Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

When Did Your Neuro Symptoms Subside


ker0pi

Recommended Posts

ker0pi Rookie

Hello,

I've been gluten-free for 4 weeks now and have seen a ton of my physical symptoms subside or reduce but my neuro symptoms, mainly forgetfulness, saying the wrong words and drifting off mid sentence or thought, like I just did trying to come up with the third symptom I just listed have not resolved. I don't walk into walls or door jams any more and my balance is greatly improved.

Did you have these types of symptoms? How long did it take before you saw a huge improvement in them?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



UKGail Rookie

I found the worst of the forgetfulness and inability to focus improved within a couple of months. I can now shower in the morning without having to really think hard about whether I have just rinsed shampoo or conditioner out of my hair. However, after nearly a year, I am still forgetful about shopping lists etc, and it is still a struggle to focus properly at work.

Link to comment
Share on other sites
robertwilburn35 Newbie

I am usually "ok" and have been gluten free since march 6 this year. but last week at chuch i wasn't thinking and took the bread for communion and today I am still foggy but better. For me the 2nd to 3rd day after a glutening is when fog head sets in. before that its usually the GI symptoms.

Link to comment
Share on other sites
ker0pi Rookie
I can now shower in the morning without having to really think hard about whether I have just rinsed shampoo or conditioner out of my hair.

I am so relieved that I'm not the only one who does that!

Link to comment
Share on other sites
ker0pi Rookie

but last week at chuch i wasn't thinking and took the bread for communion

I am very lucky, one of my priest's dear friends who is also a priest is a Celiac and when I went to my priest about my diagnosis she consulted her friend about how to handle communion with regard to me. I get special rice wafers and she puts it in a small dish for me before the service begins to avoid CC then I take it out myself when she presents it to me. I keep going back and forth on the wine though. So far it hasn't appeared to give me any CC glutening, I get served first after my priest and the acolyte to reduce any chances, but I don't yet know what my reaction will be when I get accidental glutening. I might gluten myself after 3 or 4 months just so I know it when it happens.

Link to comment
Share on other sites
jerseyangel Proficient

Hello,

I've been gluten-free for 4 weeks now and have seen a ton of my physical symptoms subside or reduce but my neuro symptoms, mainly forgetfulness, saying the wrong words and drifting off mid sentence or thought, like I just did trying to come up with the third symptom I just listed have not resolved. I don't walk into walls or door jams any more and my balance is greatly improved.

Did you have these types of symptoms? How long did it take before you saw a huge improvement in them?

I found that these eased up gradually for me and by about 6-9 months were about gone except when accidentally cross contaminated. The neuro symptoms can take a while.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,161
    • Most Online (within 30 mins)
      7,748

    Nehad
    Newest Member
    Nehad
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • CatherineWang
      I'm pretty sure that in stores, you can find plenty of gluten-free options. But they are usually a bit more expensive.
    • cristiana
      Hello @BunnyBrown and welcome to the forum. I cannot say that I have had the procedure you describe, but recently I did have general surgery and was routinely intubated.  That pain was what troubled me most after the operation, far more than the operation site.  It took a few days to really settle down, I was quite badly bruised. It was taking so long I was a bit concerned so asked the question on another forum. A few patients came back to me and said they had suffered the same.  I imagine in my own case possibly the throat got bashed about a bit,  maybe they had difficult inserting the tube?  I've suffered with a painful throat post-endoscopy too, but never as long as the intubation pain.   I hope you will be feeling better very soon.   PS BTW - love the name!  I saw this today in an Easter display in a shop and your name reminded me of it.🙂  
    • cristiana
      This wonderful, Anne. I think you have a point about why people disappear off forums.  I found the first few years post diagnosis a real struggle and frankly wondered if I would ever feel better (not to dishearten people, but just to say it can take a while longer for some folk to heal).  However, once my antibodies were back within normal range it really has made a big difference to my health.  I've chosen to stick around because I'm a Mod, otherwise I might have been one of those that disappeared, too!      
    • Exchange Students
      Yes absolutely, we work with all public schools and some private schools in all 50 states.
    • Scott Adams
      Just a quick question, can the host live in any state in the USA?
×
×
  • Create New...