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Looking For Some Reassurance
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3 posts in this topic

Hi there

I am looking for a little reassurance. I come from a family where digestive problems are rife...we have IBS, reflux and all sort of problems on that front and we have always had issues digesting bread and pasta.

For the past 10 years, I have been ill for at least 50% of the time. Lots of sore throats, fatigue, poor immune system, digestive problems, indigestion, reflux, nausea, the big "D" on a daily basis, hypoglycaemia, bloating, gas, itchy skin, gum problems, I eat very little (less than my 8 year old child) but I am a bit overweight despite this, I have also had problems with anxiety and constant issues with headaches and "brain fog". I thought for a while I was going mad, because the doctor kept telling me there was nothing wrong with me and it was all in my mind.

Recently, my sister was diagnosed as celiac. I decided then to try stopping gluten myself after reading up on the symptoms, which I seemed to have. I was initially worse for 2 weeks - almost like all my symptoms were magnified, with night sweats, hives, bloating, gas, major mood swings. Then after that I felt much better. Lighter, more vital and stronger.

After six months on this diet, I feel MUCH better. My toilet habits returned to normal for the first time in 10 years after only 48 hours on the diet, the bloating and gas went, my reflux went, I don

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Yes, this is because of your exposure. You are almost definitely celiac. What happens is the longer you are off gluten, the more you heal, the stronger your immune system becomes. All those colds and viruses you used to get? That was because your immune system was too busy attacking your intestines to be bothered fighting off germs. But now it has reccovered, it is no longer constantly distracted with gluten, and so it is like a vigilant soldier, patrolling your bloodstream for offenders! And because it is basically unnoccupied, save for the occasional germ that gets in, when even a teensy weensy particle of gluten gets is WHAM, full fledged attack. All the troops are called in to kill it. Of course, gluten isn't a germ, so the real attack is on your body tissues, which happen to be in proximity to the gluten. And so now you get much sicker, much faster and much more violently then you ever did in your pre-gluten free world.

What you described is very, very typical amongst us celiacs. And while I wish I could say you will feel better tomorrow...probably not going to happen. For the lucky, a gluten reaction lasts a few days, for the majority, you feel lousy for a week to 10 days after, and slowly return to normal. For a few, the reaction can last for weeks.

From here on out, consider yourself a celiac. Be very vigilant about everything you come in contact with, even when it seems you are overreacting. It is necessary to not only save your life, but also to prevent you from a continual low-grade lousy feeling.

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Thanks very much for the reply, I really appreciate it.

After 9 days I started to feel better. Now almost 3 weeks in I feel closer to normal.

It

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    • Gluten does WHAT to the brain?
      I hear you Gemini. It's nucking futz!
    • Test Results
      I went gluten free & never looked back! I have dh, the celiac rash. That makes it pretty darn easy to go gluten-free the moment you figure it out. I was not about to continue eating gluten for even one more day just so the medical establishment would be satisfied in my dx. There was not a moment of doubt in my mind that I had dh & therefore celiac. As it turns out, weirder than weirder than weird and the odds I can't even begin to imagine.... I have since, by sheer accident, had 2 docs officially dx me. Is that crazy or what??!! I did not go in asking for a dx nor even hoping for one. Frankly, I just plain didn't care what they thought. The medical community has failed me numerous times throughout my life so I don't have the highest regard for them. You are 54, I was 54 when I figured mine out. I have no kids so did not need to consider them in my decision not to go for an official dx. My parents had already passed away so that was not an issue. My brother had passed away so that was not an issue either. I did contact my nephew & tell him to let my sister know so she could get tested. So I have done my duty by her & she's an adult and a nurse & can make her own decisions. I do urge people to go for an official dx whenever possible, especially when they have kids or other 1st degree family members. If it's doable for them I think they should make a good effort at it. Also, there are certain people who express they don't think they can stick to the diet without the official dx. I think those people should pursue a dx with all their might. I have never had the slightest problem sticking religiously to gluten free eating. I have never doubted myself. I know you have tired HARD! Super, super HARD. I commend you for your dogged pursuit. I would not, could not blame you for giving it all up & just going gluten free this instant. That is a choice only you can make but I fully support whatever decision you make.
    • Gluten does WHAT to the brain?
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