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Hello. I found this site from the Glutino site. Wanted to say 'hello'.

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Hi Rose. I'm glad you found us! Do you have celiac or gluten intolerance? How long? Tell us a bit more about yourself, then dig in and read. This is the coolest site on the web, filled with some of the smartest, most supportive people you will find anywhere. Glad you could join us, and I hope you stick around.

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Welcome Rose! Glad you joined us. We like to talk a lot but we can pause once in a while for a few seconds to say hello to new members I guess. So hello! :)

Just in case you are celiac are NCGI or wheat allergic or diabetic or autistic, or have Crohn's or just trying the gluten-free diet out, here are some threads with stuff to fill your brain:

FAQ Celiac com

http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

How bad is cheating?

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Hi I am Helen,

I am new to this site too, only got diagnosed as coeliac 3 days ago.

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Welcome Helen and Rose:). Glad you found us-- don't hesitate to let us know how we can help.

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Hello Helen and Rose! Welcome. There's tons of info here, so read around a bit. There's a search box near the top right of your screen if there's a topic you're especially interested in. Please ask any questions you may have. We allow venting if needed too. :D

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I am also new here , good, perfectplace for learning and making friends!

Good Luck

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Hi everybody :) !

I'm new here,too. My name is Anete,and I'm from the other coast (Eastern Europe). I recognized this disease some 5 years ago,didn't understand what's going on with me. Doctors here avoid such thing as celiac. I started to avoid glutens and my health improved. I'm fighting secretly,because it's a shame here to have any disease. My relatives and "friends" still make bad jokes on this theme. Now my diet is much healthier because I make my meals myself (for my family,too). Hope I can help somebody with my experience.

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Hi everybody :) !

I'm new here,too. My name is Anete,and I'm from the other coast (Eastern Europe). I recognized this disease some 5 years ago,didn't understand what's going on with me. Doctors here avoid such thing as celiac. I started to avoid glutens and my health improved. I'm fighting secretly,because it's a shame here to have any disease. My relatives and "friends" still make bad jokes on this theme. Now my diet is much healthier because I make my meals myself (for my family,too). Hope I can help somebody with my experience.

Hello and welcome Anete. I'm so sorry you don't have the support of your friends and family..or medical people. I'm glad you figured this out for yourself though.

We're here for you! :D

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Welcome Rose, Helen, Gemme and Anete!

Glad you all found this forum - it really is the best place to come to get information, gain support, ask questions are simply vent when needed.

Fantastic accomplishment Anete - sounds like you are very strong to have tackled living gluten-free without support from doctors, family or friends. I am sure your experience will help others that visit this site.

Best wishes and happy healing to you all :)

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Hi all, fairly new here to. I haven't gotten a professional diagnosis, but with eliminating gluten I self diagnosed myself ;)

I have missed this site the last few months....lost it on my computer :huh: I'm back now though and look forward to actually getting to know some others out here that have the same issues and hear success stories...I'm much more positive these days!! Things are getting better everyday!!

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Hi Rose, I am a Rose also. :)

I am fairly new here myself so Hi to others new...Helen, Anete, Gemme, scaredblossom. :)

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Hi Rose, I am a Rose also. :)

I am fairly new here myself so Hi to others new...Helen, Anete, Gemme, scaredblossom. :)

Welcome to all the newbies! We have lots of room at the forum inn, so make yourselves at home.:D

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Hello everyone. I am also new here. My name is Eddie. I am female lol. I also am self diagnosed right now. Maybe forever since my doc doesnt take this thing seriously at all. So here I am trying to get some good quality info under my belt to help me on this journey of becoming gluten free. :)

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Hi to all, :)

Get better soon.

Not too many send flowers for Celiac, so here is my best.

* * *

*0* *0* *0*

! ! !

I am thinking some artist can do better, but those are the best flowers I got. I have much better ones in the garden, but I couldn't get them into the computer.

Diana

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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