Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Northeastern Ohio.. Good News

1 post in this topic

I know I haven't been around here much in the last year or so but that's because things have been going relatively well. I was a bit discouraged for a time because my gastroenterologist, whom I trusted so very much during my whole diagnosis process, had sort of disappeared. He left he practice at Alliance Community Hospital and there was no word of whether he retired or was going to resurface elsewhere. I got my records from his practice as I was not interested in the new doctor there.

I was referred to another gastro closer to home and went for an initial visit. He is on the teaching faculty at NEOUCOM and so I figured there might be some potential for meaningful discussion. I was wrong. He wasn't at all interested in why I was getting better and dismissed me with a "see you next year" send off. Well, next year rolled around and I discovered my original Gastro, Dr. John Park, had resurfaced with the doctors at Clinical Gastroenterology, Inc. in the Belden Village area here in Stark County.

I cancelled my yearly follow up previously mentioned doc and scheduled with Dr. Park. He sat and patiently questioned what I had been doing since we last talked. He listened. His assistant took copious notes. He was very pleased at my progress. The last time he had seen me was after my last upper endoscope which had raised the specter that I might have to be considered as having refractory celiac as there was not the healing he had expected in light of my strict compliance with gluten free. I related much of what I had been doing to address gut flora health and spelled out my radical diet. After a physical exam he encouraged me to keep on doing what I have been doing as it was obvious to him that it was working well. We talked about some endurance issues. He explained that, although I was doing so much better there might be some ongoing issues with endurance as a result of celiac but that my overall improvement was encouraging and not to be too concerned about the endurance issue.

He said that unless I encountered any sudden changes in my health that I was good to go for another year. So different from when we were in crisis mode early on when nothing was under control and things were looking bad. I know that doctor patient relationships are sometimes dependent on how the dynamic works from individual to individual but I would encourage anyone in the NE Ohio area who is in need of a good Gastro to consider Dr. Park. I hope I am not out of bounds by suggesting this but I had to relate my good experience. It has been a difficult journey but things do get better as you figure things out. Best to all.



Share this post

Link to post
Share on other sites

Ads by Google:

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • I have to tell you that, about 3 years ago, I went to the International Celiac Disease Symposium.  The coffee cross-reactive myth was discussed as we were all consuming vast quantities of Starbucks coffee provided by the Sheraton.  Needless to say, it was good for a laugh.    
    • Yeah, I looked for real scientific studies on gluten cross activity and couldn't find any. I did read something about barely being found in instant coffee--so who knows.
    • Gluten Cross-reactive foods is some sort of odd internet myth.  It started with a company that wanted to sell bogus medical tests.  They have even admitted that the coffee thing isn't true - they used gluten contaminated instant coffee.  However, you have to look at the small print in a lot of nonsense in a large binder of stuff to find that fact.  I did it with one of their company reps.. anyway....   If coffee bothers you, it may just be that it is hard on your system.  Maybe you can get it back after some healing.  And it doesn't sound like you had much protein that week.   edit - just looked at the ingredients- that isn't just coffee - who knows what part of it bothered you?  ingredients on GMO Dark Roast Coffee, Chlorogenic Acid, Garcinia Cambogia 95%,Phaseolamin, Cassiolamine Green Tea 100:1 Extract, Ginseng 100:1 Extract, L-Carnitine with Chromium.
    • Thanks for pointing that out. I just learned about things that are cross reactive with gluten--that have a similar protein structure and the body reacts as if it is a gluten protein: the list of cross reactors includes: Eggs, coffee most other grains corn, potato, rice, yeast, chocolate coffee, corn, butter soy, eggplant, bell pepper and chili pepper and tomatoes. Son of a !!!! This explains a lot. I would be faithfully gluten-free and still have DH flare ups when I certain things. So I just ate sprouted rice with beans, fruit and oolong tea--and I was fine. Then last week I tried this weight loss coffee called SlimRoast which worked UNBELIVABLE (LOST 3 POUNDS IN 2 DAYS) I was eating potato soup with lots of chili paste and soon I noticed I was depressed, I couldn't focus and began to feel that crawling flesh thing I get when I know I have been glutened.  I did more research on how I could love my body and read about glutamine: "Glutamine is also a critical part of our digestive system. It is the primary nutrient for the cells of the intestinal lining where it helps regulate cellular reproduction. Through this mechanism, glutamine helps prevent and rebuild a leaky gut which is common in people with inflammatory and auto-immune conditions. For this reason glutamine supplementation has been shown to be very effective in individuals with ulcerative colitis, CELIAC DISEASE, Crohn's disease, & irritable bowel syndrome." So now have removed everything but the sprouted rice, back on fruit and beans and have added those things that are high in glutamine. Since I eat plant based I can't get glutamine from meat so lots of raw spinach beets parsley cabbage celery kale brussel sprouts and especially red cabbage --in salads and smoothies. So hopefully I am on the mend--miss my weight loss coffee but its not worth getting sick over.     
    • I got the link fine but if I recall correctly I am a member of Medscape - I believe I just plain signed up for it - I know there isn't any fee for anything I sign up for otherwise I think very long and very hard whether it's going to be worth my money or not.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member