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Getting Tested Friday
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Hi everyone,

I just found this website yesterday and was on it for a couple hours. I just put in a call to my doctor, to get tested for celiac. I have suspected it for sometime now. I feel a little weird about going in and saying I want tested for it without the doctor recomending it, and I'm a little nervous that he might blow me off and try something else. I made a list of all of my symptoms to take into him(fatigue, depression, irritability, dental enamel defects, diarrhea, Constant flatulence, Abdominal pain & bloating, Stomach rumbling, mouth sores (small), and headaches). I am a little discouraged because it seems like it is hard to get a diagnosis. Last month I did the South Beach Diet (no carbs except veggies) and my issues seemed to disappear. I hope this dosn't mess with the test results. I also was wondering if I should even tell him about the diet because then he might say well, just keep eating that way and then not do the test. It would be REALLY hard for me to stick to a gluten-free diet without a diagnosis. I hope this makes sense. I guess I just need some encouragement. Thanks, Adrianne.

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Sounds like it could be celiac. Make sure the full panel is run. Also you need to be on gluten while testing. You should be on gluten for 3 months prior to testing and having equal to 2-3 pieces of bread a day. Otherwise tests could come back false.

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You need to be tested for Celiac with those list of symptoms. They are classic celiac disease symptons and the doctor should be more than happy to test you. Just remember that the doctor is working for you! I know how you feel about asking for certain tests. I was the same way. I was intimidated by doctors, but now if one doesn't want to listen, I will find another one.

Good luck!

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    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
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