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I Look Pregnant!
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newly diagnosed and just joined this forum cause im extremely frustrated!! almost four month and now and extremely strict with my diet. Now im more sensiteve to smallest amount of gluten then ever before. when i get gluten in me i bloat like im 8 months pregnant, im 5 ft 5 135 pounds skinny legs with this bloated tummy (when i get accidental gluten) just need to know if anyone has suggestions that can alleviate the bloating and nausea faster it takes me about 3-4 days to get rid of these symptons. im so frustrated.. had to help people move yesterday and every one had pizza, i ordered the gluten free (obviously not) must have got contaminated and then i starved the rest of the day while everyone ate mcdonalds for dinner and then had to pick up my daughter and she was hungry so husband got her a sub so finally at 9:00 last night i ate my rice again. and for all that torment yesterday.... i got gluten in me and today bloated tomorrow with be nausea and accompanied with the runs. im so frustrated and now feelings of anger setting in!

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newly diagnosed and just joined this forum cause im extremely frustrated!! almost four month and now and extremely strict with my diet. Now im more sensiteve to smallest amount of gluten then ever before. when i get gluten in me i bloat like im 8 months pregnant, im 5 ft 5 135 pounds skinny legs with this bloated tummy (when i get accidental gluten) just need to know if anyone has suggestions that can alleviate the bloating and nausea faster it takes me about 3-4 days to get rid of these symptons. im so frustrated.. had to help people move yesterday and every one had pizza, i ordered the gluten free (obviously not) must have got contaminated and then i starved the rest of the day while everyone ate mcdonalds for dinner and then had to pick up my daughter and she was hungry so husband got her a sub so finally at 9:00 last night i ate my rice again. and for all that torment yesterday.... i got gluten in me and today bloated tomorrow with be nausea and accompanied with the runs. im so frustrated and now feelings of anger setting in!

Bless your heart. You will get through. You may have to become accustomed to making sure you have gluten free snacks and meals on hand just in case.

I take American ginseng, it helps a little with overall malaysia and fatigue. I like to sip on carbonated ginger ale for nausea. Just a little bit always helps me a lot. Trying to eat and drink beverages and foods that are too hot or cold. If you can have tea, peppermint and cammomile tea can help. Pepto Bismol and other gluten free medicines for bloating are out there.

Hope something I suggested is helpful.

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I have found that 1/2 tsp. of baking soda in water really helps with the bloat. You may need to repeat the dose a couple times. But do not take it immediately after eating, on a full stomach. Okay for a bloated stomach but not just after eating. You take it & soon you will begin to burp or should I say belch and pass gas the other way too.

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The learning curve is very tough! I was very similar to you -- when I first went gluten free I became even more sensitive to gluten -- tiniest cc made me bloat to very pregnant looking as well. I never found anything that helped much except become more strict gluten-free.

A couple hints based on your post.

ALWAYS carry gluten free snacks when you will be away from home -- I have a nice looking purse/soft cooler bag that has gluten-free dressing along with snacks. Don't be afraid to bring your own food to a restaurant -- I felt strange at first, but once you are used to it - it becomes very easy to explain to your friends and now I even ask the server for a nice plate or bowl to transfer my food to so that I'm not eating out of containers - they are almost always happy to help and often are curious to learn more about Celiac.

McDonalds along with other fast food and sub places have pre-made salads that are gluten free -- you will learn how to order safely. These salads don't always taste great, but when needed at least you will have something to eat safely in a pinch.

Taking digestive enzymes before eating out has helped my son with cross-contamination - me not so much.

Remember to be good to yourself during this process -- It will get better, but mistakes will be made, tears may be shed, frustration is unavoidable - a nice epsom salt bath soak can help :)

Good Luck!

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I have found that 1/2 tsp. of baking soda in water really helps with the bloat. You may need to repeat the dose a couple times. But do not take it immediately after eating, on a full stomach. Okay for a bloated stomach but not just after eating. You take it & soon you will begin to burp or should I say belch and pass gas the other way too.

thank you to both of you for your input! i was so upset posting this i didnt realize how many grammer errors i had. haha! i actually cried last night and this morning and i cant remember the last time anything made me cry!

i will try the baking soda and pepto bismo. i havent had gingerale since my diagnose's cause i read it had caramel colouring and that it can contain gluten. Please correct me if i'm wrong and thank you so much for your suggestions and support!

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i just want to say thank you to all of you that are so experienced with this disease.. to take your time to read these posts and actually reply! You have no idea what it means to me and anyone else new to this! Out of 9 kids...im the only one so far diagnosed..but my uncle has it and he found out 20 years ago! my hemotolagist figued i have had it all my life and i'm now 38! my mom said well that explains why you were anemic as a child and wouldnt eat as i always complained of stomach pains. i was so chronically fatiqued that i went to a natural path for help as for the last three years i complained to my doctor with my symptons especially the nausea and all she said was "wow thats wierd" anyways after talking to natural path for two hours she said you need to get tested for celiac! so back to family doctor! tested and positive..off to hemotolagist and i have non traceable IGA which he figured because ive had it so long it undiagnosed that it did that much damage!!! i was so relieved at the time to find out and all i had to do was adjust my diet! now i realize how hard that is! its not like most people who go gluten free to loose weight...and occasionally have that little cheeseburger to cheat and have no reactions from it. this is totally different and a challenge to maintain! thank you for the support it means the world to me! :)

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patti-ann, We DO know what it means to you & anyone else new to this....... Remember, WE were once new to this too --- each & every one of us! And there were those veterans here who helped each of us when we came on posting just like you. We do this to help new people the same way we were helped. I think most of us call this "paying it forward". And we just plain care. There is a very steep learning curve (like climbing Mt. Everest! biggrin.gif) to all of this & without the help of others it would have taken us a very long time with hundreds of mistakes to get it right. And we know the stress factor involved. We've all been there, done that --- we get it!

Your story of your family history as well as your own long journey of non diagnosis is unfortunately all too familiar.

Know that you can ask any questions here & there are NO dumb questions. Also, from time to time we all feel the need to vent, rant, rave or just plain cry. It's all allowed here. We will listen & vent, rant, rave & cry with you.

And WELCOME TO THE BOARD!smile.gif

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well... im right on schedule! its tuesday morning and the vomiting has set in. does anyone else get this symptom? its like a morning sickness :( there is nothing in my stomach except for byle and a little coffee and this always happens around the 3rd day after injusting the gluten!

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thank you to both of you for your input! i was so upset posting this i didnt realize how many grammer errors i had. haha! i actually cried last night and this morning and i cant remember the last time anything made me cry!

i will try the baking soda and pepto bismo. i havent had gingerale since my diagnose's cause i read it had caramel colouring and that it can contain gluten. Please correct me if i'm wrong and thank you so much for your suggestions and support!

The choice is really up to you.

Here is a link and quote from an article I found. I drink Zevia Ginger Ale because it is all natural.

http://www.glutenfreedietitian.com/newsletter/caramel-color/

Food productsUnder the Food Allergen Labeling and Consumer Protection Act any packaged food sold in the United States and regulated by the FDA, including imported foods, must state on the label if an ingredient contains protein from wheat. If you see the words

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well... im right on schedule! its tuesday morning and the vomiting has set in. does anyone else get this symptom? its like a morning sickness :( there is nothing in my stomach except for byle and a little coffee and this always happens around the 3rd day after injusting the gluten!

For me, nausea is expected directly the morning after. I call it my glutening hangover lol. Like the others said. You will feel overwhelmed at times and you have to get around the learning curve but you will get there. Just do as much research as you can and do not eat anything, drink anything unless you know it is gluten free and contamination free.

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The best way to avoid a glutening until you learn the ins & outs is to eat whole foods ONLY. That is recommended anyway to give your gut time to heal. AND it takes a lot of anxiety & stress off you to not worry about every little thing you put in your mouth.

And this is a GREAT help to get you started:

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

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i just want to say thank you to all of you that are so experienced with this disease.. to take your time to read these posts and actually reply! You have no idea what it means to me and anyone else new to this! Out of 9 kids...im the only one so far diagnosed..but my uncle has it and he found out 20 years ago! my hemotolagist figued i have had it all my life and i'm now 38! my mom said well that explains why you were anemic as a child and wouldnt eat as i always complained of stomach pains. i was so chronically fatiqued that i went to a natural path for help as for the last three years i complained to my doctor with my symptons especially the nausea and all she said was "wow thats wierd" anyways after talking to natural path for two hours she said you need to get tested for celiac! so back to family doctor! tested and positive..off to hemotolagist and i have non traceable IGA which he figured because ive had it so long it undiagnosed that it did that much damage!!! i was so relieved at the time to find out and all i had to do was adjust my diet! now i realize how hard that is! its not like most people who go gluten free to loose weight...and occasionally have that little cheeseburger to cheat and have no reactions from it. this is totally different and a challenge to maintain! thank you for the support it means the world to me! :)

I'm right there with you too. I'm 38 and have also had this my entire life, and my doctors never figured it out...To be honest, after having my symptoms dismissed as a child, I stopped complaining about it; what was the point, right? I just found out that I have it on both sides of the family, and one of the cases was known for over 20 years. It's a shame people couldn't put it together. :(

I also have friends who chose to go gluten-free for no medical reason. I actually had one friend say, "welocome to our world" in such a manner that 3 weeks later it's still bugging me.

(((HUGS))) You can do it! And I really hope you are starting to feel better.

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I'm right there with you too. I'm 38 and have also had this my entire life, and my doctors never figured it out...To be honest, after having my symptoms dismissed as a child, I stopped complaining about it; what was the point, right? I just found out that I have it on both sides of the family, and one of the cases was known for over 20 years. It's a shame people couldn't put it together. :(

I also have friends who chose to go gluten-free for no medical reason. I actually had one friend say, "welocome to our world" in such a manner that 3 weeks later it's still bugging me.

(((HUGS))) You can do it! And I really hope you are starting to feel better.

That is so true.... i did stop complaining about it! I have a sister who is full of energy and always the life of the party and i remember saying to my mom a few weeks before i found out about celiac... "i wish i could be more like her, but i don't even have the energy to carry on a conversation" but i am improving and hopefully after a few more months I will see benefits.

i read on one of the posts about avoiding "lactose"? i think this is an avenue i should try!

Is it true.... that most people with celiac gain weight when they go gluten free? I hope this is not true :angry:

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I'm right there with you too. I'm 38 and have also had this my entire life, and my doctors never figured it out...To be honest, after having my symptoms dismissed as a child, I stopped complaining about it; what was the point, right? I just found out that I have it on both sides of the family, and one of the cases was known for over 20 years. It's a shame people couldn't put it together. :(

I also have friends who chose to go gluten-free for no medical reason. I actually had one friend say, "welocome to our world" in such a manner that 3 weeks later it's still bugging me.

(((HUGS))) You can do it! And I really hope you are starting to feel better.

AND..... it would bug me too having a friend say "welcome to our world" just because "by Choice" they are gluten free..... I'm sure every now and then they cheat and "thats ok" cause they won't feel sick! Its not the same at all! That would be frustrating!

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Well, as to "most ppl with celiac gain weight after going gluten-free" ---- hmmmmm...... --- depends on where you read that or heard it & in what context they are speaking.

Perspective patti-ann, perspective. The "general thought" is that celiacs are emaciated b/c of the celiac malabsorbtion. So, it follows that when they heal they will be absorbing nutrients & thus gain weight. Take me for instance; I've always been "skinny" (HATE that word!) --- I've been gluten-free for almost 8 months & I just gained 2 of the lbs. back of the 5 that I lost 7 years ago. So now I weigh a whole, whopping 101 lbs. for a 5'1.5" gal. Geez! If I don't watch out I might get FAT.wink.giflaugh.giflaugh.gif

But not all celiacs were skinny & wasting away. Malabsorbtion is malabsorbtion & it can also make everything you put in your mouth turn to body fat. We have loads of celiacs on this board who were told by docs they couldn't possibly be celiac b/c they were fat. But that is untrue! And some of them gained weight after going gluten-free but I think most of them have lost it once they heal & their body balances things out. I will let others chime in on this subject.

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Well, I was overweight by about 20 pounds or so when I was diagnosed. Since diagnosis I have gained more weight. I don't think it is the gluten free diet that has made me gain weight though. I also have a thyroid problem, don't get enough exercise and work night shift which I feel has contributed to the weight gain considerably.

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Well, as to "most ppl with celiac gain weight after going gluten-free" ---- hmmmmm...... --- depends on where you read that or heard it & in what context they are speaking.

Perspective patti-ann, perspective. The "general thought" is that celiacs are emaciated b/c of the celiac malabsorbtion. So, it follows that when they heal they will be absorbing nutrients & thus gain weight. Take me for instance; I've always been "skinny" (HATE that word!) --- I've been gluten-free for almost 8 months & I just gained 2 of the lbs. back of the 5 that I lost 7 years ago. So now I weigh a whole, whopping 101 lbs. for a 5'1.5" gal. Geez! If I don't watch out I might get FAT.wink.giflaugh.giflaugh.gif

But not all celiacs were skinny & wasting away. Malabsorbtion is malabsorbtion & it can also make everything you put in your mouth turn to body fat. We have loads of celiacs on this board who were told by docs they couldn't possibly be celiac b/c they were fat. But that is untrue! And some of them gained weight after going gluten-free but I think most of them have lost it once they heal & their body balances things out. I will let others chime in on this subject.

"Squirmingitch" you make me laugh!!!! "perspective patti-ann perspective" lol

Your also very informative! I'm not sure if it was your post regarding the "whole foods" suggestion but did you try this in the beginning and does it really speed things up? and what exactly does it consists of? This week i found brown rice pasta... and its like an angel hair noodle!! It's been like Manna from Heaven for me, however i think it may be plugging me up and causing me to hold water. :(

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Well, I was overweight by about 20 pounds or so when I was diagnosed. Since diagnosis I have gained more weight. I don't think it is the gluten free diet that has made me gain weight though. I also have a thyroid problem, don't get enough exercise and work night shift which I feel has contributed to the weight gain considerably.

Wow! thats alot of challenges!!! my husband wanted to go to the pub last night!!! Not a great option to find gluten free food but i was able to order a grilled chicken breast served on lettuce! (but i was still hungry and was starring at his fries and gravy with drool dripping down my chin) And all i could think of was... "for the way that i eat now.. i should have certainly lost weight".. but NO! 4 gluten free months later and weight has gone up! sucks!

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Whole foods mean nothing processed like the noodles you had. Fresh meats, fresh or frozen fruits & veggies but that means the kind that isn't already cooked & has no sauces, spices etc.... IE: a bag of brocolli, a bag of blueberries or just get the real thing fresh & enjoy! Nuts, organic nut butters such as peanut, cashew, sunflower seed butter. And yes, I did do this in the beginning. But I have dh --- dermatitis herpetiformis which is celiac rash --- we tend not to have so much GI issues & not as severe when we do have them --- instead we get itchy lesions on our skin which make it a challenge to keep from grabbing the .38 & ending the itch for good! But I've been around here long enough to read others experience with the whole foods & YES! those who do get the GI issues report faster results from whole foods in the beginning. Also, celiacs can tend to get other food sensitivities for a while & the whole foods keeps things easier to keep track of(keep a food log) & then you add one food per week & see how you react; then another & so forth. Most of us are in such a hurry we skip those important steps & then find ourselves reacting to something but we can't figure out what b/c we got too big for our britches & tried to rush things & added lots of foods at one time. I did that & I so wish I had added one food per week & been a good girl about taking it slow & easy. I really do.

BTW, it's interesting that after about the 4th or 5th month I tried gluten-free processed foods & every time I try them I get GI issues.rolleyes.gif This lets me know my gut is not as healed as I might think it was ORRRRR that processed foods just plain aren't good for us no matter if they're gluten-free or not. OR both!

So try not to be stubborn & hard headed like me.tongue.gif

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Whole foods mean nothing processed like the noodles you had. Fresh meats, fresh or frozen fruits & veggies but that means the kind that isn't already cooked & has no sauces, spices etc.... IE: a bag of brocolli, a bag of blueberries or just get the real thing fresh & enjoy! Nuts, organic nut butters such as peanut, cashew, sunflower seed butter. And yes, I did do this in the beginning. But I have dh --- dermatitis herpetiformis which is celiac rash --- we tend not to have so much GI issues & not as severe when we do have them --- instead we get itchy lesions on our skin which make it a challenge to keep from grabbing the .38 & ending the itch for good! But I've been around here long enough to read others experience with the whole foods & YES! those who do get the GI issues report faster results from whole foods in the beginning. Also, celiacs can tend to get other food sensitivities for a while & the whole foods keeps things easier to keep track of(keep a food log) & then you add one food per week & see how you react; then another & so forth. Most of us are in such a hurry we skip those important steps & then find ourselves reacting to something but we can't figure out what b/c we got too big for our britches & tried to rush things & added lots of foods at one time. I did that & I so wish I had added one food per week & been a good girl about taking it slow & easy. I really do.

BTW, it's interesting that after about the 4th or 5th month I tried gluten-free processed foods & every time I try them I get GI issues.rolleyes.gif This lets me know my gut is not as healed as I might think it was ORRRRR that processed foods just plain aren't good for us no matter if they're gluten-free or not. OR both!

So try not to be stubborn & hard headed like me.tongue.gif

What about rice? Jasmine or basmati?

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You should be fine with rice. The brown rice might or might not be too much for you right now as it's more difficult to digest. But rice is okay. You can even try the brown & see what happens. Just don't do any processed foods for a good long while. Some say 3 months, I would say 4 months to be safer. During that time read on here & you will learn a plethora of things. This will keep you from making mistakes which cause you to have to backtrack & loose ground. You also will have sooooo much more confidence about what you're doing when you shop & get into other foods. And dairy is okay too as long as you can handle it. Many celiacs have to cut dairy though for a time until your gut heals enough to handle processing the lactose. And I will warn you about soy --- lots, & lots of us have big problems with soy & soy is in a ton of things. Oh, & you can have Larabars --- they really don't qualify as a processed food as they are simply dried fruit & nuts; great for sticking in your purse & glove compartment for when you get caught out & hungry & they are yummy too! ALWAYS take some snack food along with you --- throw an apple in your bag or a hard boiled egg, nuts --- stuff like that.

NOW, I don't want to freak you out but I'm going to tell you to expect this & that way you'll know what it is when it happens to you if it happens to you. Gluten withdrawal. It's real. There IS such a thing. A few people get off w/o ever having it but most have to go through it. If you put it in the search box for the site you will come up with hundreds of threads about it. Symptoms include an "out there feeling" or brain fog, sort of dizzy, irritable to downright angry, fatigue, feeling like you have blood sugar problems among other things. Also, most get raving hunger & I mean raving! Constant eating. This is normal. Your body is trying to make up for what it hasn't had while battling gluten. It wants to repair itself, it wants to get nutrition. Don't worry about weight gain. Your body NEEDS to eat. So eat! I ate ALL THE TIME! I literally would vacuum with one hand while eating an apple with the other. EAT. You NEED it.

You will also find yourself needing more protein; especially in the mornings. Protein load but also with some fat so you process the protein. It's almost like you need to turn your meals upside down & have dinner for breakfast & breakfast for dinner.

And as far as carbs such as apples --- go ahead & have some fat with those carbs too --- apple slices with nut butter on them --- get it? Or an apple but also have a handful of nuts.

Oh, & patti ann, read this. It will really be a great help:

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

Edited by squirmingitch
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You should be fine with rice. The brown rice might or might not be too much for you right now as it's more difficult to digest. But rice is okay. You can even try the brown & see what happens. Just don't do any processed foods for a good long while. Some say 3 months, I would say 4 months to be safer. During that time read on here & you will learn a plethora of things. This will keep you from making mistakes which cause you to have to backtrack & loose ground. You also will have sooooo much more confidence about what you're doing when you shop & get into other foods. And dairy is okay too as long as you can handle it. Many celiacs have to cut dairy though for a time until your gut heals enough to handle processing the lactose. And I will warn you about soy --- lots, & lots of us have big problems with soy & soy is in a ton of things. Oh, & you can have Larabars --- they really don't qualify as a processed food as they are simply dried fruit & nuts; great for sticking in your purse & glove compartment for when you get caught out & hungry & they are yummy too! ALWAYS take some snack food along with you --- throw an apple in your bag or a hard boiled egg, nuts --- stuff like that.

NOW, I don't want to freak you out but I'm going to tell you to expect this & that way you'll know what it is when it happens to you if it happens to you. Gluten withdrawal. It's real. There IS such a thing. A few people get off w/o ever having it but most have to go through it. If you put it in the search box for the site you will come up with hundreds of threads about it. Symptoms include an "out there feeling" or brain fog, sort of dizzy, irritable to downright angry, fatigue, feeling like you have blood sugar problems among other things. Also, most get raving hunger & I mean raving! Constant eating. This is normal. Your body is trying to make up for what it hasn't had while battling gluten. It wants to repair itself, it wants to get nutrition. Don't worry about weight gain. Your body NEEDS to eat. So eat! I ate ALL THE TIME! I literally would vacuum with one hand while eating an apple with the other. EAT. You NEED it.

You will also find yourself needing more protein; especially in the mornings. Protein load but also with some fat so you process the protein. It's almost like you need to turn your meals upside down & have dinner for breakfast & breakfast for dinner.

And as far as carbs such as apples --- go ahead & have some fat with those carbs too --- apple slices with nut butter on them --- get it? Or an apple but also have a handful of nuts.

Oh, & patti ann, read this. It will really be a great help:

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

THANKS FOR ALL THE INFO!!!

GOOD NEWS..... Ive been over a week without any accidents. :D im starting to feel and look better! thank you for your help and guidance from everyone who take time to post.

i still feel like theres a bit of a storm brewing down there and waist line hasn't shrunk any but sticking with the whole foods has helped. i also liked the post about thinking about "what you can eat & not what you can't" that certainly helped with my personal "pity party"!

it has been a rough 4 months with trying to be gluten free and having so many accidents. Having the advice from you guys has certainly been a support. I think im on the right track now!

Thank you!!!

I will prepare myself for the "gluten withdrawal" symptons. Im pretty sure ive gone through some of them but will prepare for the worst!

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We're here any time you need us. Glad you're back on track!smile.gif

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You should be fine with rice. The brown rice might or might not be too much for you right now as it's more difficult to digest. But rice is okay. You can even try the brown & see what happens. Just don't do any processed foods for a good long while. Some say 3 months, I would say 4 months to be safer. During that time read on here & you will learn a plethora of things. This will keep you from making mistakes which cause you to have to backtrack & loose ground. You also will have sooooo much more confidence about what you're doing when you shop & get into other foods. And dairy is okay too as long as you can handle it. Many celiacs have to cut dairy though for a time until your gut heals enough to handle processing the lactose. And I will warn you about soy --- lots, & lots of us have big problems with soy & soy is in a ton of things. Oh, & you can have Larabars --- they really don't qualify as a processed food as they are simply dried fruit & nuts; great for sticking in your purse & glove compartment for when you get caught out & hungry & they are yummy too! ALWAYS take some snack food along with you --- throw an apple in your bag or a hard boiled egg, nuts --- stuff like that.

NOW, I don't want to freak you out but I'm going to tell you to expect this & that way you'll know what it is when it happens to you if it happens to you. Gluten withdrawal. It's real. There IS such a thing. A few people get off w/o ever having it but most have to go through it. If you put it in the search box for the site you will come up with hundreds of threads about it. Symptoms include an "out there feeling" or brain fog, sort of dizzy, irritable to downright angry, fatigue, feeling like you have blood sugar problems among other things. Also, most get raving hunger & I mean raving! Constant eating. This is normal. Your body is trying to make up for what it hasn't had while battling gluten. It wants to repair itself, it wants to get nutrition. Don't worry about weight gain. Your body NEEDS to eat. So eat! I ate ALL THE TIME! I literally would vacuum with one hand while eating an apple with the other. EAT. You NEED it.

You will also find yourself needing more protein; especially in the mornings. Protein load but also with some fat so you process the protein. It's almost like you need to turn your meals upside down & have dinner for breakfast & breakfast for dinner.

And as far as carbs such as apples --- go ahead & have some fat with those carbs too --- apple slices with nut butter on them --- get it? Or an apple but also have a handful of nuts.

Oh, & patti ann, read this. It will really be a great help:

http://www.celiac.co...ewbie-info-101/

"squiming itch"

IM STARVING NOW!!! i literally get hunger pains all the time. i cry because food is not accessable when im out. i pack food everyday when i go work but when i have to go out unexpected like a funeral this week two hours from home it was so hard finding gluten free food in a rush only had two hours between visitations to eat. finally found thai restaruant that made me rice and chicken but the time it was delivered and i sat watching everyone eat.... we had to head back to funeral home. thank god i did order a chicken skewer so i could eat it in the car... but i find it embarresing, inconvenient and frustrating and so depressing!!! i never expected these hunger pains thank you for giving me a heads up!!! will this subside or is it part of my life now... would b-12 shots help or vitiman suppliments?

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Greetings Patt-iAnn,

When I went to the doctor with my genetic test in hand my doctor said that I looked 5 months pregnant. Indeed I did. I had also been asked several times when my baby was due, when I was not pregnant. Now, I have a reasonable answer to that; I am just bloated by celiac.

I am 6 months grain free and am starting to deflate.

I went through times of intense hunger like you described. I also have times where I am not hungry for several days and force myself to eat. I treat my celiac with supplements, excercise, and sunshine. My diet is of notable importance. You mentioned B12 and a sublingual B12 has been working for me. I am improving and am so glad that I found out what the problem was and it can be helped.

Diana

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    • Thank you everyone! Good to know I am not alone with this. I am asking for a referral to a new cardio. Hopefully it will all go away the longer I am gluten-free. It started up in February/March after a gluten challenge and mostly vanished until July when I had a lot of shortness of breath. It absolutely was CRAZY just a few days after the glutening. I was gasping for breath and the beats were all over the place just walking through a parking garage and I was only mildy anemic at the time.   But it seems to "quiver" and do funny things for a bit still. I sort of theorized maybe it was inflammation in the heart because after this last glutening, my head felt like it was in a vice and my eyes would sting or get stabbing pain hurt (that is finally going away thankfully...knock on wood).  The head/eye pressure I learned also happens to my sibling who has celiac and his naturopath told him that sometimes the brain gets inflamed. Hopefully I can meet the new cardio soon and feel confident that he is taking me seriously. It is sort of difficult to feel confident in the opinion of a doctor that your ticker is ok when they are not really listening and end up making you cry. LOL. A friend of mine in the mental health field recently listened to my story of doc after doc and test after test and said that it was akin to the folk story of blind men describing an elephant. A group of blind men all feel one part of an elephant (tusk, tail, ear, tail) and then compare notes only to find they all disagree.  In some  versions they argue intensely. In other versions they have to collaborate and listen to each other in order to "describe" an elephant.    
    • Good afternoon! I am new to this board and fairly new to researching Celiac Disease, although I had a general idea what it was. My health has become a huge mystery to me, and it's one that I am desperate to solve. The biggest issue right now is horrible, life affecting fatigue. I have been dealing with it for several years now- as many as 5 to 6. It has gotten progressively worse, and nothing at all helps. Sleep apnea has been ruled out. Intestinal issues are something I have dealt with for almost two decades. I'm 45, but I've already had two colonoscopies as well as two endoscopies. My first endoscopy was as a child for persistent, severe stomach pain. My last colonoscopy and endoscopy was two years ago. The only thing that has come from those is an Irritable Bowel type condition and GERD, which is pretty bad. My bowel movements have always been crazy. They can be very normal and healthy to completely crazy. I've had periods of persistent diarrhea to occasional constipation, which is a fairly new thing within the last year. Last week, I went from having diarrhea that morning to hard, round balls of stool by that evening. My most common stools here lately, though, are not quite diarrhea, but more fluffy, large piles. Gas is an ongoing, daily issue for me. I have copious amounts of gas every day no matter what I eat or drink. Most of the gas in non-odorous but it can be very loud. I am currently on a total of 60 mg of Ritalin per day just to function. I often add energy pills, purchased from places such as GNC, because the Ritalin isn't working. Yesterday, I took both doses of Ritalin and two energy pills, and I passed out on the couch after work. I work from 7:30am to 3:30pm, and my work day is nothing too crazy. I try to keep very consistent sleep hours and could easily sleep to 1:00pm or longer if I don't have to get up for something. I sometimes have short periods of energy in the mornings, but that is usually over by noon. The quality of my life is greatly affected. I don't want to go anywhere or do anything because I am way too tired. I'm trying to keep up with my exercising, but that is also a struggle.  I have a history of clinical depression for practically all my adulthood, but it has been very well managed for the last four years. The fatigue is currently causing a great deal of depression, but it is very different from the clinical depression that I use to deal with. When I don't feel sleepy and tired, I don't feel depressed. When the fatigue sets in, I feel very irritable and sad. I realize that the stimulants can cause irritability, but I don't feel irritable or sad when I'm not feeling fatigued.  I've only recently began to explore that the fatigue and the intestinal issues could be related. I have always accepted that I have a sensitive, cooky digestive track. The increasing, unrelenting fatigue is what has lead me to exploring the possibility that everything could be related. I did have blood work last November. My doctor did not test for anything Celiac Disease specific, but she did do a Vitamin D, ferritin level and overall metabolic panel. All of that is normal. My thyroid level is also normal, and I do take thyroid hormone because I had half of my thyroid removed 11 years ago due to what turned out to be a benign thyroid tumor.  I just saw my doctor two weeks ago, and she increased the dosage of my Ritalin. That has not helped at all. She has never mentioned Celiac Disease to me before. I made an appointment for this Friday afternoon to talk about it, but I keep wondering if I'm even heading in a direction that makes sense. I decided to post here for some guidance. I'm sorry this has been so long. I'm not really into cutting something totally out of my diet just to see what happens. I also feel like that if I have something that is poisoning my system, I need a real clinical diagnosis of that. I feel like maybe I'm grasping at straws now and imagining a correlation that isn't there. I am not looking for a quick fix, but right now I have no idea what needs to be fixed. I am open to any information and/or suggestions. Thanks so much!   Jennifer
    • Celiac disease sufferers or those who embrace a life without gluten can check out Canada's Gluten-Free Market when it makes stops in London and ... View the full article
    • I too have heart palps, flutters, skips whatever you want to call them. Ecg shows nothing. I was told by my doctor it is due to my low iron which is due to celiac. They pretty much went away after being gluten-free. But occasionally do come back. I've actually been having them for the past 3 days. But I was glutened with really severe reaction about a week ago so not sure if its due to that. Or if iron is low right now. I am on supplements but it still goes up and down. I hear you about doctors. It seems if you don't do research yourself or ask questions they don't say or do or test for anything. 
    • For a number of years pre diagnosis I had irregular heartbeats - anything from a fluttering type thing to seemingly skipping one or more beats to rapid beats to something like a short drum riff. I had multiple ECG's which didn't find anything odd. It never did it when I was at the doctors or getting the ECG's. Sometimes it seemed to pound very hard & rapid, at these times I discovered if I just laid down flat on my back, it would restore normal rhythm almost instantly. These things happened at random whether I was at rest, sitting, standing, running or working hard. It was always short lived -- lasting only 1 to several seconds, perhaps the longest was close to a minute. I too have little faith in docs as I've had my share of being blown off, to misdiagnoses. The whole heart thing quit after I had been gluten-free for a while but if I get glutened, it returns.
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