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To Go Corn Free Or Not
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3 posts in this topic

So I think I may have an issue with corn. And after finding out that there's a potential IgA response to it, especially in those who have been undiagnosed celiacs for awhile, it makes me want to try going corn free.

But going corn free is SO HARD!!! Everything, apparently, has corn in it. Things I'm most concerned about having corn: wax on fruits and veggies, soaps, toothpaste and floss, any sort of vitamins/pills.

I've only been gluten-free and dairy free just over a month, I know, not very long. But I'm still waiting to get that 'feel good' feeling that so many people seem to experience after going gluten-free. The only thing that I feel that has improved completely is tummy bloating.

My tingling and pain in extremeties is still there, headaches too often, mood swings, tirednes and fatigue, problems concentrating....they're ALL still there and there hasn't been any noticeable difference with them either.

I know that all of those symptoms could merely be do to malnutrition. I think I've had this for 12 years, so it's surprising I still had any intestine left to biopsy really. If malnutrition's causing this, then I should probably be taking supplements. But supplements have corn.

I would love to do a corn challenge, not eay any for a month, then try some once, but that seems impossible to do. I can't live without toothpaste and floss. My teeth are already in bad enough shape with their enamel loss as it is. Oh that's right, I have fillings that probably have corn plastic in them or something. Only a couple months old. I can't avoid them. And what soap am I supposed to use on my dishes and on my hands, not even considering the rest of my body?

Ok, so doing a proper corn challenge is very hard to impossible. But would it be enough to simply avoid all foods that obviously have corn? It's obviously not enough to merely not eat bread and flour if I'm gluten free, and since what I'm worried about is a very similar reaction that my body has to gluten but to corn, I'd assume in order to do this properly, I should be avoiding trace amounts of corn.

I really don't want to have to stop taking my supplements; B12 is the only thing I know of that has, in the past, gotten results for my hurting hands, and if I stop taking my iron I know I get more tired.

Is it worth it for me to do a 'mostly' corn free challenge, but still use toothpaste, soap or use xantham gum? If I do that, should I also avoid taking supplements?

Should I wait a year or more to see if I slowly get better instead?

Any advice would be wonderful. Also any list of corn-free toiletries that I can purchase off the shelf would be wonderful.

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You could start with just the corn that contains the outer skin of the kernel - i.e., removing the corn protein rather than the starch. So anything like chips, tortillas, on the cob, anything that contains masa harina, etc., would be the obvious first place to start. For some this is enough; others have to remove the starch too, and by removing the other you will find out if you are one of those. That is a lot harder.

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I have been gluten free for a few weeks and discovered I have to go corn free too :( I spent an hour and a half today searching for allergy meds, gum, and toothpaste. Not fun, but better than having symptoms. I've been dairy free for 28 years and soy free for a few years now. Corn is by far the hardest so far, but it is doable. Good luck, whatever you decide.

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    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
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