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Going Gluten Free ?


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30 replies to this topic

#1 SteveW

 
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Posted 07 January 2004 - 03:21 PM

HI
I've been gluten free for 1 month now and in some ways I feel much better.
Stomach and intestinal track have stopped hurting and I feel like I have more control over my need to use the bathroom. I still have bad day's but that's to be expected.
The thing is my bowel movements returned to normal( solid-formed stool) after 1 1/2 week being gluten-free. Since then I could feel things getting worse again(diarrhea) and I'm not sure why. I know that I had a reaction to a Calcium Sup I was taking so I stopped that. I took the pill for 5 days and stopped on Sat(1-3-04) so its been 4 days and I still don't feel right.

Is it normal when in the recovery phase for diarrhea to come and go regardless of accidental ingestion of Gluten?

I'm eating a very very very limited diet right now. If I am getting gluten I don't know what else I could elimanate?

Thanks
Steve
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#2 seeking_wholeness

 
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Posted 07 January 2004 - 05:29 PM

Steve, would you mind posting a list of what you do eat so we can scratch our heads together :D ? Possible non-gluten culprits that come to mind immediately are lactose and fruit sugars. These can be impossible to digest through a damaged bowel, but you don't notice that they might be a problem until you have eliminated gluten!
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Sarah
gluten-free since November 1, 2003

#3 SteveW

 
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Posted 07 January 2004 - 06:16 PM

Ok,
Meats-Chicken, Steak, Fish and Eggs-All fresh cooked in olive oil or butter.
Salt is the only seasoning I use at this time.

Grains-Jasmine Rice or Sweet Potatoes

Veg-Frozen mixed veg, carrots, and onions. I tried fresh steamed Broc and it sent my system into overdrive, so no Broc.

Fruits-Apple, Oranges, and Bananas(Although I've believe the Bananas are giving me heart burn)

Peanut butter(with the apple)
2 cups of home brewed coffee(Starbucks )
2 Pepsis a day
3/4 gallon of water daily
1 Freeda Multi Vit

All my pans are new along with cooking utensils.
Tom's of Maine Soap and Toothpaste. Dishwashing liquid is on the safe list.

Things I know I can't handle right now are:
Soy
Most Milk Products
99% of the supplements I tried
Any Spice including Pepper

Thanks
Steve
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#4 JsBaby_G

 
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Posted 08 January 2004 - 05:52 AM

Steve,

Eliminate the Pespis. I found that drinking Coke or Pepsi gave me the runs too. Other than that, everything sounds ok. It is possible sometimes that it takes your body a while to adjust and since you are so used to being sick after you eat for example your body goes through the motions without good reason for it. Do you get the same pain with your bowel movements? I know these are personal questions but we all go through the same thing.

Hope you feel better!
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Crystal

#5 seeking_wholeness

 
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Posted 08 January 2004 - 08:43 AM

Steve,

Yes, broccoli can be extremely hard to digest and cause a lot of gas and other discomforts--or is that what you meant? I find that oranges and tangerines give me heartburn, and bananas cause intestinal cramping for me. I am mostly eating apples and pineapple (canned in juice, NOT syrup--the syrup may not be gluten-free!) right now, but since these are quite sugary fruits my stools are often on the loose side. I bet I would do better with grapefruit and frozen blueberries!

I don't know how sensitive you are to lactose right now, but butter definitely contains small amounts. Clarified butter (ghee) does not and is excellent for colon health, but it is rather expensive.

I second JsBaby's suggestion to ditch the Pepsi, as well. Not only is it nutritionally vacuous, carbonated beverages of any kind can also seriously impair your body's ability to digest protein. It depends on how much gastric juice your body produces in the first place--if you produce very little, carbonated beverages reduce the amount even further, and you end up with heartburn and other troubles! (I have read that heartburn is usually NOT related to an excess of acid, as is widely believed, but rather to a deficiency of acid causing food to sit undigested in the stomach until it ferments--yuck! I have certainly noticed that I have no heartburn at all after eliminating from my diet those foods that I knew "sat around" in my stomach for a while.)

Another question: I assume that the Starbuck's coffee is unflavored, right? I believe that flavored coffees often contain gluten (to make the spray-on flavoring stick to the beans). Even if you are using unflavored coffee, you may want to call the company to inquire about potential cross-contamination on the conveyor belts. Washing the lines between products may not be sufficient; dedicated lines are really the only way to go (well, a dedicated facility is best, but most companies can't afford that!).

The rest of your diet looks excellent--especially the quantity of water you drink. Hydration is still one of my biggest stumbling blocks! I hope you track down the culprit soon!
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Sarah
gluten-free since November 1, 2003

#6 SteveW

 
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Posted 08 January 2004 - 03:01 PM

JsBaby,
Anything but the Pepsi :(
I love soda.
Oh well I'll give it a shot without the fizzy stuff.

Not really having pain like I use to. Just the loose stool and the constant urge to move my bowels.


Seeking Wholeness

The Starbucks is Regular.It's on a gluten-free list that I read.
But I will check with the company.

Yes Broccoli gives me gas and gets my bowels a movin'.

Can I get Clarified butter in a regular Supermarket?
Brand?

Thank you both very much.
Steve
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#7 wclemens

 
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Posted 08 January 2004 - 08:57 PM

Steve, it took me a long time after going gluten free to realize that butter, egg whites, and yeast were poison for my system (as well as all milk and dairy).

You could go to a meat and vegetable diet for a couple of days, then start adding back foods and see how you react. I've done that, and it is a real eye-opener.

Steve, you might want to try Imperial Margarine if you are trying to find a replacement for butter. I use it all the time and feel great, and all other
butter substitutes have not been as effective. It is even great to use with
lobster, in place of butter.

I switched from Pepsi to Diet Rite Raspberry, Caffeine free diet Dr. Pepper, diet A&W Root Beer, and a wonderful diet soda called Canfields' Chocolate Fudge. It is so good, and I really enjoy it because I am allergic to all milk and dairy, so chocolate is usually out, but this is easy to digest and tolerate.

Good luck! Welda
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#8 seeking_wholeness

 
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Posted 09 January 2004 - 07:51 AM

Steve,

I use Purity Farms ghee. I buy it at my local health food store or Whole Foods Market, but I MAY have seen it (or another brand) available at the "higher-class" regular supermarket in my area--I can't remember, since it has been awhile. Good luck finding it!

--Sarah (Don't know what happened to my sig last time!)
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Sarah
gluten-free since November 1, 2003

#9 Guest_LisaB_*

 
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Posted 09 January 2004 - 06:58 PM

Just want to add that I get sick everytime I have Starbucks coffee, don't think it is gluten, I think they treat their beans with something chemical...I feel so terrible for several hours and it puts a damper on the whole day.

I love coffee, but always had some bad effects if drinking reg. coffee, but I decided before giving it up I would try organic...I did and all my problems went away. The jitters, ect. people get from coffee isn't from the caffeine folks! ;) I can drink organic all day long and not a jitter now!

Lisa
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#10 JsBaby_G

 
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Posted 09 January 2004 - 07:44 PM

Steve

I can totally sympathize. I love Coke too, at least give it a shot for awhile to see if you feel better. I'm ok with 7 up or Sprite. I think it's the colouring especially caramel color. Think about it, what's Pepsi even suppose to taste like? All other soda is made to imitate a flavor found in nature, but Pepsi?? If it's it own flavor probably not the best thing to put in your body.
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Crystal

#11 Lily

 
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Posted 11 January 2004 - 06:57 AM

Hi everyone,
I too am a Pepsi lover but am giving it up. I read somewhere that colas have gluten in them. My nutritionist said I must also give up coffee of all kinds. It's hard on everyone, but especially those with a sensitive system. Here's something I had posted about supplements on another message.....

PS.........I just wanted to let everyone know to be careful of the supplements you buy. My nutritionist says she has only found 4 or 5 brands that are safe for gluten allergies. Many supposed gluten free products still dust their lines with flour. The following products are what she has deemed safe for me as far as supplements go....

Tyler Products
Metagenics Products
Oregon Health
KTS Liquid Minerals

My P-5-P I can't find the company on, but this is a start if you are interested. I realize everyone may not be as sensitive as me, but she has told me if it is processed, be suspicious! She only recommends Knudsen fruit juices, etc.. Once I totally detoxify myself I'll have to see what I'm truly allergic too.

All of this is costing a small fortune, but I am excited to find out what it feels like to be healthy.


I also hear keeping a food diary helps when adjusting. Peanut butter would bother me, so maybe that is bothering you too?

Good luck,
Lily
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#12 SteveW

 
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Posted 11 January 2004 - 06:08 PM

Thanks for the helpful suggestions.

I've decided to cut out the Eggs,Soda, and Coffee for a week and see if that helps.

It's only been a month and my system feels better in many ways except for those 2 or 3 Bad days a week.
That's an improvement from the 2 months of pain,weight loss(25 lbs) and constant trips to the bathroom.

Thanks Again
Steve
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#13 bigapplekathleen

 
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Posted 11 January 2004 - 06:46 PM

Hi Steve...

Have you thought about contamination from your pots/pans/toaster/bread board/cutting board/colander? What about lip things (like chapstick, which is indeed gluten-free) or hand lotions (since you can ingest hand lotion without realizing it) ?

You might want to keep a food diary and symptom diary to see if you can completely narrow things down.

Have you seen a nutritionist who specializes in Celiac?

I wish you the best -

Kathleen
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#14 aldociao

 
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Posted 11 January 2004 - 09:12 PM

Steve (and all other coffee users)

I hesitated to post this information when I came across it in a book a couple of weeks ago because I know how strong feelings can be about "our daily coffee." But what I read caused me to eliminate coffee from my diet. (I've been gluten-free, except for the occasional accident, for 6 wks.) But that's not important, but I think it's important to say that there has not been any noticeable difference in the way I feel since I've stopped. That could be because I've not been a heavy or even a moderate user of coffee. Could be because I am one who doesn't have severe or even many symptoms, and yet, as many on this board stress, damage could be going on nonetheless. And, of course, it could be there is no validity to what I read. But that is for you to decide.

Like most things in this very confusing field of nutrition, health and disease, and especially with celiac disease, it's difficult to know for sure what is the truth. And because of what has been called our biochemical individuality, what holds true for one might not for another. So, before posting this information I wanted to go back to the book where I read it--a library book--and quote exactly. Each of you can then come to your own conclusion about whether it makes sense to act on the information given.

The book: "Healing with Whole Foods: Asian Traditions and Modern Nutrition," by Paul Pitchford, 3rd Edition, published 2002. It is a massive book, obviously the work of a lifetime, by a very caring and knowledgeable researcher--these qualities are evident on every page of this book. It is stunningly comprehensive and, for me, much of what Pitchford says resonates with what I've read and accepted from other alternative approaches. The quote is from p. 208:

The acid in coffee eats away the villi of the small intestine [can't be more direct or blunt than that for the CDer], reducing their effectiveness in supporting nutritional assimilation....to aid in restoring a coffee-ravaged small intestine, use nettle leaf (urtica urens) [I bought urtica dioca from Whole Foods--they determined that it is the same plant, only one is a dwarf species; chemically they are identical, they said.] tea, two or more cups daily, for at least six weeks. "

He goes on to say that de-acidified ground coffee is available. (This was news to me, and may not be easy to find.) Also he mentions that coffee makers which use a cold-water method to remove the harmful acids can be found in kitchen supply stores.

I have mixed feelings about posting this. Please know that I hope the information is not correct. But until I know for sure that something is not going to harm me, whether gluten or not gluten, I will avoid it. Perhaps some of you are already familiar with this charge, and may be able to throw more light on it, hopefully dismissing it as untrue. --Aldo
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#15 SteveW

 
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Posted 13 January 2004 - 03:24 PM

Well I stopped the Soda and Coffee for 4 days and I feel even worse.

Not to mention what a nut job I was at work. <_<

I'm reall frustrated.There are so many things to look out for.It's overwhelming.


Does anyone know of a good Brand Name gluten-free hand lotion?
It's so cold and dry outside my hands are cracking/bleeding but I'm afraid to use any lotion without knowing if it's gluten free.
Soap too?

Thanks
Steve
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