Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

I Look Pregnant!


  • Please log in to reply
30 replies to this topic

#1 patti-ann

patti-ann

    New Community Member

  • Advanced Members
  • Pip
  • 14 posts

Posted 22 July 2012 - 05:32 AM

newly diagnosed and just joined this forum cause im extremely frustrated!! almost four month and now and extremely strict with my diet. Now im more sensiteve to smallest amount of gluten then ever before. when i get gluten in me i bloat like im 8 months pregnant, im 5 ft 5 135 pounds skinny legs with this bloated tummy (when i get accidental gluten) just need to know if anyone has suggestions that can alleviate the bloating and nausea faster it takes me about 3-4 days to get rid of these symptons. im so frustrated.. had to help people move yesterday and every one had pizza, i ordered the gluten free (obviously not) must have got contaminated and then i starved the rest of the day while everyone ate mcdonalds for dinner and then had to pick up my daughter and she was hungry so husband got her a sub so finally at 9:00 last night i ate my rice again. and for all that torment yesterday.... i got gluten in me and today bloated tomorrow with be nausea and accompanied with the runs. im so frustrated and now feelings of anger setting in!
  • 0

Celiac.com Sponsor:

#2 Razzle Dazzle Brazell

Razzle Dazzle Brazell

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 399 posts

Posted 22 July 2012 - 07:23 AM

newly diagnosed and just joined this forum cause im extremely frustrated!! almost four month and now and extremely strict with my diet. Now im more sensiteve to smallest amount of gluten then ever before. when i get gluten in me i bloat like im 8 months pregnant, im 5 ft 5 135 pounds skinny legs with this bloated tummy (when i get accidental gluten) just need to know if anyone has suggestions that can alleviate the bloating and nausea faster it takes me about 3-4 days to get rid of these symptons. im so frustrated.. had to help people move yesterday and every one had pizza, i ordered the gluten free (obviously not) must have got contaminated and then i starved the rest of the day while everyone ate mcdonalds for dinner and then had to pick up my daughter and she was hungry so husband got her a sub so finally at 9:00 last night i ate my rice again. and for all that torment yesterday.... i got gluten in me and today bloated tomorrow with be nausea and accompanied with the runs. im so frustrated and now feelings of anger setting in!


Bless your heart. You will get through. You may have to become accustomed to making sure you have gluten free snacks and meals on hand just in case.

I take American ginseng, it helps a little with overall malaysia and fatigue. I like to sip on carbonated ginger ale for nausea. Just a little bit always helps me a lot. Trying to eat and drink beverages and foods that are too hot or cold. If you can have tea, peppermint and cammomile tea can help. Pepto Bismol and other gluten free medicines for bloating are out there.
Hope something I suggested is helpful.
  • 0
Gluten and Oat Free 6/'12
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12

You only get one life so make it count.

#3 squirmingitch

squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,251 posts

Posted 22 July 2012 - 08:29 AM

I have found that 1/2 tsp. of baking soda in water really helps with the bloat. You may need to repeat the dose a couple times. But do not take it immediately after eating, on a full stomach. Okay for a bloated stomach but not just after eating. You take it & soon you will begin to burp or should I say belch and pass gas the other way too.
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#4 GottaSki

GottaSki

    "The past is the past...I've got places to be."

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,825 posts

Posted 22 July 2012 - 09:42 AM

The learning curve is very tough! I was very similar to you -- when I first went gluten free I became even more sensitive to gluten -- tiniest cc made me bloat to very pregnant looking as well. I never found anything that helped much except become more strict gluten-free.

A couple hints based on your post.

ALWAYS carry gluten free snacks when you will be away from home -- I have a nice looking purse/soft cooler bag that has gluten-free dressing along with snacks. Don't be afraid to bring your own food to a restaurant -- I felt strange at first, but once you are used to it - it becomes very easy to explain to your friends and now I even ask the server for a nice plate or bowl to transfer my food to so that I'm not eating out of containers - they are almost always happy to help and often are curious to learn more about Celiac.

McDonalds along with other fast food and sub places have pre-made salads that are gluten free -- you will learn how to order safely. These salads don't always taste great, but when needed at least you will have something to eat safely in a pinch.

Taking digestive enzymes before eating out has helped my son with cross-contamination - me not so much.

Remember to be good to yourself during this process -- It will get better, but mistakes will be made, tears may be shed, frustration is unavoidable - a nice epsom salt bath soak can help :)

Good Luck!
  • 0

-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#5 patti-ann

patti-ann

    New Community Member

  • Advanced Members
  • Pip
  • 14 posts

Posted 22 July 2012 - 09:50 AM

I have found that 1/2 tsp. of baking soda in water really helps with the bloat. You may need to repeat the dose a couple times. But do not take it immediately after eating, on a full stomach. Okay for a bloated stomach but not just after eating. You take it & soon you will begin to burp or should I say belch and pass gas the other way too.

thank you to both of you for your input! i was so upset posting this i didnt realize how many grammer errors i had. haha! i actually cried last night and this morning and i cant remember the last time anything made me cry!
i will try the baking soda and pepto bismo. i havent had gingerale since my diagnose's cause i read it had caramel colouring and that it can contain gluten. Please correct me if i'm wrong and thank you so much for your suggestions and support!
  • 0

#6 patti-ann

patti-ann

    New Community Member

  • Advanced Members
  • Pip
  • 14 posts

Posted 22 July 2012 - 12:11 PM

i just want to say thank you to all of you that are so experienced with this disease.. to take your time to read these posts and actually reply! You have no idea what it means to me and anyone else new to this! Out of 9 kids...im the only one so far diagnosed..but my uncle has it and he found out 20 years ago! my hemotolagist figued i have had it all my life and i'm now 38! my mom said well that explains why you were anemic as a child and wouldnt eat as i always complained of stomach pains. i was so chronically fatiqued that i went to a natural path for help as for the last three years i complained to my doctor with my symptons especially the nausea and all she said was "wow thats wierd" anyways after talking to natural path for two hours she said you need to get tested for celiac! so back to family doctor! tested and positive..off to hemotolagist and i have non traceable IGA which he figured because ive had it so long it undiagnosed that it did that much damage!!! i was so relieved at the time to find out and all i had to do was adjust my diet! now i realize how hard that is! its not like most people who go gluten free to loose weight...and occasionally have that little cheeseburger to cheat and have no reactions from it. this is totally different and a challenge to maintain! thank you for the support it means the world to me! :)
  • 0

#7 squirmingitch

squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,251 posts

Posted 22 July 2012 - 03:02 PM

patti-ann, We DO know what it means to you & anyone else new to this....... Remember, WE were once new to this too --- each & every one of us! And there were those veterans here who helped each of us when we came on posting just like you. We do this to help new people the same way we were helped. I think most of us call this "paying it forward". And we just plain care. There is a very steep learning curve (like climbing Mt. Everest! Posted Image) to all of this & without the help of others it would have taken us a very long time with hundreds of mistakes to get it right. And we know the stress factor involved. We've all been there, done that --- we get it!

Your story of your family history as well as your own long journey of non diagnosis is unfortunately all too familiar.

Know that you can ask any questions here & there are NO dumb questions. Also, from time to time we all feel the need to vent, rant, rave or just plain cry. It's all allowed here. We will listen & vent, rant, rave & cry with you.

And WELCOME TO THE BOARD!Posted Image
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#8 patti-ann

patti-ann

    New Community Member

  • Advanced Members
  • Pip
  • 14 posts

Posted 24 July 2012 - 03:06 AM

well... im right on schedule! its tuesday morning and the vomiting has set in. does anyone else get this symptom? its like a morning sickness :( there is nothing in my stomach except for byle and a little coffee and this always happens around the 3rd day after injusting the gluten!
  • 0

#9 Razzle Dazzle Brazell

Razzle Dazzle Brazell

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 399 posts

Posted 25 July 2012 - 04:52 AM

thank you to both of you for your input! i was so upset posting this i didnt realize how many grammer errors i had. haha! i actually cried last night and this morning and i cant remember the last time anything made me cry!
i will try the baking soda and pepto bismo. i havent had gingerale since my diagnose's cause i read it had caramel colouring and that it can contain gluten. Please correct me if i'm wrong and thank you so much for your suggestions and support!


The choice is really up to you.
Here is a link and quote from an article I found. I drink Zevia Ginger Ale because it is all natural.

http://www.glutenfre.../caramel-color/

Food productsUnder the Food Allergen Labeling and Consumer Protection Act any packaged food sold in the United States and regulated by the FDA, including imported foods, must state on the label if an ingredient contains protein from wheat. If you see the words “caramel color” on an FDA-regulated food product and the word “wheat” is not included in the ingredients list or the Contains statement the caramel color does not contain wheat protein. At this time, allergen labeling of USDA-regulated foods (meat products, poultry products, egg products) is voluntary and not mandatory. Nonetheless, it is highly unlikely that a meat, poultry, or egg product sold in the US would contain wheat-based caramel color.
  • 0
Gluten and Oat Free 6/'12
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12

You only get one life so make it count.

#10 Razzle Dazzle Brazell

Razzle Dazzle Brazell

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 399 posts

Posted 25 July 2012 - 04:56 AM

well... im right on schedule! its tuesday morning and the vomiting has set in. does anyone else get this symptom? its like a morning sickness :( there is nothing in my stomach except for byle and a little coffee and this always happens around the 3rd day after injusting the gluten!


For me, nausea is expected directly the morning after. I call it my glutening hangover lol. Like the others said. You will feel overwhelmed at times and you have to get around the learning curve but you will get there. Just do as much research as you can and do not eat anything, drink anything unless you know it is gluten free and contamination free.
  • 0
Gluten and Oat Free 6/'12
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12

You only get one life so make it count.

#11 squirmingitch

squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,251 posts

Posted 25 July 2012 - 07:08 AM

The best way to avoid a glutening until you learn the ins & outs is to eat whole foods ONLY. That is recommended anyway to give your gut time to heal. AND it takes a lot of anxiety & stress off you to not worry about every little thing you put in your mouth.

And this is a GREAT help to get you started:

http://www.celiac.co...ewbie-info-101/
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#12 nvsmom

nvsmom

    Moderator

  • Moderators
  • PipPipPipPipPipPip
  • 3,048 posts

Posted 25 July 2012 - 07:09 AM

i just want to say thank you to all of you that are so experienced with this disease.. to take your time to read these posts and actually reply! You have no idea what it means to me and anyone else new to this! Out of 9 kids...im the only one so far diagnosed..but my uncle has it and he found out 20 years ago! my hemotolagist figued i have had it all my life and i'm now 38! my mom said well that explains why you were anemic as a child and wouldnt eat as i always complained of stomach pains. i was so chronically fatiqued that i went to a natural path for help as for the last three years i complained to my doctor with my symptons especially the nausea and all she said was "wow thats wierd" anyways after talking to natural path for two hours she said you need to get tested for celiac! so back to family doctor! tested and positive..off to hemotolagist and i have non traceable IGA which he figured because ive had it so long it undiagnosed that it did that much damage!!! i was so relieved at the time to find out and all i had to do was adjust my diet! now i realize how hard that is! its not like most people who go gluten free to loose weight...and occasionally have that little cheeseburger to cheat and have no reactions from it. this is totally different and a challenge to maintain! thank you for the support it means the world to me! :)


I'm right there with you too. I'm 38 and have also had this my entire life, and my doctors never figured it out...To be honest, after having my symptoms dismissed as a child, I stopped complaining about it; what was the point, right? I just found out that I have it on both sides of the family, and one of the cases was known for over 20 years. It's a shame people couldn't put it together. :(

I also have friends who chose to go gluten-free for no medical reason. I actually had one friend say, "welocome to our world" in such a manner that 3 weeks later it's still bugging me.

(((HUGS))) You can do it! And I really hope you are starting to feel better.
  • 0
Nicole Posted Image

"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

CANADIAN

Celiac.com - Celiac Disease Board Moderator

#13 patti-ann

patti-ann

    New Community Member

  • Advanced Members
  • Pip
  • 14 posts

Posted 25 July 2012 - 12:07 PM

I'm right there with you too. I'm 38 and have also had this my entire life, and my doctors never figured it out...To be honest, after having my symptoms dismissed as a child, I stopped complaining about it; what was the point, right? I just found out that I have it on both sides of the family, and one of the cases was known for over 20 years. It's a shame people couldn't put it together. :(

I also have friends who chose to go gluten-free for no medical reason. I actually had one friend say, "welocome to our world" in such a manner that 3 weeks later it's still bugging me.

(((HUGS))) You can do it! And I really hope you are starting to feel better.


That is so true.... i did stop complaining about it! I have a sister who is full of energy and always the life of the party and i remember saying to my mom a few weeks before i found out about celiac... "i wish i could be more like her, but i don't even have the energy to carry on a conversation" but i am improving and hopefully after a few more months I will see benefits.

i read on one of the posts about avoiding "lactose"? i think this is an avenue i should try!

Is it true.... that most people with celiac gain weight when they go gluten free? I hope this is not true :angry:
  • 0

#14 patti-ann

patti-ann

    New Community Member

  • Advanced Members
  • Pip
  • 14 posts

Posted 25 July 2012 - 12:21 PM

I'm right there with you too. I'm 38 and have also had this my entire life, and my doctors never figured it out...To be honest, after having my symptoms dismissed as a child, I stopped complaining about it; what was the point, right? I just found out that I have it on both sides of the family, and one of the cases was known for over 20 years. It's a shame people couldn't put it together. :(

I also have friends who chose to go gluten-free for no medical reason. I actually had one friend say, "welocome to our world" in such a manner that 3 weeks later it's still bugging me.

(((HUGS))) You can do it! And I really hope you are starting to feel better.


AND..... it would bug me too having a friend say "welcome to our world" just because "by Choice" they are gluten free..... I'm sure every now and then they cheat and "thats ok" cause they won't feel sick! Its not the same at all! That would be frustrating!
  • 0

#15 squirmingitch

squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,251 posts

Posted 25 July 2012 - 03:18 PM

Well, as to "most ppl with celiac gain weight after going gluten-free" ---- hmmmmm...... --- depends on where you read that or heard it & in what context they are speaking.
Perspective patti-ann, perspective. The "general thought" is that celiacs are emaciated b/c of the celiac malabsorbtion. So, it follows that when they heal they will be absorbing nutrients & thus gain weight. Take me for instance; I've always been "skinny" (HATE that word!) --- I've been gluten-free for almost 8 months & I just gained 2 of the lbs. back of the 5 that I lost 7 years ago. So now I weigh a whole, whopping 101 lbs. for a 5'1.5" gal. Geez! If I don't watch out I might get FAT.Posted ImagePosted ImagePosted Image

But not all celiacs were skinny & wasting away. Malabsorbtion is malabsorbtion & it can also make everything you put in your mouth turn to body fat. We have loads of celiacs on this board who were told by docs they couldn't possibly be celiac b/c they were fat. But that is untrue! And some of them gained weight after going gluten-free but I think most of them have lost it once they heal & their body balances things out. I will let others chime in on this subject.
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 



0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: