72 replies to this topic

[troykm]

This is what was found in my biopsy.

"Sections consist of a single fragments of heavily denuded duodenal mucosa with an abnormal architexture comprising mild to moderate villous atrophy associated with crypt hyperplasia. There is a significant generalized increase in intraepithelial lymphocytes associated with degenerative changes with in the remaining surface epithelium. Within the lamina propria there is a mild increase in mixed inflammatory cells. parasite are not seen. The appearances are those of a moderate variable villous abnormality without diagnostic histology. A differential diagnosis include celiac disease, other protein allergies, infectious gastroenteritis and nonspecific chronic duodenitis. The appearance is consistent with but not diagnostic of partially treated cealiac disease."

So what is that saying? Yes to celiac or it may be one of many other things?

Did yours say anything like this?

Thanks

[Jestgar]

I would interpret this as: "showing some initial, overall inflammation, but not yet severe enough to point to one specific cause. Are you gluten-free? How do you feel?

[troykm]

I would interpret this as: "showing some initial, overall inflammation, but not yet severe enough to point to one specific cause. Are you gluten-free? How do you feel?

Yes I want gluten free after this biopsy result as the Gi Dr said it was most likely celiac. But after that my blood work
came back negative for antibodies so now she is not sure and is freaking me out. She just keeps saying hmmm not sure let's catch up again in two weeks bla bla bla. I stI'll don't have the genetic test results yet but hopefully they come Monday.

Yes I'm gluten free and felt great for the first 2 weeks. Symptoms started to go. My post nasal drip has stopped and that I've had from childhood. Even had two operations to fix it but neither worked. Even my throat just feels more open if that makes sense. But this week I am feeling very tired, lethargic, slight anxiety and some muscle weakness. Is that just gluten withdrawal?

Thanks

[troykm]

I should add that I'm questioning all this because my GI Dr has suggested that (as I am gay) that I may have hiv as that can cause celiac like things. Now unless hiv has become air born in the last few years it's not possible but she has made me panic now. What if!

[ravenwoodglass]

Some of us can have false negatives on blood work. The biopsy results do suggest celiac so glad to hear you are giving the diet a shot. We do have ups and downs usually in the beginning as we get used to the new lifestyle. Hopefully the diet will take care of your problems but being on the diet will not mask testing for other stuff if that should be needed. I hope you continue to improve.

[ciamarie]

I started getting headaches, as well as being very tired in the afternoon after about 3 weeks of eating gluten-free. I think that lasted about 2 weeks. However, you should probably double-check what you're eating, and possibly food prep areas, etc. to rule out being glutened. If you have improvement in a few issues, it sounds like that's your answer -- along with the biopsy results. Do you have your blood test results? If not, you should get those and post them here also. It's possible you only had partial tests. From what I've seen on here, it's not uncommon for only 1 or 2 of the full panel of tests to be positive; and sometimes not even that. It's not an exact science... so don't panic.

[ravenwoodglass]

I should add that I'm questioning all this because my GI Dr has suggested that (as I am gay) that I may have hiv as that can cause celiac like things. Now unless hiv has become air born in the last few years it's not possible but she has made me panic now. What if!

Don't let the doctor panic you. Sometimes doctors just like to scare the heck out of us. If she thinks that she should order a test for HIV to rule it out in her mind.

[nvsmom]

Yes I'm gluten free and felt great for the first 2 weeks. Symptoms started to go. My post nasal drip has stopped and that I've had from childhood. Even had two operations to fix it but neither worked. Even my throat just feels more open if that makes sense. But this week I am feeling very tired, lethargic, slight anxiety and some muscle weakness. Is that just gluten withdrawal?

Thanks

I've been gluten-free for just a few weeks and had terrible withdrawl with a headache that lasted well over a week (now it's just sporadic), a bunch of fatigue, and I was so so grumpy that even I couldn't stand myself. The withdrawl is starting to get better for me now, so hang in there!

[troykm]

Thank you all your all helping :-)

[Cara in Boston]

Your biopsy sounds like a description of celiac disease.

Were your blood tests taken after you went gluten free? Even a few days can alter the results.

My son had negative blood test on the most common tests (TTG Ig A and DGP IgA) but he had a positive endoscopy and clearly has celiac disease.

Sometimes the blood tests can be negative and you can still have celiac disease.

Feeling slightly worse after going gluten free can just be a sign of withdrawal. Keep going, you will feel better soon.

Cara

[troykm]

Well I had an hiv test and it's negative. So it really is celiac :-)

And I'm going to have words with DR GI for terrifying me so casually. Lol

So I'm a member :-) odd that I should be so happy but I am.

[jerseyangel]

Well I had an hiv test and it's negative. So it really is celiac :-)

And I'm going to have words with DR GI for terrifying me so casually. Lol

So I'm a member :-) odd that I should be so happy but I am.

What a relief! Welcome to the community

[squirmingitch]

Well I had an hiv test and it's negative. So it really is celiac :-)

And I'm going to have words with DR GI for terrifying me so casually. Lol

So I'm a member :-) odd that I should be so happy but I am.

Welcome to the board! And this is a great place for you to get started:


http://www.celiac.co...ewbie-info-101/

[beebs]

Is that not terribly insulting? Is it also not illegal to insinuate that you could have HIV just because you are gay??? I am fairly sure that even if it isn't illegal it is not the done thing!

That result would have me thinking celiac straight away!

I should add that I'm questioning all this because my GI Dr has suggested that (as I am gay) that I may have hiv as that can cause celiac like things. Now unless hiv has become air born in the last few years it's not possible but she has made me panic now. What if!

[justlisa]

Troy... That really IS great news! Now, you can recover... Congratulations!