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Tmi Bm Question


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#1 ker0pi

 
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Posted 11 July 2012 - 01:06 PM

Ok, so I tested negative in my blood work but saw so much improvement in my symptoms after a 4 day gluten-free trial before blood work and after many emails with IrishHeart (Thank You) I am gluten-free now. It's been 3 weeks as of today and I feel fantastic, there are still symptoms and muscle weakness that I am contending with but I see improvement everyday. Something interested has starting happening. I have never been a "regular" once a day kind a person, my whole life I've been more like a once a week sort of person, always very dark brown in color and dense. When all my pain and fatigue started they started floating for the first time in my life, were even darker and looked more like little pellets. Now that I've been gluten-free for 3 weeks I've started going almost everyday, I know this is normal and the color is much lighter. But they are still floating and now I have undigested food in them, never experienced this before. Things like rice, peas, carrots. Is this normal too?
Sorry about the TMI.
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#2 GFreeMO

 
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Posted 11 July 2012 - 02:42 PM

Hi,
I see this when glutened. After the D ends and the pain starts to subside some, I get floating stool and mucus. It has to do with fat malabsorbtion and is just part of celiac. It comes and goes and comes with a glutening.

Just be careful and make sure that you are not getting CC from somewhere.
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#3 ker0pi

 
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Posted 11 July 2012 - 07:00 PM

[quote name='GFreeMO' timestamp='1342046529' post='810395'

Just be careful and make sure that you are not getting CC from somewhere.
[/quote]

CC shouldn't be an issue, the whole family has gone gluten-free with me. The only gluten in the house is bread and that is only allowed on our kitchen cart which is sanitized daily and we have a strict dip once rule for anything being spread on bread. We bought a 4 slice toaster and 2 slots are marked off for gluten-free only. My husband has said he is treating this like I'm in cancer remission and has taken the CC issue very seriously. As soon as we can get a bread maker and perfect some recipes there won't even be bread in the house.
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#4 GFreeMO

 
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Posted 12 July 2012 - 07:11 AM

You are going to have to get your own toaster. Sharing a toaster will not work even if you mark the 2 gluten free slots. You have to treat gluten like it is rat poison. You wouldn't share a toaster with that. Also, you need your own containers of condiments etc.

Don't stress..you will get it all figured out. :)
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#5 GFinDC

 
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Posted 12 July 2012 - 01:28 PM

Not TMI. :) We like to get too the gritty details. Sounds like things are changing for you digestion wise, which means the gluten-free diet is doing something. You could try taking probiotics and digestive enzymes for a while. And avoid the processed foods and sugar and starches. You are still in the early healing stages, and things may not settle down for a while now. But eating a simple diet and taking the probiotices may help.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#6 ker0pi

 
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Posted 12 July 2012 - 03:31 PM

Not TMI. :) We like to get too the gritty details. Sounds like things are changing for you digestion wise, which means the gluten-free diet is doing something. You could try taking probiotics and digestive enzymes for a while. And avoid the processed foods and sugar and starches. You are still in the early healing stages, and things may not settle down for a while now. But eating a simple diet and taking the probiotices may help.



Thanks, I do not eat processed food my family and I have been on a whole foods organic diet for about 6 years now. Sugar has never really been a thing for me, I took fresh baked bread straight from the oven over sugary anything every time. I started my probiotics back up, I had stopped because it was causing very painful gas, but that was while I was on my gluten challenge. Now that I'm gluten-free it seems to be helping, I feel like I'm on illicit drugs today, the amount of energy I have is something I haven't felt since I was in my early 20's. I was just worried about all the undigested food, that has never happened before and it seems I'm "passing" a little bit of everything I've been eating the past 3 days. Realized today the bright red things were the dried cranberries from my home made trail mix.

I'll pick up some digestive enzymes and add them to the mix, good idea.
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#7 lewiss

 
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Posted 13 July 2012 - 07:52 AM

Hi<
CC is something that l get, because l am the only one on the gluten-free diet, know body has taken me serious except the people on this board. i use ground flax in my gluten-free cereal, l use almond milk, berries, organic sugar, the regularity has finally come back. I take omgea supplement, probotices, vit,d,c a multi they all help, I use a lot of organics, and even there i have a lot of critisim.

I've been told that all this take time,,,,,,,,,,,,,\here's hoping so, because somedays l just fell like l want to sit down and die...

Lewiss
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#8 IrishHeart

 
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Posted 13 July 2012 - 09:45 AM

Floating stools is not always about malabsorption. Sometimes it is because of all the fiber you ingest.

Carrots, cranberries, trail mix, rice---all high fiber foods.

Hon, I do not think the color of your stools is alarming at all. I think it is NORMAL. :) I've done a mountain of research on the GI tract ( poopology is a second major for me :lol: ) and brown is a good thing.

Dark, tarry, black stool is a problem. That's blood.

Your body is undergoing major changes.

If some foods are undigested, it could be an enzyme deficiency, but truth be told, many people have undigested bits of food in the stools. Ever eat corn? :blink:

Use the probiotics and try digestive enzymes before meals.

But since you are GOING daily and they are firm?---well, this is cause for celebration.

I know you have a super-clean diet and I am sure you are being careful with the gluten in the house.
But it would be wise for you to avoid it altogether.
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#9 ker0pi

 
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Posted 13 July 2012 - 10:45 AM

But since you are GOING daily and they are firm?---well, this is cause for celebration.


Yes, firm. And I did not realize high fiber foods would go through undigested. I started back up the probiotics and I'm going to get some digestive enzymes tonight. It's very new for me this whole going every day thing.
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#10 GFinDC

 
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Posted 13 July 2012 - 02:08 PM

Thanks, I do not eat processed food my family and I have been on a whole foods organic diet for about 6 years now. Sugar has never really been a thing for me, I took fresh baked bread straight from the oven over sugary anything every time. I started my probiotics back up, I had stopped because it was causing very painful gas, but that was while I was on my gluten challenge. Now that I'm gluten-free it seems to be helping, I feel like I'm on illicit drugs today, the amount of energy I have is something I haven't felt since I was in my early 20's. I was just worried about all the undigested food, that has never happened before and it seems I'm "passing" a little bit of everything I've been eating the past 3 days. Realized today the bright red things were the dried cranberries from my home made trail mix.

I'll pick up some digestive enzymes and add them to the mix, good idea.


The undigested food could be from food passing through the GI system too fast. Chewing well and taking some Betaine HCL with your meals may help. I don't think it's good to take the Betaine HCL too often, your stomach naturally produces hydrochloric acid to digest the food that you eat, and to kill bacteria and other pathogens. But there are things that cut down on the production of HCL acid. H.Pylori bacteria for one, and aging for another. So a little extra sometimes might be helpful. I take it sometimes if I eat a meal with a lot of meat, or if my digestion is off for some reason. Which seldom happens..not! :) Another thing that can help with digestion is mastic gum. Not something you need to take every day either, unless you have an ulcer, but sometimes it may help.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#11 GFinDC

 
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Posted 13 July 2012 - 02:34 PM

Hi<
CC is something that l get, because l am the only one on the gluten-free diet, know body has taken me serious except the people on this board. i use ground flax in my gluten-free cereal, l use almond milk, berries, organic sugar, the regularity has finally come back. I take omgea supplement, probotices, vit,d,c a multi they all help, I use a lot of organics, and even there i have a lot of critisim.

I've been told that all this take time,,,,,,,,,,,,,\here's hoping so, because somedays l just fell like l want to sit down and die...

Lewiss


HI Lewis,

I know it can be rough. But if you can stay the course and find your way through the food intolerances maze it can be very worthwhile. It seems very common for other people, even our own family not to understand. Don't get too worried about that, as long as they aren't cc'ing you it doesn't matter a whole lot. Celiacs are only about 1% of the population so we aren't well understood generally speaking. Heck, most people don't even think about what they put in their bodies as long as it tastes good or it's cheap or it has a big advertising campaign behind it. How often do you see people reading ingredient labels at the grocery store? Not often I bet. Most people pic foods out by the picture on front of the package.

It sounds like you are on the right track with your diet. Simple eating is good eating. It is much easier to identify one baddie out of 10 ingredients than it is one baddie out of 100 ingredients. Simple food, simple diet, simple problem.

I feel pretty good most of the time now, I have energy when I get enough sleep and can do things again. 5 years ago I was pretty much a mess and didn't have much hope of getting better. But through lots of slow learning and eliminating bad foods I have gotten better. You can too.

My feet and legs are actually warm now and starting to look like real people's feet. And my toe nails are growing again and way better than before. Even a fungus on one toe went away with no drugs or anything from the doctor.

I still have to be careful of what I eat but it is ok since I feel better. Be patient and keep reading here and know we have been there too or are there right now in some cases. It sure seemed like things would not improve for me but they slowly did. Some strings of months were bad but then I would get better for a while and then get sick again for another 3 or 4 months. That kind of just kept happening for the last 4.5 years. I don''t think most people have that long a recovery but I am a slow learner it seems. The biggest positive change for me recntly was stopping all grapes and all alcohol. Really helped a lot. Darn grapes are bad news for me anyway. Well, enough rambling, keep with it and keep with us is my suggestion. We are not doctors but we live with this condition every day and know how to do that pretty well.

Try to get plenty of rest as your body need lots of lots of it to heal properly. That's always been a problem for me but even that is better. You can get there Lewiss, it may just take some time. Or you may improve much, much faster too.
  • 0
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#12 IrishHeart

 
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Posted 13 July 2012 - 02:42 PM

Yes, firm. And I did not realize high fiber foods would go through undigested. I started back up the probiotics and I'm going to get some digestive enzymes tonight. It's very new for me this whole going every day thing.



Firm is good. Easily passing is good. Daily is good :)

You've hit the trifecta!

If you are concerned about the undigested food, I'll tell you it happened to me since I can recall--my entire life.

And now, it does not. :)

Give your gut some time to heal, hon. It's only been a few weeks.
You have 20- 22 feet of intestines.

I am telling you this is not really a major issue.

Michael F. Picco, M.D. of the Mayo Clinic:

"Occasionally, you may see undigested food fragments in stool. This usually is high-fiber vegetable matter, which isn't digested by the enzymes in your digestive tract. Undigested food in stool generally isn't a problem unless it's accompanied by persistent diarrhea, weight loss or other changes in your bowel habits. If you have such signs and symptoms, consult your doctor."

Okay? okay!

Try the digestive enzymes (without HCL). If you have excessive stomach acid, adding acid is not a good idea. Some celiacs do have low stomach acid and betaine HCL is helpful, but if you do not have this issue, your gut is going to burn.

Try to relax about the BMs. You feel well, right? Enjoy the regularity---the majority of people on here would give anything for it.
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#13 ker0pi

 
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Posted 13 July 2012 - 05:43 PM

You've hit the trifecta!


YEAH!!

Okay? okay!


Yes

Try the digestive enzymes (without HCL). If you have excessive stomach acid, adding acid is not a good idea. Some celiacs do have low stomach acid and betaine HCL is helpful, but if you do not have this issue, your gut is going to burn.


I have had really bad indigestion and heart burn over the years, one of the major reasons I started an organic whole foods diet, I was taking Zantac twice a day and still felt like I was dying half the time.

Try to relax about the BMs. You feel well, right? Enjoy the regularity---the majority of people on here would give anything for it.

Yes, I feel good, I feel incredible. I am off the anti-inflammatory meds, haven't taken a muscle relaxer since I started gluten-free, I have insane energy, and though I still slow down with some pain after physical activities I recover after just 15 minutes of rest instead of being done for the day once I hit that point.
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#14 lewiss

 
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Posted 13 July 2012 - 06:37 PM

HI Lewis,

I know it can be rough. But if you can stay the course and find your way through the food intolerances maze it can be very worthwhile. It seems very common for other people, even our own family not to understand. Don't get too worried about that, as long as they aren't cc'ing you it doesn't matter a whole lot. Celiacs are only about 1% of the population so we aren't well understood generally speaking. Heck, most people don't even think about what they put in their bodies as long as it tastes good or it's cheap or it has a big advertising campaign behind it. How often do you see people reading ingredient labels at the grocery store? Not often I bet. Most people pic foods out by the picture on front of the package.

It sounds like you are on the right track with your diet. Simple eating is good eating. It is much easier to identify one baddie out of 10 ingredients than it is one baddie out of 100 ingredients. Simple food, simple diet, simple problem.

I feel pretty good most of the time now, I have energy when I get enough sleep and can do things again. 5 years ago I was pretty much a mess and didn't have much hope of getting better. But through lots of slow learning and eliminating bad foods I have gotten better. You can too.

My feet and legs are actually warm now and starting to look like real people's feet. And my toe nails are growing again and way better than before. Even a fungus on one toe went away with no drugs or anything from the doctor.

I still have to be careful of what I eat but it is ok since I feel better. Be patient and keep reading here and know we have been there too or are there right now in some cases. It sure seemed like things would not improve for me but they slowly did. Some strings of months were bad but then I would get better for a while and then get sick again for another 3 or 4 months. That kind of just kept happening for the last 4.5 years. I don''t think most people have that long a recovery but I am a slow learner it seems. The biggest positive change for me recntly was stopping all grapes and all alcohol. Really helped a lot. Darn grapes are bad news for me anyway. Well, enough rambling, keep with it and keep with us is my suggestion. We are not doctors but we live with this condition every day and know how to do that pretty well.

Try to get plenty of rest as your body need lots of lots of it to heal properly. That's always been a problem for me but even that is better. You can get there Lewiss, it may just take some time. Or you may improve much, much faster too.

Thanks for the encouragement, just a quick note, my toe nail are in bad shape, my energy was so low, the it hurt to walk, and my my sex life is almost none existance, i don't know if that is too much information, or if it is approperate to say, but i will anyways. Tonight i mowed the lawn, and was tired, but l am starting to get my air back.

Lewiss
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#15 katjones

 
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Posted 13 July 2012 - 10:36 PM

This thread is making me chuckle. I had been under diagnosed for almost 10 years.(a long story for another thread).My DR called me the night of June 15th with my diagnoses and I spent the weekend shopping gluten-free and went totally gluten-free on June 18th. I feel soooo much better. My problem was diarrhea and lots of it ! I was just telling my grown son today that it is weird to be a normal pooper. :) I now go once a day.I don't know what to do with myself and all of this new found freedom away from the throne. :D
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