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Anyone With gluten-free Kids In St. Louis


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#1 October3

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Posted 15 July 2012 - 10:25 AM

I'm looking to connect with other parents of gluten-free kids in the St. Louis area, and also perhaps find a gluten-free friend for my 7 yr old son who is feeling so left out and lonely right now. Anyone out there?
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#2 kareng

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Posted 15 July 2012 - 11:11 AM

Did you try your local Celiac Support group? A lot of them have activities or get-togethers for kids. google "Celiac group st louis"
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#3 October3

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Posted 15 July 2012 - 01:55 PM

Did you try your local Celiac Support group? A lot of them have activities or get-togethers for kids. google "Celiac group st louis"


I did. There is a R.O.C.K. group listed but the contact phone number is disconnected. There is a support group but they only get together once a year and it was in May. I was hoping to meet someone before next May.
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#4 kareng

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Posted 15 July 2012 - 02:23 PM

I did. There is a R.O.C.K. group listed but the contact phone number is disconnected. There is a support group but they only get together once a year and it was in May. I was hoping to meet someone before next May.



That's weird. Let me see if I can find something out. I'm in KC.
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#5 kareng

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Posted 15 July 2012 - 02:35 PM

Is this the ROCK one you had?


O'Fallon - Support Group
Contact: Beth Anne Miller
7264 Sweetcider Lane
O'Fallon, MO 63366
Tel: (636) 294-2037
E-mail: Frankbethm@aol.com
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#6 kareng

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Posted 15 July 2012 - 02:39 PM

These are from the celiac.com page. Down the left side " support groups". Then the link to local groups. I am trying to get a hold of someone I know in St Louis to see if she has anything for you.

St. Louis - Support Group
Contact 1: Bill Vellios Sr.
St. Louis Chapter (CSA)
812 Kehrs Mill Road
Ballwin, MO 63011-2442
Tel: (314) 391-6855
Contact 2: Joan Fitzsimmon
6716 Westway Road
St. Louis, MO 63109
Tel: (314) 351-5114
Contact 3: Linda Ritter
E-mail: nltr@charter.net
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#7 October3

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Posted 15 July 2012 - 03:28 PM

These are from the celiac.com page. Down the left side " support groups". Then the link to local groups. I am trying to get a hold of someone I know in St Louis to see if she has anything for you.

St. Louis - Support Group
Contact 1: Bill Vellios Sr.
St. Louis Chapter (CSA)
812 Kehrs Mill Road
Ballwin, MO 63011-2442
Tel: (314) 391-6855
Contact 2: Joan Fitzsimmon
6716 Westway Road
St. Louis, MO 63109
Tel: (314) 351-5114
Contact 3: Linda Ritter
E-mail: nltr@charter.net


Thanks Kareg. Yes, I believe the info you had for the R.O.C.K. group is the same one I came across although I don't remember there being an email address. I'll have to see if that gets me anywhere.

I called all of the contacts listed above and got a call back from Joan who directed me to the Bi-State Celiac Alliance or something like that (can't remember now the exact name but it had Bi-State in it) and that is the group that has a picnic once a year in May but otherwise doesn't seem to get together. It seemed from her message that Joan would have been happy to talk with my by phone about navigating issues or she specifically mentioned recipes but she wasn't able to connect me with anyone who has kids dealing with being gluten-free which is what I'm looking for right now.
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#8 October3

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Posted 15 July 2012 - 03:30 PM

The Bi-State Celiac Support Group is the name of the group I was trying to recall.
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