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Does Your Chlid Get A Fever With Gluten Exposure?
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Hi there, My nearly 2.5 yo has Celiac. She was diagnosed about a year ago. After 9mo of gluten-free she finally tested clean via her blood draw, and I assume she has remained clean in the months since as I. This week she had the flu (fever for two days, vomiting one night, diarrhea, irritable). The fever was very high (up to 103.9) and the diarrhea and gas smelled horrible, reminiscent of her pre-diagnosis bowel movements (sorry for the TMI). As of last night, her fever is gone. Her BMs are still very loose but not super liquidy as they had been the day before. She ate well last night and okay today. She refused dinner this evening and then asked for it later. After one bite, she threw everything up (the way she had in the week before her celiac diagnosis - as if she was emptying from her toes...). Is this just the flu or could this be gluten exposure? She has not thrown up once in the nearly a year since we brought her home from the hospital stay during which she was diagnosed. I know my GI doctor said that I will forever blame every GI issue on gluten but I'm just curious. I was also nauseous this week (tho no symptoms other than feeling nauseated). I assumed she just had a more severe case but then watching her throw-up tonight has me wondering. Any insight is appreciated (even just that you think it's a child case of the flu). Thanks, Kristen (I should add that I cook 95% of what she eats and mostly from scratch or certified gluten-free ingredients. We do have one-off meals out but only places where I have researched to be good and/or have home tested the product. Today, however, I let her have half a scoop of ice cream in a cup. The ice cream is gluten-free ingredient-wise and they used a brand new plastic spoon to scoop it. I guess CC is possible still via the scooper from previous scooping but that seems really severe and I pray that is not the case...) Thoughts?

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For whatever reason my son spikes a HIGH temp, 104+ if he gets into gluten. Before we took gluten out of his diet, he was *always* sick. Now my son had low IgA levels, so that could have something to do with the temps. Back in March he got into gluten *twice* and *both* times he had a high temp, couldn't tolerate his feeds (he is 100% g-tube fed for numerous GI reasons) and was just *miserable*. Neither my DH or I was sick and the only thing that changed was an 8yr old that thought the gluten looked way too good to pass up :(

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I have no idea but the stomach flu that we call " the Puke virus" is all over the place here. It seems everyone has had it. It may just be that!

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Thank you. I'm hoping it was just a GI bug... maybe she just gets is longer and worse than most. She seems a bit better today so hopefully we are on the mend.

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Thank you. I'm hoping it was just a GI bug... maybe she just gets is longer and worse than most. She seems a bit better today so hopefully we are on the mend.

When my son was young, he would get a high fever and swollen glands if he ate a lot of wheat, meaning three or more meals with wheat (he's gluten-sensitive, not allergic).

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    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
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