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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

To Go Corn Free Or Not
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3 posts in this topic

So I think I may have an issue with corn. And after finding out that there's a potential IgA response to it, especially in those who have been undiagnosed celiacs for awhile, it makes me want to try going corn free.

But going corn free is SO HARD!!! Everything, apparently, has corn in it. Things I'm most concerned about having corn: wax on fruits and veggies, soaps, toothpaste and floss, any sort of vitamins/pills.

I've only been gluten-free and dairy free just over a month, I know, not very long. But I'm still waiting to get that 'feel good' feeling that so many people seem to experience after going gluten-free. The only thing that I feel that has improved completely is tummy bloating.

My tingling and pain in extremeties is still there, headaches too often, mood swings, tirednes and fatigue, problems concentrating....they're ALL still there and there hasn't been any noticeable difference with them either.

I know that all of those symptoms could merely be do to malnutrition. I think I've had this for 12 years, so it's surprising I still had any intestine left to biopsy really. If malnutrition's causing this, then I should probably be taking supplements. But supplements have corn.

I would love to do a corn challenge, not eay any for a month, then try some once, but that seems impossible to do. I can't live without toothpaste and floss. My teeth are already in bad enough shape with their enamel loss as it is. Oh that's right, I have fillings that probably have corn plastic in them or something. Only a couple months old. I can't avoid them. And what soap am I supposed to use on my dishes and on my hands, not even considering the rest of my body?

Ok, so doing a proper corn challenge is very hard to impossible. But would it be enough to simply avoid all foods that obviously have corn? It's obviously not enough to merely not eat bread and flour if I'm gluten free, and since what I'm worried about is a very similar reaction that my body has to gluten but to corn, I'd assume in order to do this properly, I should be avoiding trace amounts of corn.

I really don't want to have to stop taking my supplements; B12 is the only thing I know of that has, in the past, gotten results for my hurting hands, and if I stop taking my iron I know I get more tired.

Is it worth it for me to do a 'mostly' corn free challenge, but still use toothpaste, soap or use xantham gum? If I do that, should I also avoid taking supplements?

Should I wait a year or more to see if I slowly get better instead?

Any advice would be wonderful. Also any list of corn-free toiletries that I can purchase off the shelf would be wonderful.

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You could start with just the corn that contains the outer skin of the kernel - i.e., removing the corn protein rather than the starch. So anything like chips, tortillas, on the cob, anything that contains masa harina, etc., would be the obvious first place to start. For some this is enough; others have to remove the starch too, and by removing the other you will find out if you are one of those. That is a lot harder.

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I have been gluten free for a few weeks and discovered I have to go corn free too :( I spent an hour and a half today searching for allergy meds, gum, and toothpaste. Not fun, but better than having symptoms. I've been dairy free for 28 years and soy free for a few years now. Corn is by far the hardest so far, but it is doable. Good luck, whatever you decide.

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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