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I Look Pregnant!


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#16 Roda

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Posted 26 July 2012 - 02:08 AM

Well, I was overweight by about 20 pounds or so when I was diagnosed. Since diagnosis I have gained more weight. I don't think it is the gluten free diet that has made me gain weight though. I also have a thyroid problem, don't get enough exercise and work night shift which I feel has contributed to the weight gain considerably.
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Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.


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#17 patti-ann

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Posted 26 July 2012 - 05:13 AM

Well, as to "most ppl with celiac gain weight after going gluten-free" ---- hmmmmm...... --- depends on where you read that or heard it & in what context they are speaking.
Perspective patti-ann, perspective. The "general thought" is that celiacs are emaciated b/c of the celiac malabsorbtion. So, it follows that when they heal they will be absorbing nutrients & thus gain weight. Take me for instance; I've always been "skinny" (HATE that word!) --- I've been gluten-free for almost 8 months & I just gained 2 of the lbs. back of the 5 that I lost 7 years ago. So now I weigh a whole, whopping 101 lbs. for a 5'1.5" gal. Geez! If I don't watch out I might get FAT.Posted ImagePosted ImagePosted Image

But not all celiacs were skinny & wasting away. Malabsorbtion is malabsorbtion & it can also make everything you put in your mouth turn to body fat. We have loads of celiacs on this board who were told by docs they couldn't possibly be celiac b/c they were fat. But that is untrue! And some of them gained weight after going gluten-free but I think most of them have lost it once they heal & their body balances things out. I will let others chime in on this subject.


"Squirmingitch" you make me laugh!!!! "perspective patti-ann perspective" lol

Your also very informative! I'm not sure if it was your post regarding the "whole foods" suggestion but did you try this in the beginning and does it really speed things up? and what exactly does it consists of? This week i found brown rice pasta... and its like an angel hair noodle!! It's been like Manna from Heaven for me, however i think it may be plugging me up and causing me to hold water. :(
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#18 patti-ann

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Posted 26 July 2012 - 05:21 AM

Well, I was overweight by about 20 pounds or so when I was diagnosed. Since diagnosis I have gained more weight. I don't think it is the gluten free diet that has made me gain weight though. I also have a thyroid problem, don't get enough exercise and work night shift which I feel has contributed to the weight gain considerably.


Wow! thats alot of challenges!!! my husband wanted to go to the pub last night!!! Not a great option to find gluten free food but i was able to order a grilled chicken breast served on lettuce! (but i was still hungry and was starring at his fries and gravy with drool dripping down my chin) And all i could think of was... "for the way that i eat now.. i should have certainly lost weight".. but NO! 4 gluten free months later and weight has gone up! sucks!
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#19 squirmingitch

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Posted 26 July 2012 - 05:40 AM

Whole foods mean nothing processed like the noodles you had. Fresh meats, fresh or frozen fruits & veggies but that means the kind that isn't already cooked & has no sauces, spices etc.... IE: a bag of brocolli, a bag of blueberries or just get the real thing fresh & enjoy! Nuts, organic nut butters such as peanut, cashew, sunflower seed butter. And yes, I did do this in the beginning. But I have dh --- dermatitis herpetiformis which is celiac rash --- we tend not to have so much GI issues & not as severe when we do have them --- instead we get itchy lesions on our skin which make it a challenge to keep from grabbing the .38 & ending the itch for good! But I've been around here long enough to read others experience with the whole foods & YES! those who do get the GI issues report faster results from whole foods in the beginning. Also, celiacs can tend to get other food sensitivities for a while & the whole foods keeps things easier to keep track of(keep a food log) & then you add one food per week & see how you react; then another & so forth. Most of us are in such a hurry we skip those important steps & then find ourselves reacting to something but we can't figure out what b/c we got too big for our britches & tried to rush things & added lots of foods at one time. I did that & I so wish I had added one food per week & been a good girl about taking it slow & easy. I really do.
BTW, it's interesting that after about the 4th or 5th month I tried gluten-free processed foods & every time I try them I get GI issues.Posted Image This lets me know my gut is not as healed as I might think it was ORRRRR that processed foods just plain aren't good for us no matter if they're gluten-free or not. OR both!

So try not to be stubborn & hard headed like me.Posted Image
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#20 patti-ann

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Posted 26 July 2012 - 06:15 AM

Whole foods mean nothing processed like the noodles you had. Fresh meats, fresh or frozen fruits & veggies but that means the kind that isn't already cooked & has no sauces, spices etc.... IE: a bag of brocolli, a bag of blueberries or just get the real thing fresh & enjoy! Nuts, organic nut butters such as peanut, cashew, sunflower seed butter. And yes, I did do this in the beginning. But I have dh --- dermatitis herpetiformis which is celiac rash --- we tend not to have so much GI issues & not as severe when we do have them --- instead we get itchy lesions on our skin which make it a challenge to keep from grabbing the .38 & ending the itch for good! But I've been around here long enough to read others experience with the whole foods & YES! those who do get the GI issues report faster results from whole foods in the beginning. Also, celiacs can tend to get other food sensitivities for a while & the whole foods keeps things easier to keep track of(keep a food log) & then you add one food per week & see how you react; then another & so forth. Most of us are in such a hurry we skip those important steps & then find ourselves reacting to something but we can't figure out what b/c we got too big for our britches & tried to rush things & added lots of foods at one time. I did that & I so wish I had added one food per week & been a good girl about taking it slow & easy. I really do.
BTW, it's interesting that after about the 4th or 5th month I tried gluten-free processed foods & every time I try them I get GI issues.Posted Image This lets me know my gut is not as healed as I might think it was ORRRRR that processed foods just plain aren't good for us no matter if they're gluten-free or not. OR both!

So try not to be stubborn & hard headed like me.Posted Image


What about rice? Jasmine or basmati?
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#21 squirmingitch

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Posted 26 July 2012 - 08:46 AM

You should be fine with rice. The brown rice might or might not be too much for you right now as it's more difficult to digest. But rice is okay. You can even try the brown & see what happens. Just don't do any processed foods for a good long while. Some say 3 months, I would say 4 months to be safer. During that time read on here & you will learn a plethora of things. This will keep you from making mistakes which cause you to have to backtrack & loose ground. You also will have sooooo much more confidence about what you're doing when you shop & get into other foods. And dairy is okay too as long as you can handle it. Many celiacs have to cut dairy though for a time until your gut heals enough to handle processing the lactose. And I will warn you about soy --- lots, & lots of us have big problems with soy & soy is in a ton of things. Oh, & you can have Larabars --- they really don't qualify as a processed food as they are simply dried fruit & nuts; great for sticking in your purse & glove compartment for when you get caught out & hungry & they are yummy too! ALWAYS take some snack food along with you --- throw an apple in your bag or a hard boiled egg, nuts --- stuff like that.

NOW, I don't want to freak you out but I'm going to tell you to expect this & that way you'll know what it is when it happens to you if it happens to you. Gluten withdrawal. It's real. There IS such a thing. A few people get off w/o ever having it but most have to go through it. If you put it in the search box for the site you will come up with hundreds of threads about it. Symptoms include an "out there feeling" or brain fog, sort of dizzy, irritable to downright angry, fatigue, feeling like you have blood sugar problems among other things. Also, most get raving hunger & I mean raving! Constant eating. This is normal. Your body is trying to make up for what it hasn't had while battling gluten. It wants to repair itself, it wants to get nutrition. Don't worry about weight gain. Your body NEEDS to eat. So eat! I ate ALL THE TIME! I literally would vacuum with one hand while eating an apple with the other. EAT. You NEED it.
You will also find yourself needing more protein; especially in the mornings. Protein load but also with some fat so you process the protein. It's almost like you need to turn your meals upside down & have dinner for breakfast & breakfast for dinner.
And as far as carbs such as apples --- go ahead & have some fat with those carbs too --- apple slices with nut butter on them --- get it? Or an apple but also have a handful of nuts.

Oh, & patti ann, read this. It will really be a great help:
http://www.celiac.co...ewbie-info-101/

Edited by squirmingitch, 26 July 2012 - 08:50 AM.

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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#22 patti-ann

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Posted 30 July 2012 - 06:01 AM

You should be fine with rice. The brown rice might or might not be too much for you right now as it's more difficult to digest. But rice is okay. You can even try the brown & see what happens. Just don't do any processed foods for a good long while. Some say 3 months, I would say 4 months to be safer. During that time read on here & you will learn a plethora of things. This will keep you from making mistakes which cause you to have to backtrack & loose ground. You also will have sooooo much more confidence about what you're doing when you shop & get into other foods. And dairy is okay too as long as you can handle it. Many celiacs have to cut dairy though for a time until your gut heals enough to handle processing the lactose. And I will warn you about soy --- lots, & lots of us have big problems with soy & soy is in a ton of things. Oh, & you can have Larabars --- they really don't qualify as a processed food as they are simply dried fruit & nuts; great for sticking in your purse & glove compartment for when you get caught out & hungry & they are yummy too! ALWAYS take some snack food along with you --- throw an apple in your bag or a hard boiled egg, nuts --- stuff like that.

NOW, I don't want to freak you out but I'm going to tell you to expect this & that way you'll know what it is when it happens to you if it happens to you. Gluten withdrawal. It's real. There IS such a thing. A few people get off w/o ever having it but most have to go through it. If you put it in the search box for the site you will come up with hundreds of threads about it. Symptoms include an "out there feeling" or brain fog, sort of dizzy, irritable to downright angry, fatigue, feeling like you have blood sugar problems among other things. Also, most get raving hunger & I mean raving! Constant eating. This is normal. Your body is trying to make up for what it hasn't had while battling gluten. It wants to repair itself, it wants to get nutrition. Don't worry about weight gain. Your body NEEDS to eat. So eat! I ate ALL THE TIME! I literally would vacuum with one hand while eating an apple with the other. EAT. You NEED it.
You will also find yourself needing more protein; especially in the mornings. Protein load but also with some fat so you process the protein. It's almost like you need to turn your meals upside down & have dinner for breakfast & breakfast for dinner.
And as far as carbs such as apples --- go ahead & have some fat with those carbs too --- apple slices with nut butter on them --- get it? Or an apple but also have a handful of nuts.

Oh, & patti ann, read this. It will really be a great help:
http://www.celiac.co...ewbie-info-101/


THANKS FOR ALL THE INFO!!!
GOOD NEWS..... Ive been over a week without any accidents. :D im starting to feel and look better! thank you for your help and guidance from everyone who take time to post.
i still feel like theres a bit of a storm brewing down there and waist line hasn't shrunk any but sticking with the whole foods has helped. i also liked the post about thinking about "what you can eat & not what you can't" that certainly helped with my personal "pity party"!
it has been a rough 4 months with trying to be gluten free and having so many accidents. Having the advice from you guys has certainly been a support. I think im on the right track now!
Thank you!!!
I will prepare myself for the "gluten withdrawal" symptons. Im pretty sure ive gone through some of them but will prepare for the worst!
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#23 squirmingitch

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Posted 30 July 2012 - 07:03 AM

We're here any time you need us. Glad you're back on track!Posted Image
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#24 patti-ann

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Posted 05 January 2013 - 09:20 AM

You should be fine with rice. The brown rice might or might not be too much for you right now as it's more difficult to digest. But rice is okay. You can even try the brown & see what happens. Just don't do any processed foods for a good long while. Some say 3 months, I would say 4 months to be safer. During that time read on here & you will learn a plethora of things. This will keep you from making mistakes which cause you to have to backtrack & loose ground. You also will have sooooo much more confidence about what you're doing when you shop & get into other foods. And dairy is okay too as long as you can handle it. Many celiacs have to cut dairy though for a time until your gut heals enough to handle processing the lactose. And I will warn you about soy --- lots, & lots of us have big problems with soy & soy is in a ton of things. Oh, & you can have Larabars --- they really don't qualify as a processed food as they are simply dried fruit & nuts; great for sticking in your purse & glove compartment for when you get caught out & hungry & they are yummy too! ALWAYS take some snack food along with you --- throw an apple in your bag or a hard boiled egg, nuts --- stuff like that.

NOW, I don't want to freak you out but I'm going to tell you to expect this & that way you'll know what it is when it happens to you if it happens to you. Gluten withdrawal. It's real. There IS such a thing. A few people get off w/o ever having it but most have to go through it. If you put it in the search box for the site you will come up with hundreds of threads about it. Symptoms include an "out there feeling" or brain fog, sort of dizzy, irritable to downright angry, fatigue, feeling like you have blood sugar problems among other things. Also, most get raving hunger & I mean raving! Constant eating. This is normal. Your body is trying to make up for what it hasn't had while battling gluten. It wants to repair itself, it wants to get nutrition. Don't worry about weight gain. Your body NEEDS to eat. So eat! I ate ALL THE TIME! I literally would vacuum with one hand while eating an apple with the other. EAT. You NEED it.
You will also find yourself needing more protein; especially in the mornings. Protein load but also with some fat so you process the protein. It's almost like you need to turn your meals upside down & have dinner for breakfast & breakfast for dinner.
And as far as carbs such as apples --- go ahead & have some fat with those carbs too --- apple slices with nut butter on them --- get it? Or an apple but also have a handful of nuts.

Oh, & patti ann, read this. It will really be a great help:
http://www.celiac.co...ewbie-info-101/


"squiming itch"
IM STARVING NOW!!! i literally get hunger pains all the time. i cry because food is not accessable when im out. i pack food everyday when i go work but when i have to go out unexpected like a funeral this week two hours from home it was so hard finding gluten free food in a rush only had two hours between visitations to eat. finally found thai restaruant that made me rice and chicken but the time it was delivered and i sat watching everyone eat.... we had to head back to funeral home. thank god i did order a chicken skewer so i could eat it in the car... but i find it embarresing, inconvenient and frustrating and so depressing!!! i never expected these hunger pains thank you for giving me a heads up!!! will this subside or is it part of my life now... would b-12 shots help or vitiman suppliments?
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#25 1desperateladysaved

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Posted 05 January 2013 - 08:21 PM

Greetings Patt-iAnn,

When I went to the doctor with my genetic test in hand my doctor said that I looked 5 months pregnant. Indeed I did. I had also been asked several times when my baby was due, when I was not pregnant. Now, I have a reasonable answer to that; I am just bloated by celiac.

I am 6 months grain free and am starting to deflate.

I went through times of intense hunger like you described. I also have times where I am not hungry for several days and force myself to eat. I treat my celiac with supplements, excercise, and sunshine. My diet is of notable importance. You mentioned B12 and a sublingual B12 has been working for me. I am improving and am so glad that I found out what the problem was and it can be helped.

Diana
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#26 patti-ann

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Posted 06 January 2013 - 06:28 AM

Greetings Patt-iAnn,

When I went to the doctor with my genetic test in hand my doctor said that I looked 5 months pregnant. Indeed I did. I had also been asked several times when my baby was due, when I was not pregnant. Now, I have a reasonable answer to that; I am just bloated by celiac.

I am 6 months grain free and am starting to deflate.

I went through times of intense hunger like you described. I also have times where I am not hungry for several days and force myself to eat. I treat my celiac with supplements, excercise, and sunshine. My diet is of notable importance. You mentioned B12 and a sublingual B12 has been working for me. I am improving and am so glad that I found out what the problem was and it can be helped.

Diana


thanks diana
i find now i only look pregnant after accidental gluten...then its right back to the way i use to be. i have been gluten free since beginning of april... and dealing with intense hunger now. i will try b 12 shots and see if that helps. i go threw days of coping and then days of depression but thats only when im out and about and cant eat on the go like the rest of my family and then find myself having to have my husband drive round and round trying to find something i can eat after everyone else has. just frustrated. i am happy though that i did find out what is wrong....even though it sucks. my life has improved so much....im happier for the most part and im not sleeping my life away i have energy again. my husband cant believe the difference. just had a bad couple days....... :( :)
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#27 squirmingitch

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Posted 13 January 2013 - 07:07 PM

Sorry I've taken so long to respond. I've been out of touch for a while --- buying a house & the deal went south when the survey revealed the septic drain field was on the neighbor's property.

It's wonderful you are feeling so much better Patti-ann!
To answer your question, it took many, many months before I wasn't continually starving. We are each individuals so there is no set time limit & I can't remember exactly but I will say mine lasted 5 or 6 months. Now, I'm more back to normal except I eat lunch @ 11 am --- can't seem to make it till noon. Always, always, always carry safe food with you - always. That's a hard & fast rule. It's very hard to eat out & IMHO rather risky. You can always have a baked potato, just don't let them cut it before serving it to you. I didn't find anything that helped with the hunger except eating.
Try to get over the embarrassment. If people can't handle it that's their problem not yours. And as time goes on you will adjust as will your family. Especially as you become more confident & as your family learns the ropes too. And they are seeing the difference in you! That's a great sign! :)
Onward & upward!
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#28 patti-ann

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Posted 30 January 2013 - 06:37 AM

hey....there you are! lol
sorry to hear about the house :( ive had lots of let downs when it comes to buying houses...but i always think there will be another one and there always is!
and so the hunger pains do continue. one thing i have found to help a bit is i have switched to brown rice. seems to keep me fuller longer. question for ya..... had a bad friday night there was no food in the house and i broke down and ate half a jamaican patty. expecting to be extremely sick next couple days but wasnt that bad. bloated like 9 months pregnant, bowel irratbility and finally a bit of nausea. but nothing as bad as i use to get even with accidental glutening. do you know if the longer you are gluten free and the intestines heal does your body handle the gluten differently? not sure if im asking that question right? not that im gona start eating gluten occasionally at all but was really surprised i wasnt worse. usually i vomit my guts out next morning. just wonderd IF the body has healed quit a bit if it doesnt react so violently..as when it is extremely damaged and worn out? let me know your thoughts
welcome back!
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#29 squirmingitch

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Posted 31 January 2013 - 05:12 PM

patti-ann, I'm the wrong person to ask about that. I have the skin presentation of celiac disease (dh) & we tend to have less GI symptoms & when we do they are less severe. But I will say once again that we are all individuals & react differently. I want to say that I have read on here where some people do like you did & had a mild reaction rather than a reaction like the days of yore. And I want to say that in those same readings the people have gone on & had more gluten & gotten the strong reaction again. You might have just gotten lucky.

Hopefully someone will come on & answer your question who knows better than I do about it.
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#30 patti-ann

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Posted 31 January 2013 - 05:39 PM

patti-ann, I'm the wrong person to ask about that. I have the skin presentation of celiac disease (dh) & we tend to have less GI symptoms & when we do they are less severe. But I will say once again that we are all individuals & react differently. I want to say that I have read on here where some people do like you did & had a mild reaction rather than a reaction like the days of yore. And I want to say that in those same readings the people have gone on & had more gluten & gotten the strong reaction again. You might have just gotten lucky.

Hopefully someone will come on & answer your question who knows better than I do about it.

patti-ann, I'm the wrong person to ask about that. I have the skin presentation of celiac disease (dh) & we tend to have less GI symptoms & when we do they are less severe. But I will say once again that we are all individuals & react differently. I want to say that I have read on here where some people do like you did & had a mild reaction rather than a reaction like the days of yore. And I want to say that in those same readings the people have gone on & had more gluten & gotten the strong reaction again. You might have just gotten lucky.

Hopefully someone will come on & answer your question who knows better than I do about it.


squimming itch.... you are very informative and i will look into other posts regarding my reaction....and you will not believe this....
my brother in law had been suffering from a blistering itching rash since last fall..... been to doctors had all kinds of diagnosis and prescriptions of which nothing helped.....THEN i remembered your post regarding your condition and talked to my sister and sent her your email...... they went back to docter who reluctingly sent him to a dermatoligist and had a biopsy done on the blisters and sure enough tonight they found out he has celiac.......... they have been through hell!!!!!! and back! he also has other problems like emotional sleeping etc..... all kinds of stuff that celiac affects but you think you must have a neological problem.... and because of you he got diagnosed..... i never heard of the rash before you!!!!! it sucks but is so awesome they found out... he been going crazy with the itch... and the pain!!!!!! and of course i gave them the heads up about the hunger as you did me lol thank you so much!!!!!! they so relieved to see an end in sight.....
THANK YOU!!!!!!!!!
patti ann
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