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4 replies to this topic

#1 StephanieL

 
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Posted 17 July 2012 - 09:55 AM

I am so excited! After 2 years gluten free, DS's ttg's are FINALLY NORMAL!!!!

We have been strict and cold not figure out why there were still not WNL. I started poking around here and got some great leads and after demanding more testing and new Dr's we figured out DS also had hypothyroidism. This was in Jan/Feb of this year. So here we are in July with 5 months on synthroid and he's finally under 20!!! I am not happy they they didn't tell me what his number was (according to the Dr. they just say "below 20" which I am not sure I buy). Still thinking of doing more Dr. shopping. It was absolutely ridiculous that he couldn't have called me with the results since we are 2 years into this dx and DS is totally asymptomatic. That was annoying but hey, we know now that his levels are good and I am a happy Mama!
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#2 beachbirdie

 
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Posted 17 July 2012 - 11:47 AM

I am so excited! After 2 years gluten free, DS's ttg's are FINALLY NORMAL!!!!

We have been strict and cold not figure out why there were still not WNL. I started poking around here and got some great leads and after demanding more testing and new Dr's we figured out DS also had hypothyroidism. This was in Jan/Feb of this year. So here we are in July with 5 months on synthroid and he's finally under 20!!! I am not happy they they didn't tell me what his number was (according to the Dr. they just say "below 20" which I am not sure I buy). Still thinking of doing more Dr. shopping. It was absolutely ridiculous that he couldn't have called me with the results since we are 2 years into this dx and DS is totally asymptomatic. That was annoying but hey, we know now that his levels are good and I am a happy Mama!


You might ask the doctor's office what the reference range is for the test, even get a copy for yourself. Many labs have ranges similar to "<19", so if your DS is under 20, that is the limit below which they simply cannot detect an exact number.

So, sounds great, and that is awesome news to receive! Congratulations!
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1999 - Hypothyroid
2003 - Hashimoto's Disease
2008 - Diverticulitis
2009 - Significant Vit D Deficiency
2011 - Diverticulitis again
2011 - HLA-DQ2.2
2012 - TtG IgG positive... I am now, finally, Gluten Free - 5/16/2012

#3 StephanieL

 
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Posted 17 July 2012 - 11:59 AM

Yes, I knot the reference range was under 20 but I have always heard numbers below that from people and was hoping I would as well. Again, it's within normal limits so I guess I shouldn't concern myself with it ;)
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#4 MitziG

 
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Posted 17 July 2012 - 12:13 PM

That is good news. Just a thought...really a theory I have...my DS was hypothyroid as well, but not on meds as it was minimal and I wanted to wait a bit to see if being gluten-free helped. 1 year gluten-free and it actually was a little worse. And his ttg remained elevated. Then we went casein free as well, and 3 mos later his ttg was normal and thyroid had fallen 4 points to well within normal.

Perhaps it is coincidence...but I know now when he gets casein he reacts badly to it, wheraxs before I thought it wasn't an issue for him. I am curious how many thyroid issues may be caused by food related inflammation.
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#5 StephanieL

 
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Posted 17 July 2012 - 12:21 PM

My son has had milk once in his life. He has an anaphylactic allergy to it so that is a good theory (and I know so much gluten and dairy issues go hand in hand) but that's not the case with him.
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