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Going Gluten Free ?
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31 posts in this topic

thank you very much for the info! Hope everyone is doing great, have a wonderful weekend! Dawn :D

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Update.

Well I'm now Soda and Coffee Free for the first time in 20 years!

It was hard to do but my stomach thanks me and I sleep so much better.

I'm finally getting some results from the diet. I

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Steve,

That's a pretty solid basis for a healthy diet, even if it probably does get a bit boring at times. I'm glad your body is happy about being caffeine-free. I chose to give up caffeine completely (even decaf drinks) several months ago, and it worked wonders for me. It was HARD, though--even harder for me than going gluten-free turned out to be!

A question: I have seen some brand of Jasmine rice that was enriched, but I can't remember what it was called. Is Carolina brand enriched? Sometimes the vitamins they spray on white rice are derived from BARLEY, and customer service representatives often don't have much information available to answer "technical" questions like we have to ask!

I'm glad you're doing better, and I hope you continue to see progress!

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Sarah,

It's Carolina and it is enriched. That must be whats bothering my system.

You're so right about Customer Reps.I'm starting to realize that 99% of the people I talk to have no idea how many ways gluten get's in/on food.

Steve

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Cold-water coffee - we have used a Coffee Toddy for years (20+) and have given one to every member of our family (to varying degrees of acceptance). It's basically a plastic bucket/bowl, with a filter in the bottom, and a plug below that. You fill it up with a can of ground coffee, add water to the top, and let it set a day or two. Drain it into a carafe and keep it in the refrigerator. Then you use it like instant, putting a 1/4 inch in the bottom of your cup and filling it with boiling water. It's smooooth and acid free, and I think it's the best tasting coffee in the world. Those who love the bite of Starbucks don't like it as much - they feel like it's too weak, but since you can control how weak or strong it is, that's not the problem. They're just missing the acid. We take a jarfull on our trips, so we always have our favorite coffee, with no more hassle than boiling water. It's nice to know that something that tastes so good might actually be compatible with my new gluten-free diet!

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My nutritionist has me eating off of the Blood type diet...........I am type B. Chicken is not allowed, it contains something in it that agglutinates the blood, whatever that means, but it will slow me down and make me feel icky. I do feel better and haven't had any chicken for about 6 months. Chicken and pasta used to be my staples before Celiac.........no more :(

Lily

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    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of all grains, with the exception of rice which I reintroduced using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
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