Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Soy Allergy?
0

22 posts in this topic

well today is day 5 gluten free, I had to start over bc of CC. Anyway I woke up this morning congested, head pain with my head feeling swollen like I had ingested gluten. I know that I didn't bc I have been extremely cautious. Then I remembered soy, i ate something with soy milk. Most likely that's it but as I read labels now, everything that is gluten free contains soy, or so it seems. How do you eat wheat free and soy free? I feel so overwhelmed. It's like I take 2steps forward then 1 step back. I was also tested by a naturopath and showed no wheat or soy allergy but I did show leaky gut and feel so much better off of wheat. Can someone please explain this to me? Thank you so much!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Many of us with celiac can't eat soy--I feel almost the same after eating soy as I do gluten. There are actually a lot of gluten-free products out there that don't use soy. Most breads don't contain it, and I'm careful to read the labels on waffles, cookies, etc. Be careful of soy in canned tuna, mayonnaise, and salad dressings. The tuna at Trader Joe's and Whole Foods doesn't contain soy, and there are canola, coconut, and other mayos out there that contain little or no soy.

I know it seems overwhelming at first...as though there's very little to eat. Generally, when we start a gluten-free diet, it's recommended that we eat only natural foods and cook from scratch. Because there are so many suspect ingredients in processed foods, it really is easier and safer to stick with natural ones for at least a few months.

Believe me--things will get better! And, as you begin to FEEL better, it will seem easier.

0

Share this post


Link to post
Share on other sites

Well this is a club I too am in! Who would know there was soy in so many gluten-free products. I get pain and an itchy face. Do you ever get itchy reaction?

I am not yet diagnosed with anything, but have extreme GI issues and these pop up out of know where allergic reactions to foods and medications. One day I am fine with yogurt, next day my face it itchy! Today a systemic response was set off with whatever I ingest.ER in next for epinephrine.

I can't wait until this body settles down. Good luck to both if you.

0

Share this post


Link to post
Share on other sites

Many of us with celiac can't eat soy--I feel almost the same after eating soy as I do gluten. There are actually a lot of gluten-free products out there that don't use soy. Most breads don't contain it, and I'm careful to read the labels on waffles, cookies, etc. Be careful of soy in canned tuna, mayonnaise, and salad dressings. The tuna at Trader Joe's and Whole Foods doesn't contain soy, and there are canola, coconut, and other mayos out there that contain little or no soy.

I know it seems overwhelming at first...as though there's very little to eat. Generally, when we start a gluten-free diet, it's recommended that we eat only natural foods and cook from scratch. Because there are so many suspect ingredients in processed foods, it really is easier and safer to stick with natural ones for at least a few months.

Believe me--things will get better! And, as you begin to FEEL better, it will seem easier.

Yes I am going to have to stick to only natural foods for a while, it's easier said than done. I just really never considered being sensitive to soy, so glad for my food log! Why wouldn't it show on the allergy test?
0

Share this post


Link to post
Share on other sites

Well this is a club I too am in! Who would know there was soy in so many gluten-free products. I get pain and an itchy face. Do you ever get itchy reaction?

I am not yet diagnosed with anything, but have extreme GI issues and these pop up out of know where allergic reactions to foods and medications. One day I am fine with yogurt, next day my face it itchy! Today a systemic response was set off with whatever I ingest.ER in next for epinephrine.

I can't wait until this body settles

down. Good luck to both if you.

The pain is in the form of migraines & inflammation. I have gotten itchy blisters on my fingers for almost 18 years now, never knowing the cause. I read recently on this site to change my hand soap to SLS free soap, along with gluten free diet. I did and the blisters went away. Also in the past I would not always have a reaction to foods and that's what kept me guessing what was going on. But now I'm going gluten & soy & milk free!
0

Share this post


Link to post
Share on other sites




First of all, it is only day 5 off gluten and you are still getting the gluten out of your system. So, you could be feeling pretty wonky from that still. It takes a LONG time to heal a bad gut, hon.

Most of us feel like we go a few steps forward and then one back at the beginning. It takes some people YEARS to heal their guts.

And just to be clear, a soy ALLERGY is different from a soy INTOLERANCE, okay?

These are two different mechanisms.

Your digestion is still pretty messed up and every food may seem like a problem.

ROSETAPPER's suggestion to eat PLAIN, whole foods is the best advice. I agree totally.

You mention your Naturopath tested you for a leaky gut. What testing did she use? Just curious.

0

Share this post


Link to post
Share on other sites

First of all, it is only day 5 off gluten and you are still getting the gluten out of your system. So, you could be feeling pretty wonky from that still. It takes a LONG time to heal a bad gut, hon.

Most of us feel like we go a few steps forward and then one back at the beginning. It takes some people YEARS to heal their guts.

And just to be clear, a soy ALLERGY is different from a soy INTOLERANCE, okay?

These are two different mechanisms.

Your digestion is still pretty messed up and every food may seem like a problem.

ROSETAPPER's suggestion to eat PLAIN, whole foods is the best advice. I agree totally.

You mention your Naturopath tested you for a leaky gut. What testing did she use? Just curious.

He did blood and urine & I was only able to have 24 oz of water 24 hours prior to the specimen collection. It was a comprehensive metBolic profile & the company name on my results is Design for Health.

So how would I be tested for an intolerance?

0

Share this post


Link to post
Share on other sites

My soy intolerance hits me faster than gluten. I can feel off and if I have too much projectile hurling king of the world!!

I did not have this pre-Celiac, so along with dairy maybe one day this will clear up and I can eat the nasty soy that I did not like to begin with. :lol:

1

Share this post


Link to post
Share on other sites

He did blood and urine & I was only able to have 24 oz of water 24 hours prior to the specimen collection. It was a comprehensive metBolic profile & the company name on my results is Design for Health.

So how would I be tested for an intolerance?

Celiac is diagnosed by a celiac panel.

There is no scientific, proven test for gluten sensitivity YET.

Blood and urine testing that showed what exactly? What did he tell you you have exactly?

I looked at Design for Health and cannot seem to get any info on what this testing is FOR?? You cannot access the website.

A CMP--a comprehensive metabolic profile can be done by a medical doctor.

What did the profile results uncover?

Can you post them here?

0

Share this post


Link to post
Share on other sites

Maybe the head congestion has nothing to do with a food? My sons have been working outside, in the country. Here, corn pollen is " in season". He wasn't taking allergy med and woke up congested with a headache.

Five days gluten-free is too soon to try to figure out what else, if anything, may be bothering you. Eat simply and don't buy a bunch of gluten-free processed stuff for a few months. Gluten

may not even be your problem.

Another thought is to go back on gluten and get a Celiac blood panel from a doctor.

Intolerances are only diagnosed by trial and error. But first, why don't you see a doctor?

Read on here and you will learn a little about how an intolerance is different than an allergy and they are both different than Celiac.

0

Share this post


Link to post
Share on other sites

Maybe the head congestion has nothing to do with a food? My sons have been working outside, in the country. Here, corn pollen is " in season". He wasn't taking allergy med and woke up congested with a headache.

Five days gluten-free is too soon to try to figure out what else, if anything, may be bothering you. Eat simply and don't buy a bunch of gluten-free processed stuff for a few months. Gluten

may not even be your problem.

Another thought is to go back on gluten and get a Celiac blood panel from a doctor.

Intolerances are only diagnosed by trial and error. But first, why don't you see a doctor?

Read on here and you will learn a little about how an intolerance is different than an allergy and they are both different than Celiac.

I am done with doctors as I have seen 4 neurologists, a neurosurgeon, 2 therapists, endocrinologist,ENT,2 pain mgmt doctors, GYN, allergist, dermatologist, gastroenterologist, acupuncturist . Also many different alternative therapies and all I seem to hear is try reducing the stress in my life. I could barely get out of bed & cook breakfast for my children, this was not stress but nobody knew what to do. So I realized that in January our church had 21 days of prayer and fasting in which I only ate fruits and veggies. The next month was wonderful! So last month I remembered, that's how foggy my mind was that I didn't even put 2 & 2 together, that and got off of wheAt and had 8 days of relief. Over the last two years I always have felt if I didn't have to eat I would be better. Plus I have a nutritionist that is helping me tremendously. All of the supplements are bringing me back to life although I still have to rest often. But I can tend to my children again, thank God! I am not going to spend any more money at this time & try elimination. There is just so much to learn! I am so grateful that I found this site!
0

Share this post


Link to post
Share on other sites

Yes, I was done with doctors, too, when everyone missed an obvious diagnosis. I still don't trust them (except my oncologist) and would much rather deal with chiropractors and integrative medicine doctors. And dermatologist? Don't get me started!

I think you're on the road to recovery--just eat clean, and I think you'll be fine.

0

Share this post


Link to post
Share on other sites

Celiac is diagnosed by a celiac panel.

There is no scientific, proven test for gluten sensitivity YET.

Blood and urine testing that showed what exactly? What did he tell you you have exactly?

I looked at Design for Health and cannot seem to get any info on what this testing is FOR?? You cannot access the website.

A CMP--a comprehensive metabolic profile can be done by a medical doctor.

What did the profile results uncover?

Can you post them here?

It showed my biochemistry makeup, what was functioning properly or not, electrolytes, nutritional elements, toxic elements, food antibody reactions, cellular energy ( not metabolizing fats), not detoxifying, adrenals & thyroid not functioning properly, dehydration, malabsorption, anemia, enzymes not breaking down food. He recommended to get off of wheat but I didn't at that time. I really thought I was dying & thought it couldn't possibly be bc of wheat. he didn't know for sure but said daily migraines for 2 years was probably from liver not detoxifying like it should be doing. My glutithione was depleted. He put me on 9 supplements & physically I am gaining

strength. He has helped me come back from the dead! Wonderful man!

0

Share this post


Link to post
Share on other sites

I had a similar path....your list of "medical pros" sounds like mine.Dozens of doctors...no help.

However, I am often leery of testing that is questionable, having gone that route myself.

But, if you are feeling better and it works for you, then, keep at it. I was only trying to help you with follow up care.

best wishes to you.

0

Share this post


Link to post
Share on other sites

I had a similar path....your list of "medical pros" sounds like mine.Dozens of doctors...no help.

However, I am often leery of testing that is questionable, having gone that route myself.

But, if you are feeling better and it works for you, then, keep at it. I was only trying to help you with follow up care.

best wishes to you.

Thank you!
0

Share this post


Link to post
Share on other sites

What did you do for follow up care?

0

Share this post


Link to post
Share on other sites

What did you do for follow up care?

Because I had been long unDXed, and I was in poor health and in constant pain, my new GI doctor runs blood work every few months to check my thyroid (which once had a lump on it and ran from hyper to hypo and back again), glucose levels, iron, vit D, folate, and B-12 levels (all of which were tanked ), a CMP and CBC. Also, tests for inflammation in the body, such as Sed rate, ANA and C-reactive protein. There are a few more, but those are the important ones.

He had me do a small bowel follow- through series to rule out other GI diseases and lymphoma, various stool tests for parasites, infections, etc., the test for h. pylori, that sort of thing.

Soon, he will biopsy me to make sure I am healing. I am okay with that.

As much anger as I hold for the medical community for not diagnosing me properly and letting me go down the tubes for so many years, I have come to trust this doctor who understands celiac and who has taken it upon himself to watch over me.

0

Share this post


Link to post
Share on other sites

Because I had been long unDXed, and I was in poor health and in constant pain, my new GI doctor runs blood work every few months to check my thyroid (which once had a lump on it and ran from hyper to hypo and back again), glucose levels, iron, vit D, folate, and B-12 levels (all of which were tanked ), a CMP and CBC. Also, tests for inflammation in the body, such as Sed rate, ANA and C-reactive protein. There are a few more, but those are the important ones.

He had me do a small bowel follow- through series to rule out other GI diseases and lymphoma, various stool tests for parasites, infections, etc., the test for h. pylori, that sort of thing.

Soon, he will biopsy me to make sure I am healing. I am okay with that.

As much anger as I hold for the medical community for not diagnosing me properly and letting me go down the tubes for so many years, I have come to trust this doctor who understands celiac and who has taken it upon himself to watch over me.

That is wonderful that you finally have a good doctor. I go back in 4 months to the naturopath & I'll request what you have being done. I had the colonoscopy by the GI doc & infections & parasites were negative.

I wish you the best, take care!

0

Share this post


Link to post
Share on other sites

I wish you the best, take care!

And right back at you! :)

0

Share this post


Link to post
Share on other sites

Since celiac disease affects the small intestine they do an endoscopy to take several biopsy samples for microscopic review. Colonoscopy won't detect celiac, so your GI missed the boat there.

0

Share this post


Link to post
Share on other sites

Since celiac disease affects the small intestine they do an endoscopy to take several biopsy samples for microscopic review. Colonoscopy won't detect celiac, so your GI missed the boat there.

I was just going to say this, but you beat me to it...thanks, Gee EFF! :)

0

Share this post


Link to post
Share on other sites

Oh Shannon....I'm so happy for you and for your children that you figured this out!!

I too, had 25 Dr.'s, rheumatologists, dermatologists, internists, psychiatrist, physician assistants,and 3 emergency room trips before I found c.com and the answer. Thankfully I have my life back! You will too!

Even though it's too soon to know what all of your secondary intolerances may be, I think you are smart to eliminate the big baddies. I wish I had done so sooner. I would have gotten well sooner. So I think you are on the right path to suspect secondary intolerances. At least you aren't doing any harm by eliminating them.

I wish you well in your recovery. You make me remember what it was like when the revelation hit me.

You mean it was wheat all this time? I shudder to think of how simple the answer was. But it sure ain't simple if you don't know what it is!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,090
    • Total Posts
      920,307
  • Topics

  • Posts

    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
    • No!  Once you fill the tub, if you sit in it for 3 minutes or you stay for 10... It doesn't change the amount or cost of the water.  That's only relevant if you have 3 kids to cycle thru that same water.  Is your hub bathing in the same water after you? Lol  And even if you add some more hot and stay longer....well...it's much cheaper than perscription meds, vodka or a substance that is legal in a few states.     Of course this only pertains to those of use with running water.... If you make your hub haul water from the creek or well and heat it over a fire....
    • Whether it is bona fide dermatitis herpetiformis, or severe eczema or hives or what have you, we all want to know how to stop the incessant itching.  Through all my research, the solution comes down to one thing: a good long soak in the tub-- with baking soda or Epsom salts or some kind of herbal tea, followed by a rub down in thick expensive lotion.  I don't know about you, but I was brought up to "get in, get done get out."  A long soak in the bath was a frivolous luxury, and a waste of time and hot water.  So now I'm having this awful breakout from forgetting to read a label and got wheated.  And every night I've been soaking in a baking soda bath to relieve the itching and aid my recovery.  And it's been hard! (But it's been very helpful too)  It has been hard to reconcile this "frivolous luxury and waste of time" as medically necessary!  Fortunately I've had no judging, and only support from my husband, who has had a similar upbringing.  Does anyone else struggle with this?
    • His son, Eli, had been misdiagnosed with celiac disease, so the family tried some gluten-free foods. After adding quinoa (KEEN-wah) to their diet, ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • HappyMom623

      I have Tangled problem! I want all the things Rapunzel Related....including Flynn Rider 😂 but seriously. I have like 8 shirts I want.
      · 0 replies
    • AprilBeth2013

      RT @MarkDever: “But the work is God’s and we do not fear the final results. ‘The heathen shall be given to His Son for His inheritance,’ .…
      · 0 replies
    • silk

      I have celiac disease and have been gluten-free for almost 10 years.  I am extremely sensitive to gluten, noting that I react within 15 minutes of contact and in fact the doctor suspects that there may also be an actual wheat allergy at play but have never bothered to be tested since I avoid it like the plague!  I am curious to know if anyone else reacts to flax or inulin?  My symptoms with those two are almost identical to gluten so I have to really watch for that in gluten-free breads and baking and recently discovered after the fact that flax was in the juice I was drinking. I know that people with gluten issues can have other problems as well and in fact I also avoid milk products.  Even after 10 years, and although it has become a way of life, it's still frustrating to have to read every ingredient on every label.😞
      · 2 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,114
    • Most Online
      1,763

    Newest Member
    3boymommy
    Joined