Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Auto Immune Disorders
0

9 posts in this topic

I was finally diagnosed as having celiac sprue with DH about 2 years ago by a chiropractor specially trained in muscle testing. I am curious, however, if anyone on this blog has found they have other auto-immune disorders? I already know I have low insulin and low thyroid and have migraine headaches with an aura. I take a supplement daily, one which dilates the veins and another which constricts the veins to prevent the migraines. Anyone else on this blog have this problem? Also, how do we find out if we have other auto immune disorders?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I was finally diagnosed as having celiac sprue with DH about 2 years ago by a chiropractor specially trained in muscle testing. I am curious, however, if anyone on this blog has found they have other auto-immune disorders? I already know I have low insulin and low thyroid and have migraine headaches with an aura. I take a supplement daily, one which dilates the veins and another which constricts the veins to prevent the migraines. Anyone else on this blog have this problem? Also, how do we find out if we have other auto immune disorders?

Hello and welcome! Have you been tested by a medical doctor or had a metabolic panel done? Have you had a full Celiac Panel taken?

Other auto immune issues are common. I would suggest you see a medical doctor, not a chiropractor.

0

Share this post


Link to post
Share on other sites

Welcome!

I agree with Lisa.

Sorry, but Celiac is not diagnosed by a chiropractor or by muscle testing. There is no scientific or medical evidence to support this practice.

Celiac is DXed by blood panels and/or biopsy, medical history and genetic testing.

DH is DXed by biopsy of the area around the lesions.

You should be evaluated by a medical doctor who is knowledgeable about celiac disease so you can be tested for this and other AI diseases. See a Celiac-savvy GI or an endocrinologist.

But, yes to answer your question, many AI diseases are associated with celiac disease.

1

Share this post


Link to post
Share on other sites

It's not that hard to identify DH. Blisters? Itches like a SOB? Goes away off gluten? Bingo. ;)

I have Hashimoto's thyroid disease, which is autoimmune. There is a blood test for it. I don't know much about adult onset type 1 diabetes but I know that it's possible. Sounds like you need an endocrinologist, not a chiro.

0

Share this post


Link to post
Share on other sites




I was finally diagnosed as having celiac sprue with DH about 2 years ago by a chiropractor specially trained in muscle testing. I am curious, however, if anyone on this blog has found they have other auto-immune disorders? I already know I have low insulin and low thyroid and have migraine headaches with an aura. I take a supplement daily, one which dilates the veins and another which constricts the veins to prevent the migraines. Anyone else on this blog have this problem? Also, how do we find out if we have other auto immune disorders?

Yes, lots of people with celiac can have other autoimmune disorders. Autoimmune thyroid (Graves or Hashimoto's) are very common, as is Type 1 Diabetes. There are others that don't happen quite as often. I think autoimmune hepatitis is another one.

One specific test they can run is the anti-nuclear antibodies (ANA) which is a measure of autoimmunity but not specific for any disease. Usually an endocrinologist, rheumatologist, or GP would order them, don't know about chiropractor. Otherwise they can run more disease-specific tests, but then they'd want to do that on the basis of symptoms. Unless of course you're paying out of pocket. If there's no insurance company to fight with you might get a whole array of testing done...go to a place like Lab Tests Online for more information about tests and what they look for.

There are lots of us with more than one autoimmune condition. <_<

0

Share this post


Link to post
Share on other sites

I take a supplement daily, one which dilates the veins and another which constricts the veins to prevent the migraines. .... Also, how do we find out if we have other auto immune disorders?

Those two meds sound contradictory... tricky.

I have idiopathic thrombocytopenic purpura ITP), which is a bleeding disorder in which the immune system destroys platelets (for blood clotting). I found out when... well, I wouldn't stop bleeding. :P I've heard ITP is linked to celiac but I'm not positive. For other disorders, you would have to test for tem specifically if they are suspected.

Good luck.

0

Share this post


Link to post
Share on other sites

Those two meds sound contradictory... tricky.

I have idiopathic thrombocytopenic purpura ITP), which is a bleeding disorder in which the immune system destroys platelets (for blood clotting). I found out when... well, I wouldn't stop bleeding. :P I've heard ITP is linked to celiac but I'm not positive. For other disorders, you would have to test for tem specifically if they are suspected.

Good luck.

In this list of diseases and disorders associated with celiac disease, ITP is indeed listed---look under blood disorders. Just FYI.

http://www.recognizingceliacdisease.com/21.html

1

Share this post


Link to post
Share on other sites

In this list of diseases and disorders associated with celiac disease, ITP is indeed listed---look under blood disorders. Just FYI.

http://www.recognizingceliacdisease.com/21.html

Thanks, IrishHeart. I've heard they think there is a link, I just haven't found that they've proved it definitively... But I believe it probably is linked.

It's just so annoying to know that this other problem (ITP), that almost killed me, could have been prevented if my childhood doctors had been a bit sharper about my symptoms! I'm sure a LOT of people around here are in the same boat as me. :unsure:

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined