Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Symptoms With Period.

GFreeMO

By GFreeMO
in Coping with Celiac Disease

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

Does anyone else feel glutened while on their period? Last night I tried something new to eat and within 2 hours, I looked 6 mo. pregnant. My typical reaction to gluten. This morning I got my period. I have been in the bathroom with D most of today. I sometimes get D with my period but this seems more like a glutening because of my other symptoms.

I have felt similar to this while on my period before though. I am just wondering if it's hormones or what the deal is and if anyone else experiences gluten type symptoms with their period weather glutened or not.

I hope I am making sense..as much sense as I can through the glutened and period pain. :(:unsure:

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Adalaide Mentor
Adalaide
Posted

I always get D about 2 days before my period and up through the first day or two. It's my understanding that it's hormones. It's pretty awful but I just deal with it. It isn't the emergent sort of don't get more than 10 feet from a bathroom D that I get from gluten so it doesn't bother me too badly. I get pretty bloated too and break out my fat pants. That's assuming I have to leave my house, usually I just stay in jammies and stuff my face with milk by the gallon.

Link to comment
Share on other sites
nvsmom Community Regular
nvsmom
Posted

I'm really new to this (2 weeks attempted gluten-free but I've been celiac my whole life) so although I'm not sure what normal feels like yet, I do know that my stomach gets upset at the start of my period. The day before I get quite bloated (the pg look) and on day 1 my stomach empties much more thouroughly than normal (I am usually C). I usually back pain and migraines too. I always attributed it to hormones...

Sorry I can't help more. Hope you feel better.

Link to comment
Share on other sites
~**caselynn**~ Enthusiast
~**caselynn**~
Posted

I start. Locating the week before, to the point that I look preggers, not so awesome. The day before I will be struck with C, and then one the "cleanse" begins its D for a couple days. I pretty much feel like I'd like to die due to the pain, but it's not the same as gluten. I'm pretty sure it's hormones that cause the fluctuations but I have been glutened at the same time and that's a whole new ball game.....

Link to comment
Share on other sites
~**caselynn**~ Enthusiast
~**caselynn**~
Posted

I love that it autocorrects from bloating to locating haha can't win for losing some days!

Link to comment
Share on other sites
dilettantesteph Collaborator
dilettantesteph
Posted

My feeling is that having your period makes your symptoms worse. I have noticed that for many years. I can even look back and remember incidents from since before I was diagnosed. I won't go into gross detail.

Link to comment
Share on other sites
GFreeMO Proficient
GFreeMO
  • Author
Posted

Thanks everyone! I agree, something about celiac makes periods worse. This is def. a gluten/period combo. I'll spare you the details but boy, is this painful. My hormones drive me to eat things that I normally would never eat. Processed things and every single time, I get zapped. -Back to nothing processed. I can do this! Just when I start feeling halfway decent. ( I never really feel good like I did before celiac) I will try a new food and wham....glutened. Time to stick with the tried and true foods.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


~**caselynn**~ Enthusiast
~**caselynn**~
Posted

I go through the same thing, and always go back to the whole foods. It's the only time I really feel great, but you're right, I haven't felt as good as I remember pre celiac in a LONG time. Getting there slowly, I hope!

Link to comment
Share on other sites
Ebonyjade93 Rookie
Ebonyjade93
Posted

I am exactly the same!!! I'm so glad I found this thread as I just went through this, some months are worse than others, this month is painful!!! I dread my periods!! I get so bloated aswell and the worst stomach pains, it's hard to tell if I've been glutened or it's just because I'm going to get my periods.... I also get D, but I also get C aswell some months. Just good too know I'm not alone with this... Idk how many times I read threads and think that.

Link to comment
Share on other sites
Marie1976 Enthusiast
Marie1976
Posted

My pms and periods are way worse since I was diagnosed with celiac and stopped eating gluten. You would think it would get better not worse right? Weird. :/

Link to comment
Share on other sites
archaeo in FL Apprentice
archaeo in FL
Posted

I got the Mirena IUD recently, hoping it'll help with some bladder issues (may have endometriosis on the bladder, but not confirmed), and also hoping it'll make my periods go away. I've only had it for a couple of months, and so far my gastro symptoms and cramps have been worse, but I haven't had much of a period - and not for long or at the same time at all.

My GYN told me that ALL women get D with their periods (and, if not, they still experience the hormonal trigger that causes it - something about the muscles that cause it and our bodies at that time), and it's possible that if your periods are getting worse it's also just a change you're experiencing outside of Celiac. If it continues, though, you may want to talk to a GYN - you may have something making them worse (endo, fibroids, cysts), none of which are necessarily bad or abnormal but which may be treatable.

Link to comment
Share on other sites
  • 2 weeks later...
LauraB0927 Apprentice
LauraB0927
Posted

Because of my anemia my GYN had me taking three months worth of birth control in a row before getting my period so that it could cut down on the blood loss - this has actually helped with my iron levels the past few years (plus I dont mind getting my period only 4 times a year!). This is the first time I'm getting it since going gluten free, and my symptoms have become much worse. My cramps are worse than they have ever been in my life and Midol used to be my miracle pill and it doesnt even seem like its working now. I also have a permanent feeling like I have to go to the bathroom. Why do the hormones have a different effect and severity after going gluten free? I really hope this ends soon....

Link to comment
Share on other sites
peacefirst Rookie
peacefirst
Posted

I am gluten free just for about a week, and got my period, and even though I feel a bit bloated, my belly is still much smaller than before I stopped glutein. I do avoid proccessed foods(oaccasionally I eat salad dressing with minute amounts of sugar in it and such)for a while now and eat lots of raw foods. Even if you have some issues with your health, eating whole foods can help quite a bit, but first few periods might be actually worse, because of the detox effect.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. BluegrassCeliac
      - BluegrassCeliac replied to lasthope2024's topic in Food Intolerance & Leaky Gut
      7

      This forum might be the last hope I have in my life. Please I beg you

      Hi, Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom...
    2. Scott Adams
      - Scott Adams replied to Nacina's topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity...
    3. Nacina
      - Nacina posted a topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy...
    4. trents
      - trents replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo the "gluten challenge" before testing but you need to understand that the...
    5. Fluka66
      - Fluka66 replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,067
    • Most Online (within 30 mins)
      7,748
    myneckmybackmyceliac
    Newest Member
    myneckmybackmyceliac
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • BluegrassCeliac
      This forum might be the last hope I have in my life. Please I beg you

      By BluegrassCeliac · Posted

      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      14 year old with Celiac & EOE still suffering...

      By Scott Adams · Posted

      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      14 year old with Celiac & EOE still suffering...

      By Nacina · Posted

      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
    • trents
      Waiting for urgent referral.

      By trents · Posted

      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
×
×
  • Create New...