Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Uhhh Really?!
0

21 posts in this topic

How does everyone deal with smart elic family and friends who say things like, "Uh huh and how did you figure that one out," and "Pretty soon you won't be able to eat anything." Do these people not remember first grade picture books and learning all their fruits and veggies? Come on now. Ugh! <_< I want to write up a list of every fruit and veggie and grain and nut and every meat and every natural herb and spice and juice known to man and send it to them. Everything I can't eat on another list like wheat, rye, barley, oats, dairy, and corn. Which list would be longer? Hmmm.

Even if they weren't trying to be a smart elic. How would that be an appropriate response? Its like they are trying to rub your face in it like you're a dog and everything you told them is a pile of you know what. I honestly feel really hurt right now :'(

It is like they are jealous that I have more discipline and resolve than them that I have figured out what works for my body and am getting healthier and losing weight. In such a case who exactly is the pitiful one? You know what I am proud of what I am doing and anyone who can't support people like us, they do not deserve us. :D

0

Share this post


Link to post
Share on other sites


How does everyone deal with smart elic family and friends who say things like, "Uh huh and how did you figure that one out," and "Pretty soon you won't be able to eat anything." Do these people not remember first grade picture books and learning all their fruits and veggies? Come on now. Ugh! <_< I want to write up a list of every fruit and veggie and grain and nut and every meat and every natural herb and spice and juice known to man and send it to them. Everything I can't eat on another list like wheat, rye, barley, oats, dairy, and corn. Which list would be longer? Hmmm.

Even if they weren't trying to be a smart elic. How would that be an appropriate response? Its like they are trying to rub your face in it like you're a dog and everything you told them is a pile of you know what. I honestly feel really hurt right now :'(

It is like they are jealous that I have more discipline and resolve than them that I have figured out what works for my body and am getting healthier and losing weight. In such a case who exactly is the pitiful one? You know what I am proud of what I am doing and anyone who can't support people like us, they do not deserve us. :D

Oh hunny I'm sorry your feeling have been hurt by these people. Sometimes I think they say things like that because they have absolutely NO IDEA what we're talking about. Some ofcourse, are just being rotten but others really just don't know how to respond or how to process the info. I'm sorry you had to go through that, I'd be glad to hear your progress anytime! :) hope you have a better day!!

0

Share this post


Link to post
Share on other sites

Oh hunny I'm sorry your feeling have been hurt by these people. Sometimes I think they say things like that because they have absolutely NO IDEA what we're talking about. Some ofcourse, are just being rotten but others really just don't know how to respond or how to process the info. I'm sorry you had to go through that, I'd be glad to hear your progress anytime! :) hope you have a better day!!

Thx caselynn for your comforting and supportive words. Idk where I would be without you and people like you on this forum.

0

Share this post


Link to post
Share on other sites

Hey, us gluten free-ers have to stick together! :)

0

Share this post


Link to post
Share on other sites

Hey, us gluten free-ers have to stick together! :)

Lol I wish there was a like button on this forum ;) but since there is not, I will have to make do: I like.

0

Share this post


Link to post
Share on other sites

We're here for you, Razzle. (((((HUGS)))))

I'm lucky I guess. Except for the friend who told me once that he thought I was getting carried away after after I chastised him when he touched my food with gluteny hands, I don't let what others say bother me. I was earlier into this back then and I tore his head off. :lol:

Now I just look at them and say something along the lines of, "Yeah, so you should feel sorry for me and go get me some Hagen Daz."

0

Share this post


Link to post
Share on other sites

We're here for you, Razzle. (((((HUGS)))))

I'm lucky I guess. Except for the friend who told me once that he thought I was getting carried away after after I chastised him when he touched my food with gluteny hands, I don't let what others say bother me. I was earlier into this back then and I tore his head off. :lol:

Now I just look at them and say something along the lines of, "Yeah, so you should feel sorry for me and go get me some Hagen Daz."

Hehe! :lol: I would have said no I was carried away when I was I'll and malnourished but now I'm standing my ground.

0

Share this post


Link to post
Share on other sites

Some people don't get and some people don't want to get it either. It is annoying I know. I feel like I'm being judged constantly about what I do and do not eat. I love the blank looks people give me when they ask about my diet and I then explain it to them.

0

Share this post


Link to post
Share on other sites

I put a hex on them until I got past the anger stage. My hexes never worked but they made me feel better about jerky family or friends. B)

Here's a super secret. Just cross your fingers under the table toward the offender and officially give them a dirty look. And carry on. Have fun, eat and drink heathy and hex the heck out of anybody who says that's not right. They're not right.

1

Share this post


Link to post
Share on other sites

Good idea Marilyn R! This reminds me I have a voodoo doll. Sounds like that could work too. :lol:

0

Share this post


Link to post
Share on other sites

Oh my! Haha 😝😝😝😲

0

Share this post


Link to post
Share on other sites

Lol I wish there was a like button on this forum ;) but since there is not, I will have to make do: I like.

It's amazing how many people think they will starve if gluten is taken out of their diets. Makes ya wonder if they ever eat anything other than bread and cereal.

As to a 'like' button we do have one and also a dislike button. On the upper right hand side of someones post are a plus and a minus sign to agree or disagree. I use it sometimes when someone has given advice that is the same thing I would have given rather than repeating the same thing in a later post.

1

Share this post


Link to post
Share on other sites

As I was diagnosed very quickly... when people asked me what the symptoms of celiac disease are, I'd say, "Unexplained weight loss is often a big one." Then I'd look down at myself and say, "Um... I didn't get that one."

When people would say stupid things like, "What on earth do you EAT?"... I'd again look down at myself and say, "Um... do I LOOK like I'm starving??"

Isn't it amazing how clueless people are about what we eat??

0

Share this post


Link to post
Share on other sites

As I was diagnosed very quickly... when people asked me what the symptoms of celiac disease are, I'd say, "Unexplained weight loss is often a big one." Then I'd look down at myself and say, "Um... I didn't get that one."

When people would say stupid things like, "What on earth do you EAT?"... I'd again look down at myself and say, "Um... do I LOOK like I'm starving??"

Isn't it amazing how clueless people are about what we eat??

That is basically what I said: "I'm not starving by any means"

Maybe we should counter with, "what besides bread do You eat?"

0

Share this post


Link to post
Share on other sites

That is basically what I said: "I'm not starving by any means"

Maybe we should counter with, "what besides bread do You eat?"

I have said before," If I didn't tell you I had Celiac Disease, would you have even questioned the fact that I'm eating a salad??" if anything it gets my point acrossed, I eat the same healthy things they do, I just like mind modified a little! 😜

0

Share this post


Link to post
Share on other sites

I have said before," If I didn't tell you I had Celiac Disease, would you have even questioned the fact that I'm eating a salad??" if anything it gets my point acrossed, I eat the same healthy things they do, I just like mind modified a little! 😜

Right. I like food that wasn't scientifically mutated in a petri dish. I mean what do they eat? Fillers and pesticides and sugar and fat and more fillers? Most of them don't even know what they are eating or the fact that it isn't really food.

0

Share this post


Link to post
Share on other sites

It's amazing how many people think they will starve if gluten is taken out of their diets. Makes ya wonder if they ever eat anything other than bread and cereal.

As to a 'like' button we do have one and also a dislike button. On the upper right hand side of someones post are a plus and a minus sign to agree or disagree. I use it sometimes when someone has given advice that is the same thing I would have given rather than repeating the same thing in a later post.

Well, I tried it out on your post RavenWood and it worked. +! likey - likey. :)

0

Share this post


Link to post
Share on other sites

It's amazing how many people think they will starve if gluten is taken out of their diets. Makes ya wonder if they ever eat anything other than bread and cereal.

As to a 'like' button we do have one and also a dislike button. On the upper right hand side of someones post are a plus and a minus sign to agree or disagree. I use it sometimes when someone has given advice that is the same thing I would have given rather than repeating the same thing in a later post.

I know exactly! I think they mostly writhe over the lack of "convenience" foods myself.

Oh okay I haven't really used that as a like button. I thought it was more like a rating of the quality of info given and not just a like button. Ya learn something new everyday. :-)

0

Share this post


Link to post
Share on other sites

Some people don't get and some people don't want to get it either. It is annoying I know. I feel like I'm being judged constantly about what I do and do not eat. I love the blank looks people give me when they ask about my diet and I then explain it to them.

I think in the future I will just skip to their judgments just to show how crazy they are. Oh no I am bulemic. I binge and purge and tell ppl I have celiac so they have no idea.

No I am anorexic I prefer to taste my food and quickly recycle it while it is only been exposed to stomach acid for a little while.

No I don't really eat anything. I eat only lettuce and maintain meat on my bones simply by taking a calorie supplement every meal.

Yes I admit most of my allergies are generated by my imagination. I had to come up with something else after I grew out of my childhood imaginary friend.

Tee hee...ohhh gosh.

0

Share this post


Link to post
Share on other sites

Good idea Marilyn R! This reminds me I have a voodoo doll. Sounds like that could work too. :lol:

Hope that doll isn't stuffed with straw cause that ain't gluten free :P

0

Share this post


Link to post
Share on other sites

I put a hex on them until I got past the anger stage. My hexes never worked but they made me feel better about jerky family or friends. B)

Here's a super secret. Just cross your fingers under the table toward the offender and officially give them a dirty look. And carry on. Have fun, eat and drink heathy and hex the heck out of anybody who says that's not right. They're not right.

Hahaha we should all get together and create some sort of clan to hex all theglutened evildoers. Just kidding omg y'all all are just as crazy as me. I used to do this thing when i got mad as a kid where I would put my thumb and index finger up to frame my vision of their head and just pinch my fingers together like I was squeezing them like a bug. Must a been my glutenophrenic brain.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,680
    • Total Posts
      914,400
  • Topics

  • Posts

    • Blood sugar, hunger, celiac
      Thanks for your reply. I'm not sure how much fat I'm having, I will check. That could be contributing. Yup I do know about the link between Type 1 and celiac. But when it was first discovered my blood sugar was high, my insulin was tested and it was high...actually it was double the normal amount. C-peptide was tested too and I don't remember exactly but I think it was slightly high? If I had Type 1 or LADA, wouldn't my insulin be lower? It is strange though how I have none of the risk factors for insulin resistance and/or type 2... And in fact I had been on a super healthy whole food, "anti-candida" diet for several years before my blood sugar suddenly went really wacko!
    • CALL TO ACTION: YOUR INPUT IS REQUESTED BY THE FDA ON GLUTEN-FREE ISSUES
      FDA proposed rule on gluten-free labeling of fermented or hydrolyzed foods: If you haven’t already, please take the time to comment on the rule. The comment period closes February 16. But this is truly a CALL TO ACTION.  Your input is needed. You have a voice, you are an advocate for the gluten-free community. Now is the time to stand up and be heard.  Your voice, your words, can help all of us stay safe when purchasing food labeled gluten-free.  Johnna’s Kitchen posted a sample letter you may find helpful http://injohnnaskitchen.com/2016/01/call-to-action-your-input-is-requested-by-the-fda-on-gluten-free-issues/ It takes almost no time at all to copy & paste Johnna's letter into the FDA comment site & it will help us all.
    • Chipolte New Marinade
      I don't think any of their food was " certified" gluten-free?  
    • "Pre-Celiac" & scared
      Is there anyone else "pre-celiac" and asymptomatic like me who has had long-term success without losing their mind and still enjoying eating out without feeling like you have to stay in a plastic bubble?  This site has been helpful to me these past months.   I don't have it "Yet" and I am scared.  Sorry this is long but I wanted to be thorough: Two years ago I started experiencing GERD (heart burn, pain under my left rib cage, and regurgitation).  After trying probiotics, kambucha, kefir, apple cider vinegar, aloe juice, eliminating chocolate, citrus, tomatoes, spices, cinnamon, mint, alcohol, not eating 3 hours before bed, I was no better. I got an endoscopy/colonoscopy.  The dr found gastritis and esophagitis.  No hernia, infection or ulcer.  He started me on PPI.  I got 99% relief.  After 6 months I decided to go off PPI.  After suffering for 3 months, I went back to dr and back on PPIs for a year.  Because I am young, 39, and the PPIs have side effects, he discussed surgery with me. I went to a specialist. All the tests showed my esophagus was normal but my lower esophageal sphincter was not closing properly.  I was a good candidate and decided on the MUSE, (Endoscopically stapling the esophagus to prevent reflux) When the specialist did his endoscopy (1 year after previous one and before I was on PPIs regularly)  he saw villi damage that looked like textbook Celiac.  HUH?  I don't have ANY symptoms.  No cramps, vomiting, diarrhea, bloating, gas, discomfort, NOTHING.  He took biopsies and the results were "non-specific" perhaps "clinically latent celiac sprue" or a number of other things. So I took blood tests.  The celiac gene test was "susceptible" and I had "high" antibodies, but not positive.  Dr said go gluten-free to prevent  celiac. Did the PPIs cause the villi damage because I couldn't absorb the wheat properly and triggered celiac in me?  It sounds reasonable.   I wonder if now that I have had the MUSE and may be able to stop PPIs, will I be able to digest gluten better? Very interesting.  I plan to call a celiac specialist where I live to discuss this with him. I have not eaten gluten intentionally for 2.5 months now.  It did not help my GERD before the surgery.  Dr said they were unrelated anyway.  I am concerned about CC, breathing in, and accidental ingestion, but since I have no symptoms, I can never tell.  So I take glutenease when I eat out and glutamine powder to try to repair the damage.  How careful should I be since I don't have it "yet"? Amy's gluten-free frozen foods are great, and I read every label at Trader Joe's, eat off the gluten-free menu, corn tortillas @ Mexican, no soy sauce or imitation crab @ sushi, steamed veggies @ Chinese, & gluten-free pasta @ Italian. Member Lisa wrote, "Even though you eat as gluten free as possible, you probably consume close to that amount of gluten due to cross contamination in processed gluten free food and other exposures. ...Eating 100% gluten free is a total improbability. "
      Most people with Celiac can handle 20ppm.  So is that equivalent to breathing in flour?  Having a half a teaspoon of soy sauce by accident in Asian food?  I can live without bread and cookies, but gluten is IN  so many things. Some on this site with Celiac have separate toasters, don't eat out, and don't walk into bakeries while there are others that eat out and eat fries made in shared oil at BK.  Even I haven't done that.  Isn't it dangerous? Thank you for you help!!
    • Pins And Needles
      You sure did nail it! I was too worried it was MS or Lupus or Celiac to be able to really give that option a chance. If anything my guess was low b12. The only obvious things in my diet are Vitamin water and protein bars. If you look at food it's in practically everything in pretty high doses. Going gluten-free uncovered this or made it start. MTHFR gene maybe? Magnesium too low? I haven't taken my multi & am looking up everything I'm eating. Still having the twitches but not near as much in my calves and feet. My arch pain is gone & energy is up a bit. Still twitching though and had some arm and shoulder pain overnight. I read it can be 6 months or longer for nerves to heal.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      59,706
    • Most Online
      1,763

    Newest Member
    between_spaces
    Joined