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Vitacost Gluten Enzyme?!
#1
Posted 23 July 2012 - 01:45 PM
I am thinking taking these enzymes would help limit my reaction from hidden gluten or cross-contamination when I eat out at restaurants. Before buying them, I was wondering if anyone had any experience using them, or a similar product? Are these enzymes actually going to do anything? Is there another product you would recommend instead?
Thanks!
#2
Posted 23 July 2012 - 04:07 PM
These are digestive enzymes, that is all. You can take digestive enzymes made by any company before a meal and get the same result.
Will they help you "digest" gluten? Sure!
Will they "stop the effects" of gluten (i.e. inflammation and the autoimmune response) should you be cross contaminated? Not really.
Will you feel "less bad"--some reviews of these kinds of products suggest they do.
You can try them, but they should never be thought of a "free pass" to eat gluten ---as some people have suggested.
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. ![]()
Celiac.com - Celiac Disease Board Moderator
#3
Posted 23 July 2012 - 04:11 PM
Sorry, but as far as I know, there is no known "advance protective shield" against gluten CC for a celiac.
These are digestive enzymes, that is all. You can take digestive enzymes made by any company before a meal and get the same result.
Will they help you "digest" gluten? Sure!
Will they "stop the effects" of gluten (i.e. inflammation and the autoimmune response) should you be cross contaminated? Not really.
Will you feel "less bad"--some reviews of these kinds of products suggest they do.
You can try them, but they should never be thought of a "free pass" to eat gluten ---as some people have suggested.
ok, thanks for breaking it down like that. yeah, i guess digesting gluten and reacting to gluten are two totally different things haha. i do take a pretty heavy duty digestive enzyme with my meals already, so im not sure how much this one would help on top of those...
#4
Posted 23 July 2012 - 04:12 PM
"Scientists are exploring the possibility of using enzymes as a celiac disease treatment.
In May 2011, Alvine Pharmaceuticals was awarded four patents for gluten-specific proteases (enzymes). Alvine's lead potential product, ALV003, is a mixture of two enzymes that may be able to break down gluten into fragments too small to cause a reaction.
Scientists at Stanford University conducted the initial research on these enzymes, and Alvine has an exclusive worldwide license for the patents. Other researchers, notably Dr. Frits Koning at Leiden University Medical Center in The Netherlands, also are exploring the idea of digestive enzymes in celiac disease."
but for right now, there is no magic bullet, I'm afraid.
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. ![]()
Celiac.com - Celiac Disease Board Moderator
#5
Posted 23 July 2012 - 05:31 PM
I have read this:
"Scientists are exploring the possibility of using enzymes as a celiac disease treatment.
In May 2011, Alvine Pharmaceuticals was awarded four patents for gluten-specific proteases (enzymes). Alvine's lead potential product, ALV003, is a mixture of two enzymes that may be able to break down gluten into fragments too small to cause a reaction.
Scientists at Stanford University conducted the initial research on these enzymes, and Alvine has an exclusive worldwide license for the patents. Other researchers, notably Dr. Frits Koning at Leiden University Medical Center in The Netherlands, also are exploring the idea of digestive enzymes in celiac disease."
but for right now, there is no magic bullet, I'm afraid.
well, at least it sounds promising!
#6
Posted 23 July 2012 - 06:12 PM
#7
Posted 23 July 2012 - 06:35 PM
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#8
Posted 24 July 2012 - 10:23 AM
That sounds so promising, the enzymes for celiac treatment, just for the sake of CC I mean-- it would take the anxiety out of the diet for sure, just having a safety net to feel like you can eat out of the house every once in awhile. It would be amazing in the future to have that for a child who is celiac as well- I would feel so much less stress with my child getting CC at school or any other place!
You do what you can do on a daily basis, I am very diligant with my diet and outside exposure, but it is almost impossible to go through life as a celiac and NEVER have an issue with CC. It is very frustrating!
#9
Posted 24 July 2012 - 01:09 PM
#10
Posted 24 July 2012 - 04:15 PM
Good luck!
Self/Doctor diagnosed.
No testing done.
Allergic to everything else! - verified by allergist
Rosacea
#11
Posted 24 July 2012 - 04:55 PM
#12
Posted 24 July 2012 - 05:17 PM
This is weird to hear
because
they
seem to cause me GI issues even though
they
are gluten-free. Interesting how we are all reacting so differently.
You said "they" and "they"...what do you mean, Chad?
the digestive enzymes cause you digestive issues?
that is unusual as they are designed to help with digestive issues....but if they do....do not take them.
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. ![]()
Celiac.com - Celiac Disease Board Moderator
#13
Posted 24 July 2012 - 05:19 PM
I recently realized I was consuming gluten while on vacation. I had purchased some of this enzyme for "just in case". I don't believe I will take anymore of it, because I think I felt worse having slowed down the process. Instead of the D 20 minutes later, I had horrible muscle and joint pain that lasted a few days. This was one of the worst reactions I've had. I think I may have been better off just letting it pass on through.
Good luck!
Hon,
You just said ----You were glutened.
THAT causes the "horrible muscle and joint pain".
Not digestive enzymes.
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. ![]()
Celiac.com - Celiac Disease Board Moderator
#14
Posted 24 July 2012 - 05:50 PM
Not that it had caused the reaction.
Self/Doctor diagnosed.
No testing done.
Allergic to everything else! - verified by allergist
Rosacea
#15
Posted 24 July 2012 - 06:01 PM
I'm sorry. My point was, that I felt like the enzyme had extended my reaction time.
Not that it had caused the reaction.
and mine was that digestive enzymes do not cause reactions or extend "reaction time".
Hon, your joint pain was more likely from the gluten, IMHO.... and it takes a while for it to pass. (it does not matter if you took the enzymes or not---they work on the DIGESTIVE process, NOT the after-effects) so I am guessing that is what made the joint pain.
(but I could be wrong...)
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. ![]()
Celiac.com - Celiac Disease Board Moderator
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