Now What's My Problem?
Posted 06 July 2012 - 08:40 PM
After 22 years of absolute misery and torture, I finally found out I have Celiac a little over a year ago. I went completely gluten free at once and within 3 days felt as if I'd been given a brand new body to live in. EVERYTHING got better. It was like a miracle for me. I ate completely clean and bland for two months before reintroducing things like nuts, dairy, etc. Through the elimination diet and allergy testing I've learned that I also cannot have eggs and I"m allergic to peanuts. No big deal.
Over the past year I had a few accidental glutenings and some rough times but I eventually got to a place where I "got" it. I don't touch anything without washing my hands, all my beauty products are gluten free, I don't bother eating out most of the time, etc. I had a roommate that was baking bread and brewing beer in the house, that was an issue so he moved out. Seeing the drastic improvement in me has caused 5 people I know to get tested for Celiac, 4 of which do have it. So all in all its been an incredible year.
Here is the problem: I am completely miserable now with a different set of issues that are nothing like my reaction when I get glutened. My mom and counselor wholly believe that it is "just stress." My fiance thinks I don't eat regularly enough. One emergency room doctor told me that its endometriosis (which cannot actually be diagnosed without surgery). What happens is that I get incredibly constipated - for a week to two weeks at a time. This time around it was 2 1/2 weeks. Then, eventually, after I"ve been full and bloated and completely and totally miserable for a few days/week, I will wake up in the morning and go. And go and go and go. Usually it takes two hours of intense pain and cramping on the toilet before I'm done. Today it was 4! Talk about miserable! And it ALWAYS happens at the worst times. Like when I'm on vacation or have an important event to attend.
I am beyond frustrated. I don't believe myself to be constipated in the traditional manner. Without going into too much detail, my bowel movements themselves are not typical of constipated poo (they are not hard and dry). I feel like there is something inside of me that physically prevents me from going to the bathroom. And the excruciating pain is in my lower left abdomen. (I have had this pain my entire adult life, by the way).
I don't know what to think anymore. I am afraid its some major thing, like a tumor or something. But when I went to the emergency room for it a couple of months ago the doctor said there was absolutely nothing wrong with me and it must be endometriosis (the pain seemed to directly correlate with my monthly cycle. But now I"m on a birth control that stops my cycle so there's absolutely no predicting when this will happen). My mom pointed out the fact that this started 10 months ago and I sold my business 10 months ago... she thinks I'm bored and depressed and its all in my head. My therapist saw it happen every time I have a big trip or event so she is inclined to agree. I think it started about the time I widened my diet so I wonder if its because of the packaged foods I allow myself to eat now - like the gluten free bread for example. I keep trying to go back on the clean diet but working 4 jobs, commuting and being basically all over the place its SO HARD to not rely on packaged foods sometimes.
My other fear is that I have caused some sort of permanent damage from the years of imodium I took daily to deal with the problems that I didn't know where celiac disease. I haven't touched the stuff in a year and a half but I wonder if it caused some sort of lasting problem :/
When I first went gluten free this was not happening. I had regular bowel movements every day for three months until my first "glutening". I did hae the awful pelvic pain still that the doctor says is endometriosis.
Anyway, just looking for similar experiences or advice. I got a great new job with medical insurance but I"m afraid I will end up getting fired for missing half a day once a week or every other week while I"m glued to the toilet :/ I also have no energy ever. Any thoughts are welcome!
Posted 06 July 2012 - 08:50 PM
Posted 06 July 2012 - 10:11 PM
Posted 06 July 2012 - 10:35 PM
Posted 06 July 2012 - 11:38 PM
p.s. Have you tried taking milk of magnesia or other laxatives? MoM is very effective - best taken when you don't need to go out the next day! - but could help you avoid needing time off work.
Self diagnosed but confirmed by biopsy
Gluten free Jan 2010
MSG free Jan 2010
Corn free Apr 2010
Soy free Jun 2010
Following a FODMAPS plan
Also have RSI, widespread myofascial pain and hypermobility problems
Posted 07 July 2012 - 08:41 AM
I went through some struggles with the constipation diarrhea cycle and I believe laxatives execerbated the situation.
I am sure you are eating a clean diet, but perhaps you could focus on keeping it as near to natural as possible and avoid processed foods. Have you tried prunes and senna tea?
Stress messes with my bowel movements and I try to keep a routine. I eat breakfast, wait and then go. If this doesn't happen my day is ruined.
6/21/11 biopsy confirmed celiac disease
Posted 07 July 2012 - 10:17 AM
Posted 07 July 2012 - 12:32 PM
I hope it clears up for you soon. And congratulations; I hope the wedding is a wonderful time.
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012
Celiac.com - Celiac Disease Board Moderator
Posted 07 July 2012 - 05:05 PM
Here's a link, though of course they're saying insoluble fiber helps promote regular bowel movement, and I think for some of us it does the opposite.
Posted 09 July 2012 - 12:53 PM
Posted 09 July 2012 - 01:31 PM
I would recommend removing dairy completely and see if that helps, if not then you know it's not dairy. But there are other foods that can give you grief, so maybe running through a challenge? It could be thyroid and food, or something else. But without insurance I think this would be the only thing you can do right now.
It does seem like your under a lot of pressure and it's possible your stressed as well but I think a spa day or something relaxing you enjoy might be in order
In fact I think I need one myself...lol. It's nice to just take a day off now and then...
Celiac Disease - Gluten Free since Feb 2009,
Cow Milk & Corn free - June 2012,
Gall Bladder Failure - Removed July 2009,
Colitis, Hashimotos Disease, & Diverticulitis
( )_( )
(")_(") Eat your vegetables!
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