemon Chicken Marinade...it uses imported olive oil and canola oil.

Here is one I have made for chicken. I marinate 5 or 6 skinless boneless chicken breasts in it for 2 to 3 hours. Place the chicken and marinade in a 13 by 9 inch baking dish and bake at 350 for 35 to 45 minutes until done. Then I slice however much of the chicken I want very thinly across after it rests 10 minutes or so in the pan.

1 cup olive oil

1/2 cup balsamic vinegar

3 tablespoons sugar

3 tablespoons ketchup

1 tablespoon glutenfree Worcestershire sauce

1 teaspoon of salt

1/2 pepper

1 teaspoon glutenfree dry mustard

1 large clove garlic, crushed

you can also add 2 medium scallions, diced into the marinade mixture if you want. I never usually have scallions handy so I most often leave them out.

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PS...There is a soyfree substitute for soy sauce made by Coconut Secret called Coconut Aminos. It is a soy-free seasoning sauce and you use it like soy sauce for dressings, marinades, or sautes. The ingredients are organic coconut sap aged and blended with sun-dried sea salt. You could check it out at coconutsecret.com

It is also Gluten Dairy and GMO Free.

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Thank you all for the advise and thank you for the recipe.

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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