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How Many People That Are Diagnosed In This Forum Are African-American/black/hispanic/asian Or Any Other Ethnicity?
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I'm not sure where this should go...I am just so bothered by the fact that doctors believe that it's impossible for people of other ethnicities to have Celiac Disease. That makes people in that community unaware, to a point where they don't even care or even believe that themselves. While Vitamin D-deficiency is everywhere, it's very prevalent in African-American women. I almost wish I could put together screenings/blood tests for African-American/Hispanics/Asian/non-White community just to prove to some dense doctors how common it may be.

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I'm half hispanic and was diagnosed four months ago.

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They are starting to find that people of different ethnicities can have this problem.And people in America have all sorts of backgrounds. They shouldn't be using skin color to determine celiac. Maybe try typing in different races then celiac or gluten intolerance in a search engine. Find articles that come from reputable sources and take them to the dr. If you try a gluten free diet and you feel better you really don't need the dr's opinion. A lot of us on here have learned this. It does help to have proof from tests and all but your tests can still come back negative. Even people that fit into the "celiac profile" have trouble getting diagnosed so try not to feel too bad. Good luck to you! :)

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We have had a few posters at various times from Mexico. Several from India.

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I could not look more "caw kaze shun" but I am part indigenous aka "got here a little earlier." Females of this group tend to have higher rates of auto immune diseases. You'd think that with the caw-kaze-shun being northern European/Irish (and my married name being that, conveniently adding to the whole identity as perceived ) this would have been considered earlier, but heck no. I was sent on my journey exploring the possibility by a random comment on an internet social board.

There is no such thing as a "purebread" :P human.

It's not only the doctors. When I find people in the real or on-line world with matching symptoms, I gently suggest they consider gluten free as an option, only to be frequently told that they "tried" the diet once, and it made no difference, so they can't possibly have it, because their doctor told them :ph34r: they have (fill in the blank, usually fibro or IBS). People get into their cocoons medicating themselves with beer or junk food or prescription meds or whatever, and they aren't going to come out, but they are always complaining how sick they are at the same time.

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It's a real good question Nicole. Just about everything we thought was known on celiac 50 years ago has been shown to be wrong. It's not one in 10k people, it's 1 in 133. And you don't outgrow it. And it's not only a children's disease. And it's not only a Northern European disease either.

But IBS is an easy answer that doesn't take much effort. Someday maybe it will change. My understqnaqding is the genes in celiac are part of a cluster of genes that are linked to lots of auto-immune diseases. So there could be more things learned because of that. I think they ought to do the celiac blood panel on anyone that is suspected of having IBS or any auto-immmune disease. That might catch more cases.

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It's a real good question Nicole. Just about everything we thought was known on celiac 50 years ago has been shown to be wrong. It's not one in 10k people, it's 1 in 133. And you don't outgrow it. And it's not only a children's disease. And it's not only a Northern European disease either.

But IBS is an easy answer that doesn't take much effort. Someday maybe it will change. My understqnaqding is the genes in celiac are part of a cluster of genes that are linked to lots of auto-immune diseases. So there could be more things learned because of that. I think they ought to do the celiac blood panel on anyone that is suspected of having IBS or any auto-immmune disease. That might catch more cases.

My mother was diagnosed with "IBS" almost 10 years ago. As an African-American woman who is not in denial about the possibilities of having Celiac disease, it pains me that I can't get the people in my family with identical issues to get tested. One aunt has agreed to be tested when she goes to the doctor next week. When I talked to my cousin, who a couple of months ago had a tanked Vitamin D level of 6, and is having serious neuropathy issues, hyperthyroidism, and high blood pressure, asked me did I want them to be tested to make me feel better. I was like, no, to make YOU feel better. People are so set in their ways.

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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