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I Love Oatmeal!
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I am having trouble understanding if oats are safe for me to consume. I know that it varies from person to person, so how might the doctors test for it? Do I simply try eliminating it if my symptoms persist after a few months of a gluten-free diet?

Also, I haven't been strict about eliminating foods containing "artificial flavors" especially ice cream. I know you're supposed to be extra strict in the first few months, but I just feel like I totally suck at this diet, even though I think and talk about it constantly. UGH.

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First of all, you don't suck at this diet. There's definitely a learning curve, which gets much easier the longer you're on it. Everything seems very confusing at first and we've all been there.

It's hard to say if you can tolerate oats or not. About 10 to 15% of celiacs can't tolerate oats. I've read that it's suggested you wait a year to introduce oats into your diet. I actually waited 9 months to try them and seem to do fine with them. And then I buy only certified gluten-free oats (I buy Bob's Red Mill but there are other brands available, too). I don't know if there's a way your doctor can test for them or not. Unless you have an actually allergy to oats, food intolerance testing isn't very accurate.

Personally I don't worry about artificial flavors. A lot of ice creams are naturally gluten-free but you have to watch for certain kinds like the obvious cookies and cream and others that include ingredients we can't have. I guess my favorite ice cream is Haagen-Dazs vanilla and it has a very minimal ingredient listing. Some of us are lactose-intolerant when first diagnosed and have to eliminate dairy products for awhile. Now that sucks more than the gluten-free diet!!!

Hope this helps...ask any questions you may have as there are many knowledgeable folks on this forum who've been there, done that.

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    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
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