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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Test Results Help
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5 posts in this topic

I wasn't sure where to post this. I have been off gluten for about 2 years. I still have GI issues. I was hospitalized in 1/12 and 6/12 for GI issues. Here are some recent tests.

My CT scan: "thickening of the distal tranverse colon...descending colon and rectum... consistent with colitis." It also shows a lot of stool burden. There was also thickening seen on a 2007 CT scan.

My colonoscopy: the descending colon mucosa is "erythematous, hemorrhagic, ulcerated, and to show loss of vascular markings suggestive of stercoral ulcers due to constipation." Four biopsies were taken. There also was inflammation seen on a 2007 colonoscopy.

My path report.

Descending colon, biopsy:

- Colonic mucosa with edema and hemorrhage

- No evidence of ischemic injury, inflammatory bowel disease or active inflammation.

I also have elevated SED Rate and Lactoferrin.

I don't think any of this is related to Celiac. But, what would these results indicate? The inpatient doctors said I had "end stage constipation." Has anyone heard of this? They said to take Miralax as a bowel regimen. Something must be causing my constipation/GI issues.

Thank you.

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I'm no doctor but a quick consult with Dr. G(oogle) indicates that these results might be associated with an inflammatory bowel disease...ulcerative colitis or crohns. Good luck with everything and I hope you get answers and relief.

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I wasn't sure where to post this. I have been off gluten for about 2 years. I still have GI issues. I was hospitalized in 1/12 and 6/12 for GI issues. Here are some recent tests.

My CT scan: "thickening of the distal tranverse colon...descending colon and rectum... consistent with colitis." It also shows a lot of stool burden. There was also thickening seen on a 2007 CT scan.

My colonoscopy: the descending colon mucosa is "erythematous, hemorrhagic, ulcerated, and to show loss of vascular markings suggestive of stercoral ulcers due to constipation." Four biopsies were taken. There also was inflammation seen on a 2007 colonoscopy.

My path report.

Descending colon, biopsy:

- Colonic mucosa with edema and hemorrhage

- No evidence of ischemic injury, inflammatory bowel disease or active inflammation.

I also have elevated SED Rate and Lactoferrin.

I don't think any of this is related to Celiac. But, what would these results indicate? The inpatient doctors said I had "end stage constipation." Has anyone heard of this? They said to take Miralax as a bowel regimen. Something must be causing my constipation/GI issues.

Thank you.

I'm confused by the report. Elevated Lactoferrin does point to inflammation and inflammatory bowel disease, and the SED rate is also an idicator of inflammation. Have they tested you for bacterial overgrowth?

Stercoral ulcers (I had to Google that one!) ARE a result of chronic constipation. And they can be dangerous, so you need to take them seriously.

What is your diet like? Do you eat much in the way of fruits and vegetables?

Are you certain you are not getting gluten in your diet anywhere? Have they done any follow-up blood tests to see if you have any celiac antibodies?

Are you active, these ulcers seem to happen more in sedentary people.

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Than you for responding. I have not been tested for bacterial overgrowth. The doctors said the high lactoferrin and sed rate are "nonspecific." I don't know why they ordered them then.

They said the ulcers will heal on their own. The only thing the doctors said was to take Miralax. I wasn't given any other treatment.

I'm some what active and eat fruits and veggies. I have food allergies, so I stay away from those foods. I don't think I am getting glutened. I try to be careful.

I had a celic panel in 2011. The EMA was not ran. Here are the results:

Anti-Gliadin Antibodies

IgG 3 and IgA 1

ranges: 0-19 negative, 20-30 weak positive, >30 moderate to strong positive

Tissue Transglutaminase Antibody IgA <2

ranges: 1-3 negative, 4-10 weak positive, >10 positive

Tissue Transglutaminase Antibody IgG <2

ranges: 0-5 negative, 6-9 weak positive, >9 positive

I have HLA DQ2, DQ8, DR4, and DR7.

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forget the Mirlax omg got deathly ill from it... alot of other things ... are you the one on ASAP board

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