Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Could Celiac Disease Be Causing My Other Health Issues?
0

6 posts in this topic

Hello all,

I am new to posting in forums about Celiac Disease but I am very excited to begin. My name is Danielle and I am a 21 year old recent college graduate. I was diagnosed with Celiac Disease in early 2009. I was also diagnosed with GERD, Chronic Migraines, Carpal Tunnel Syndrome and Cavus Foot Deformity before and after my Celiac diagnosis. Recently, I lost my health insurance through the government when I turned 21 and of course I had several tests and procedures scheduled afterwards. In addition to gluten, I try to stay away from dairy too.

My symptoms of Celiac include cramps, gas, bloating, diarrhea, easy bruising, iron deficient anemia, fatigue, weakness, fluid retention, nausea, vomiting and others. Some of the other symptoms I am experiencing may not be caused by Celiac.

I graduated in May 2012, just a few months ago. Since I moved back home after graduation, I have been the sickest I've been in my life. I feel anxious and somewhat depressed all the time; resulting in loss of sleep and I am overwhelmed with everything. My sleeping habits are completely screwed up. Going to sleep at 4am and waking up at 1pm seems like my natural sleep/wake cycle. Each day when I wake up, I feel like a took a sedative in my sleep. I can barely keep my eyes open and I sleep through my alarms and wake ups. Then when I wake up, sometimes I have headaches and I always have diarrhea, bloating, nausea and just and overall feeling of being sick. It takes me hours of going to the bathroom and laying down until I feel better to even start getting ready for the day.

I had been applying for jobs and trying to volunteer but I have been so sick every day. I still have all of my Celiac Disease symptoms and now even more. I am hoping to see if anyone has similar stories and what they did to overcome this. Also, could all my issues be caused by Celiac? I have been eating a careful gluten free diet and I should have some improvement in how I feel...

Thank you and I appreciate responses!!!

-Danielle

0

Share this post


Link to post
Share on other sites


You said things got worse "Since I moved back home"....are you are getting cross-contaminated somehow?

There could be a number of reasons why you feel worse, but let's start with this one.

0

Share this post


Link to post
Share on other sites

Hello all,

I am new to posting in forums about Celiac Disease but I am very excited to begin. My name is Danielle and I am a 21 year old recent college graduate. I was diagnosed with Celiac Disease in early 2009. I was also diagnosed with GERD, Chronic Migraines, Carpal Tunnel Syndrome and Cavus Foot Deformity before and after my Celiac diagnosis. Recently, I lost my health insurance through the government when I turned 21 and of course I had several tests and procedures scheduled afterwards. In addition to gluten, I try to stay away from dairy too.

My symptoms of Celiac include cramps, gas, bloating, diarrhea, easy bruising, iron deficient anemia, fatigue, weakness, fluid retention, nausea, vomiting and others. Some of the other symptoms I am experiencing may not be caused by Celiac.

I graduated in May 2012, just a few months ago. Since I moved back home after graduation, I have been the sickest I've been in my life. I feel anxious and somewhat depressed all the time; resulting in loss of sleep and I am overwhelmed with everything. My sleeping habits are completely screwed up. Going to sleep at 4am and waking up at 1pm seems like my natural sleep/wake cycle. Each day when I wake up, I feel like a took a sedative in my sleep. I can barely keep my eyes open and I sleep through my alarms and wake ups. Then when I wake up, sometimes I have headaches and I always have diarrhea, bloating, nausea and just and overall feeling of being sick. It takes me hours of going to the bathroom and laying down until I feel better to even start getting ready for the day.

I had been applying for jobs and trying to volunteer but I have been so sick every day. I still have all of my Celiac Disease symptoms and now even more. I am hoping to see if anyone has similar stories and what they did to overcome this. Also, could all my issues be caused by Celiac? I have been eating a careful gluten free diet and I should have some improvement in how I feel...

Thank you and I appreciate responses!!!

-Danielle

I had typed up a reply earlier, lost in ...

1) When did you start you gluten free life? did you see any improvement at that time?

2) Do you presently live in a mixed household?

3) Who does your food prep? and are they cognizant of what you require?

4) Have you checked all your personal care items and meds/supplements?

5) Totally unconected to celiac, are depressed r/t lack of employment?

0

Share this post


Link to post
Share on other sites

Gluten can cause all of what you are experiencing. At my sickest that was how every single day was....

Only being 100% gluten free will fix it.

That means traces and cc need to be watched for and avoided carefully.

You can get better, but your food is your lifeline...so be sure it is gluten free.

Severe and profound depression and anxiety can be caused by Celiac. If I fet any gluten at all, I feel that way too.

good luck and I hope you figure this out soon, it's a miserable way to live.

0

Share this post


Link to post
Share on other sites

I do not think there is any cross contamination at my house. My mom eats mostly gluten free too. She does have some gluten items but we are sure to have our own butter and condiments and everything so we eliminate a lot of the possibiltities.

0

Share this post


Link to post
Share on other sites

1) When did you start you gluten free life? did you see any improvement at that time?

I began eating gluten free almost immediately after being diagnosed in 2009. I relapsed back to gluten during my 3rd year in college but then started back up on it after a few months. My mom says she saw improvements especially in my bathroom usage but I dont feel dramatically better ever. I feel like there are slight improvements but I expected to feel much better in a few months as my doctor informed me I most likely would.

2) Do you presently live in a mixed household?

Yes I live with my mo who does not eat fully gluten free all the time.

3) Who does your food prep? and are they cognizant of what you require?

My mom and I do our food prep and she also mostly eats gluten free. We are very careful about cross contamination.

4) Have you checked all your personal care items and meds/supplements?

I have checked the medications and some cosmetics. I am still working on my shower items to see if they contain any gluten.

5) Totally unconected to celiac, are depressed r/t lack of employment?

It definetly could be related. I also think that being so illl has made me stay home more and not do the things I enjoy. I only hang out with a few friends because I feel anxious. Not sure why but I just don't want to see anyone.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,669
    • Total Posts
      914,341
  • Topics

  • Posts

    • Even gluten-free Foods Triggering Reaction After Initial Glutening?
      I was glutened in July.  Badly.  I have NO clue as to what got me.  I suspect two things 1) a gluten free store- brand, product that might have been mis-labeled and 2) a prescription generic medication (contacted the manufacturer to confirm a gluten-free status but got the old liability statement of no guarantees).  Both items were NEVER consumed by my gluten free hubby who acts as my canary.     I probably got glutened again by eating out while on vacation even though I only at at restaurants recommended by other celiacs.  The rest of the time I was at my parent's house and I have a dedicated kitchen there for us.   Who knows?  But I was sick with anxiety, tummy issues, vomiting, the works.  It was strange since anemia was my original symptom and I really did not have tummy issues at the time of my diagnosis.  So, celiac symptoms can evolve at least for me!  Six weeks after my first sign of a glutening, I was tested by my new GI because I was not getting well.  He thought I had SIBO or bile duct issues. I asked for celiac blood testing.    Turns out it was gluten all along!   During my glutening, I became lactose intolerant again, could only eat stewed foods because everything hurt to get through my digestive tract.   I was a basket case for three months.    Did I mention new problems resulting from my glutening?  Hives, itching, vomiting, passing out and tummy aches almost daily.  Anti-histamines helped.    My GP thinks I am her most "allergic" patient.  Except it was more like a histamine intolerance or a mast cell issue not allergies.   Who knows?  The hives eventually resolved as I healed from my glutening.    I refuse to test the two items that were suspect.    No way!    Three months later, I got dairy back.  Six months later I am eating gluten free anything....without any issues.  I also do not take any meds (except for Armour Thyroid) , supplements, eat out and I avoid even processed gluten-free items.  But, I feel great.     I suppose that I will eventually slip up and get glutened again.  But I am working hard not too.  I like feeling well.   So, really look to your diet.  I bet you just keep getting glutened.  Stick to whole foods, follow the FODMAP diet and wait.  Wait.  Wait.    
    • Lower left abdominal, left pelvic & other random pains
      Chiro?  Hubby went to one with a shoulder injury as recommended by our GP. It was a great experience.    I always resisted.  Why?  Just a "gut" feeling.  Good thing.  My bones started fracturing on their own.  I can not imagine anyone manipulating me now.  If you have celiac disease, get a bone scan first.  Just saying.......
    • Gluten or SIBO; Should I gluten challenge to find out?
      Noobette, sure did use gluten-free oats! I even had to test the oats alone before the test as they sometimes give me problems, probably due to fodmap.  As an update, my symptoms became bad enough that we aborted the challenge. My colleague revealed I was eating the gluten! So I skipped the decoy sample to just get this over with. I'm not sure that my symptoms were celiac, but they were bad either way. Headaches, blurpy noisy gut, fatigue, fogginess, bloating, gas, pains. But those are vague, I'll find out for sure in a few more weeks. 
    • Gluten free diet, positive celiac screen...what should I eat now?
      After my blood test (DGP IgA positive), I went crazy eating gluten until my endoscopy.  Because of work issues, I waited for seven weeks.  Seven weeks of saying goodbye to my favorite gluteny foods!  I knew what was coming going gluten free since my hubby has been gluten free for over 14 years.  I was eating a loaf of sourdough a day besides cakes and cookies.  Yum!  But the bad news was that by the time my endoscopy rolled around, I was experiencing tummy issues (just had anemia before).  So, my advice is to take time to say goodbye to gluten, but do not be a glutton (like me!)  
    • Gluten free diet, positive celiac screen...what should I eat now?
      It's okay if you have more than 1 cracker a day; the challenge is saying you must have at least 1 cracker a day so if you want to have more that's absolutely fine. In fact, if you want to gorge on all your favorite gluten goodies from now until the endoscopy then have at it because it looks like you'll be saying goodbye to it all after the endoscopy. You say it's about a month till you see the GI doc..... it will be longer until an endoscopy because the GI will have to order it & it will have to get scheduled.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      59,684
    • Most Online
      1,763

    Newest Member
    Nikkishine
    Joined