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What Did I Do Wrong?
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7 posts in this topic

I cooked supper for a friend and myself the other day. The following day I had all the usual symptoms of a glutening. The only thing I did different was serving a ready-prepared bag of green salad with supper, and ready-chopped fruit salad for dessert. This is the first time I had eaten ready-prepared fresh food since going gluten free. Having recovered reasonably well, I thought I dared risk it as I was unexpectedly too short of time to prepare anything else. Is this really a genuine risk, or was I maybe just unlucky and fail somewhere in my usually pretty careful environmental hygiene routine? I would be surprised I had purchased a rogue batch of food, as it was purchased from a very reputable retailer.

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sometimes pre-packaged salads become tainted by bacteria such as E-Coli... Maybe your things had a bacteria & that is what made you ill. Here in the US they get called back as soon as a person becomes ill or a random testing can begin a recall....just a thought.. Another is some pre=packaged things contain a perservative to keep them fresh for a longer time. those make me ill....

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Sorry you got sick. :( As well as considering non-gluten causes for your illness, I'd ask the retailer whether gluten-containing foods are prepared where they are packaging the salads and slicing the fruit. They may not be concerning themselves with allergen CC to the extent that you need.

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Thanks for the thoughts. I am not sure it was a bacterial problem as a glutening for me involves a migraine, and the symptoms are quite distinctive. This time was no different. A preservative being a contributory factor is something to consider. I am pretty sure that soy is a minor trigger for me, so it is not a stretch to think that chemical preservatives might be another. Maybe I will ask the retailer about their production facility. I've been trying to avoid doing this, as I don't want to have to think of myself as unduly sensitive to CC.

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Gail, do you have problems with corn? The "citrus" wash they use on bagged salads is made with corn.

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Bartfull - I don't have problems with corn that I am aware of, other than sweetcorn kernels being the last thing still to go right through me. I've been thinking about the preservatives that Mamaw mentioned and have been looking into sulphites. This seems to tally quite well with my symptoms which I get on eating a wide range of mainly processed foods, and I really struggle with wine (the only alcohol I might drink), but erratically so, as if there is level of tolerance and then a tipping point. Another clue for sulphites is I have had an anaphylatic response to both intravenous antibiotics and injected corticosteroids. Those, wine, and processed foods often have high levels of sulphites apparently. I have started to test this theory out by heading back to my "beginners" diet of fresh vegetables, rice, potatoes and fresh meat/fish only, and avoiding onion, garlic, leaks etc. Without knowing it, my beginners diet was low in sulphites. I am also going to look at my shampoos etc to see if removing sodium lauryl sulphate will help with my itchy spotty scalp. I know all these things helped alot when I first went gluten and lactose free, but I haven't been able to get past a level of milder residual symptoms with too many episodes of recurring migaine-based illness which lays me out for a couple of days each time.

I haven't been reading the board so often lately, have you been able to find enough safe corn-free food for yourself?

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Could be cc on the fruit.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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