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Test Results Help
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I wasn't sure where to post this. I have been off gluten for about 2 years. I still have GI issues. I was hospitalized in 1/12 and 6/12 for GI issues. Here are some recent tests.

My CT scan: "thickening of the distal tranverse colon...descending colon and rectum... consistent with colitis." It also shows a lot of stool burden. There was also thickening seen on a 2007 CT scan.

My colonoscopy: the descending colon mucosa is "erythematous, hemorrhagic, ulcerated, and to show loss of vascular markings suggestive of stercoral ulcers due to constipation." Four biopsies were taken. There also was inflammation seen on a 2007 colonoscopy.

My path report.

Descending colon, biopsy:

- Colonic mucosa with edema and hemorrhage

- No evidence of ischemic injury, inflammatory bowel disease or active inflammation.

I also have elevated SED Rate and Lactoferrin.

I don't think any of this is related to Celiac. But, what would these results indicate? The inpatient doctors said I had "end stage constipation." Has anyone heard of this? They said to take Miralax as a bowel regimen. Something must be causing my constipation/GI issues.

Thank you.

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I'm no doctor but a quick consult with Dr. G(oogle) indicates that these results might be associated with an inflammatory bowel disease...ulcerative colitis or crohns. Good luck with everything and I hope you get answers and relief.

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I wasn't sure where to post this. I have been off gluten for about 2 years. I still have GI issues. I was hospitalized in 1/12 and 6/12 for GI issues. Here are some recent tests.

My CT scan: "thickening of the distal tranverse colon...descending colon and rectum... consistent with colitis." It also shows a lot of stool burden. There was also thickening seen on a 2007 CT scan.

My colonoscopy: the descending colon mucosa is "erythematous, hemorrhagic, ulcerated, and to show loss of vascular markings suggestive of stercoral ulcers due to constipation." Four biopsies were taken. There also was inflammation seen on a 2007 colonoscopy.

My path report.

Descending colon, biopsy:

- Colonic mucosa with edema and hemorrhage

- No evidence of ischemic injury, inflammatory bowel disease or active inflammation.

I also have elevated SED Rate and Lactoferrin.

I don't think any of this is related to Celiac. But, what would these results indicate? The inpatient doctors said I had "end stage constipation." Has anyone heard of this? They said to take Miralax as a bowel regimen. Something must be causing my constipation/GI issues.

Thank you.

I'm confused by the report. Elevated Lactoferrin does point to inflammation and inflammatory bowel disease, and the SED rate is also an idicator of inflammation. Have they tested you for bacterial overgrowth?

Stercoral ulcers (I had to Google that one!) ARE a result of chronic constipation. And they can be dangerous, so you need to take them seriously.

What is your diet like? Do you eat much in the way of fruits and vegetables?

Are you certain you are not getting gluten in your diet anywhere? Have they done any follow-up blood tests to see if you have any celiac antibodies?

Are you active, these ulcers seem to happen more in sedentary people.

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Than you for responding. I have not been tested for bacterial overgrowth. The doctors said the high lactoferrin and sed rate are "nonspecific." I don't know why they ordered them then.

They said the ulcers will heal on their own. The only thing the doctors said was to take Miralax. I wasn't given any other treatment.

I'm some what active and eat fruits and veggies. I have food allergies, so I stay away from those foods. I don't think I am getting glutened. I try to be careful.

I had a celic panel in 2011. The EMA was not ran. Here are the results:

Anti-Gliadin Antibodies

IgG 3 and IgA 1

ranges: 0-19 negative, 20-30 weak positive, >30 moderate to strong positive

Tissue Transglutaminase Antibody IgA <2

ranges: 1-3 negative, 4-10 weak positive, >10 positive

Tissue Transglutaminase Antibody IgG <2

ranges: 0-5 negative, 6-9 weak positive, >9 positive

I have HLA DQ2, DQ8, DR4, and DR7.

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forget the Mirlax omg got deathly ill from it... alot of other things ... are you the one on ASAP board

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    • That's great to hear you are feeling better Nightsky.  I really think when our GI systems are in distress already that it doesn't take much to set off symptoms.  Once I eliminated the other foods that cause me symptoms that helped a lot too.  And added some extra vitamin D to my diet and selenium. Many of us have developed reactions to other foods besides gluten and need to avoid them to keep symptoms at bay.  For me nightshades, carrots, soy, dairy, and celery all cause symptoms.  It took me awhile to figure out all those food culprits, but it made a big difference getting them out of my diet. But we are all individuals, and our bodies react individually.  So you may or may not have additional food intolerances develop. Celiac is one of those life journey things and we learn as we go.  Just keep the bottle of aspirin handy!
    • I know that Lea & Perrins Worcestershire Sauce  in the US is gluten free, I also know that in Canada it is NOT. This is a very reliable site: http://www.glutenfreedietitian.com/vinegar/ But it is in the US. I'm agast that the Irish Celiac Society says malt vinegar is gluten free.  I wouldn't use it. No sense taking any chance at all.
    • You should never have cut out gluten until you had the biopsy done. It's much worse to have to go back on after you've been off gluten for a while. There's no way I could ever do the gluten challenge after being off gluten for even a month because my reactions got so dramatically worse.  Stress definately can trigger celiac- before I was diagnosed - it got the worst after surgery and after a stressful time planning my daughters wedding. 
    • Hi not diagnosed celiac, Welcome to the forum! Your doctor should be sent to remedial celiac disease training.  Since that probably won't happen, I suggest you find a new doctor.  He doesn't know what he's doing when it comes to diagnosing celiac disease. You should not have gone gluten-free before completing all celiac disease testing.  The testing for celiac disease depends on the immune reaction being active.  Removing gluten before testing removes the antigen that causes the immune system to react, and lowers the chances of getting a correct test result dramatically.  The University of Chicago celiac disease center recommends: ******************************************** http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ Prior to blood testing we recommend 12 weeks of eating gluten. Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten. In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy. May, 2013 ******************************************** So you will need to go back to eating gluten before your endoscopy.  That may cause worse symptoms than before when you were eating gluten.  So it would have been better to do all testing before going gluten-free. Can you search for a celiac disease support group in your area?  They exist in many parts of the USA and world.  They can be a good place to get a knowledgeable doctor recommendation.  There is also a doctors subsection of this forum where you can search to see if any doctors in your area were recommended.
    • Hi All, I'm new to this and very confused! I have Lea & Perrins WC sauce, it lists it's first ingredient as Malt Vinegar.  I have the Coeliac Society of Ireland Food List 2015 here, and it says "All Vinegars are Gluten Free including Malt Vinegar." Doesn't that mean that L&P Worcestershire sauce is safe?   Their website states " Lea & Perrins® Worcestershire Sauce is cholesterol free, fat free, preservative free, gluten free and has 80% less sodium than soy sauce. " I'm cooking for my coeliac niece, can't afford to make a mistake!
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