Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Please Read & Respond
0

8 posts in this topic

It's me again, the woman who's glutened by cat litter and dog food. But maybe not? I take a beta blocker called Bisoprolol (Ziac) to prevent migraines. Been taking it for about 4 years. Developed some mild reactions (blurry vision, loose stool) after about a year and stopped it, but the migraines won out and I started taking it again about 3 years ago, as it totally prevents them.

Tonight I decided to research the side effects of beta blockers just to see if maybe some of my symptoms might be related to this drug and this is what I found (I bolded my current symptoms):

"Many side effects have been reported from these medications, including rash, anaphylactic shock (sudden unconsciousness or death), slowed heart rate, low blood pressure, cold extremities, worsening of heart failure, fainting, rapid heart beats, dizziness, fatigue, headache, depression, sleep disturbances, nightmares, hallucinations, short term memory loss, high or low blood sugar, stomach ache, flatulence, constipation, nausea, diarrhea, dry mouth, vomiting, heartburn, bloating, impotence or decreased libido, difficulty urinating, bronchospasm, cough, wheezes, nasal stuffiness, joint pain, and muscle cramps."

I was originally prescribed one 2.5 mg pill a day but usually take 2 because in the beginning one didn't always prevent the migraines but 2 did. Now I'm wondering if I developed an allergy to this medication and if some or all of my symptoms are related to these beta blockers. If I stop taking these the migraines will come back.

Apparently all beta blockers have the same side effects, and they are also known to prevent migraines. I'm wondering if my symptoms are responding to being gluten free because it is helping the symptoms, which may or may not be caused by celiac disease.

Any suggestions would be greatly appreciated. Thanks.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hmmm....all I can say is that ALL my migraines disappeared after I went gluten free. I'd been plagued by migraines since I was 18 and I'm now 55.

1

Share this post


Link to post
Share on other sites

It's me again, the woman who's glutened by cat litter and dog food. But maybe not? I take a beta blocker called Bisoprolol (Ziac) to prevent migraines. Been taking it for about 4 years. Developed some mild reactions (blurry vision, loose stool) after about a year and stopped it, but the migraines won out and I started taking it again about 3 years ago, as it totally prevents them.

Tonight I decided to research the side effects of beta blockers just to see if maybe some of my symptoms might be related to this drug and this is what I found (I bolded my current symptoms):

"Many side effects have been reported from these medications, including rash, anaphylactic shock (sudden unconsciousness or death), slowed heart rate, low blood pressure, cold extremities, worsening of heart failure, fainting, rapid heart beats, dizziness, fatigue, headache, depression, sleep disturbances, nightmares, hallucinations, short term memory loss, high or low blood sugar, stomach ache, flatulence, constipation, nausea, diarrhea, dry mouth, vomiting, heartburn, bloating, impotence or decreased libido, difficulty urinating, bronchospasm, cough, wheezes, nasal stuffiness, joint pain, and muscle cramps."

I was originally prescribed one 2.5 mg pill a day but usually take 2 because in the beginning one didn't always prevent the migraines but 2 did. Now I'm wondering if I developed an allergy to this medication and if some or all of my symptoms are related to these beta blockers. If I stop taking these the migraines will come back.

Apparently all beta blockers have the same side effects, and they are also known to prevent migraines. I'm wondering if my symptoms are responding to being gluten free because it is helping the symptoms, which may or may not be caused by celiac disease.

Any suggestions would be greatly appreciated. Thanks.

Did you get any of those symptoms before you increasesd your dose? And did you choose to increase the dose or did your PCP make that decision? 😊

1

Share this post


Link to post
Share on other sites

Hmmm....all I can say is that ALL my migraines disappeared after I went gluten free. I'd been plagued by migraines since I was 18 and I'm now 55.

Ditto. I haven't had a migraine since I went gluten free. Except for a couple of times when I was severely glutened by accident.

0

Share this post


Link to post
Share on other sites

I think the symptoms started before I increased the dose. Then I went off for a few months and went back on b/c of the migraines. I increased the dose myself as 2 did the job better than one and I did let my PCP know. I used to take Caffergot suppositories and they did a great job but Novartis took it off the market years ago. When I realized Ziac prevented them I was thrilled. The migraines were the 12 hour vomiting (sorry!), sleeping-on-the-bathroom-floor-unable-to-leave-the-room migraines. I was medically excused from Jury Duty for 20 years because of my unpredictability because of them. I had no digestive symptoms, no rashes. I saw a headache specialist at Mt. Sinai every month for years and all he could do was to monitor my reaction to the meds.

Regardless of whether my current symptoms are due to gluten or an allergy to Ziac I must stay off gluten because it is greatly helping my symptoms. I'm seeing my doctors in August and September for routine exams (including a colonoscopy and endoscopy this year) and between now and then plan to strictly adhere to a gluten free diet and gently reduce the Ziac. If I get a migraine I'll adjust accordingly.

Right now my goal is reversal of all symptoms. The most prevalent are DH, bloating, heartburn, knee pain going down steps. The migraines are gone because of the Ziac. We'll see what happens as I reduce the amount. At this moment my forearms are covered with DH sores but the itchiness is mild and my arms look better than they did last week.

If DH is sensitive to gluten I'm glad I have it, because it's a warning sign that I ate something bad, and I'd rather be warned than not. And truthfully I'd rather be warned in a painful miserable way than a slight tap on the head. Having DH also makes it easier to physically show doubters that gluten intolerance is a real, physical thing that causes real, physical damage.

0

Share this post


Link to post
Share on other sites




You should be eating a full gluten diet if you are doing an endoscopy to diagnose Celiac. Being gluten free for several months can heal or partially heal your small intestine. Then the Docotor will say, " See. You don't have Celiac.".

0

Share this post


Link to post
Share on other sites

Hi Kareng, I'm not having the colonoscopy and endoscopy to test for gluten intolerance. I'm having those tests as a normal part of health care for a woman my age. I don't plan to get pregnant at 65 (:D) and have no kids to test. I don't need a formal diagnosis and truthfully self-diagnosing based on symptom reduction seems to be the most reliable test out there. Being told by a doctor that I 'officially' have Celiac Disease, or being told that I 'officially' do not is not going to change how I eat. My symptoms will change how I eat, and already have, so I don't see the point of poisoning myself and suffering to take some tests that might or might not be accurate.

Regarding a possible allergy to Ziac and other beta blockers my game plan is to stay gluten free and slowly but surely, gently reduce the drug. I do not have high blood pressure but I will gently reduce the drug as I strictly adhere to the gluten free diet. Time will tell. Again, being tested will not change anything, so why do it?

1

Share this post


Link to post
Share on other sites

P.S. Isn't the idea here to reduce the damage to the intestines? Does it make sense to start the healing process and then re-damage my intestines just to be tested, especially since the results are iffy at best? If eating gluten free is healing my intestines and making me feel good that's good enough for me, regardless of whether the initial damage was caused by a gluten intolerance or an allergy to beta blockers. If sticking to this diet reverses my symptoms I'll stick to it for life, and work with a dietician or nutritionist (not sure of the difference) re supplementing with vitamins, etc. As my dad used to say: "If something works, don't fix it."

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,365
    • Total Posts
      920,553
  • Topics

  • Posts

    • Just a quick one to say I got a diagnosis of celiac disease today. I know in the past it's been helpful for me to know the outcome for other folk, so thought I would update. The moral of this story is even with a VERY borderline blood test it's worth persisting. thanks for all the help Sue 
    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
    • Hi DKH0614, I use aspirin, Pepto Bismol, and peppermint tea or Altoids peppermints.  Pepto Bismol has a soothing effect on the gut.  Pepto Bismol also has aspirin in it.  Peppermint is helpful for relaxing smooth muscle tissue and getting gas out of the stomach. As per KarenG, you may be reacting to dairy.  Dairy has a sugar called lactose in it that some people with celiac have a hard time digesting.  You could try avoiding dairy for a few weeks to see if that helps.  Or try taking lactaid type pills when you eat dairy. It doesn't take very much gluten to cause an immune system reaction.  So it is important to avoid even traces of gluten if possible.  The stuff is hard to avoid sometimes if people around you don't understand how much a small amount of it can affect your body. Let us know if we can help with any  more questions, or if you have concerns we haven't addressed. And welcome to the forum! Also, if you subscribe to the thread (notify me of replies) you'll get an email when people respond to your thread.    
    • After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac.  Perhaps you need to find out what is really causing your issues?  Dairy/ lactose is an obvious first place to look.
    • Hi! I am 15 and have been diagnosed with celiac disease for about a year and a half now and I am woundering what do some of y'all use to relive some of the abdominal pains that come along with celiac/gluten allergies?  ( Ibuprofen,  Tylenol, etc.) 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,440
    • Most Online
      1,763

    Newest Member
    Cygnusx1
    Joined