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Ate Gluten But I Feel Fine?
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So I was recently "half diagnosed" with celiacs. I say that because I only had a simple blood test done that suggested, with an elevated IgG test, that I have celiacs (I have not had any other tests). I've been doing my best with staying gluten free for the past couple of weeks. I have also been eating MOSTLY dairy free (I've had some cheese and yogurt on occasions). Last night, after a strong sugar craving, I gave in to eating some raw Pillsbury cookie dough which I knew contained wheat. The dough comes pre-cut for baking. I nibbled on the dough and waited to be punished. After a few hours I felt fine. I gave in to eating two more round balls of the dough. Again, hours passed and felt fine. Today I decided to test again because I was all too excited that I wasn't affected by eating cookies. I baked and ate 6 cookies from the same sugar cookie pre-made package in one sitting (I've been feeling very deprived for the last month since staying off of gluten =/). The only other thing I've had today was Ensure, which I drank an hour or two before and almost immediately got "the burps", but no serious pain or intense bloating. What could this mean? Has the gluten not kicked in yet? Or is it because the dough, I believe, is made with bleached flour. I read somewhere that some are able to tolerate bleached flour? Correct me if I'm wrong. Or maybe on top of celiacs I also have a soy and/or dairy allergy? I'm tempted to have some bread or other items I've been craving since the start of my new diet.

Some additional information: I've been feeling better since my gluten-free diet but I have also been eating mostly like a caveman, meaning mostly meats, fresh fruits and vegetables. Most days I feel just okay but have still been burping and passing gas much more often than I used to before 2 months ago when this all started and haven't felt 100%. I felt pain from bloating and gas the other day when I KNOW I had not touched gluten for that day or the days before. I had a taco salad with romaine lettuce, tomatoes, organic pinto beans, olives, ground turkey, and a small spoonful of Daisy sour cream. I checked the labels on everything and it was all safe from gluten. I felt fine that day until eating the taco salad and soon after I was suffering from bloating pain and slight nausea.

Any ideas or thoughts? Thanks for reading/replying!

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You should get the other half of the testing done (biopsy) before messing around with going on and off, on and off, gluten.

Not unusual for someone who has been off only a short time to think that they are not having a gluten reaction. Also, a lot of people are on other medications which may muffle their ability to "feel" or notice subtle reactions in different body systems. And most importantly, many people who are celiac or gluten intolerant can go for years eating gluten and not be able to correlate their other health problems and symptoms with their gluten consumption.

The "sugar cravings" are more likely the body's way of saying it is low on either vitamins and minerals or another category of food, such as proteins or fats.

Bleaching flour does not affect the gluten content, and bleached wheat flour is not acceptable on a gluten free diet.

Soy and dairy reactions are common in celiac and gluten intolerance. Some times, after a while, and healing, the ability to consume dairy returns as long as it is in the form of low lactose, such as aged cheeses, yogurts, and sometimes butter and cream. This is because the part of the intestine which gets damaged by celiac also is the part which can digest dairy. :( Unfermented soy such as soy flours and proteins are frequent culprits. (fermented soy is in soy sauce, there are brands of Tamari soy sauce which do not have wheat, only soy).

If using canned beans, be sure to drain and rinse them very well, because the starch is difficult to digest. If one brand bothers you, try another. If using dried beans to cook with, be sure to check them well for stray grains, and to rinse them well before cooking.

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Gluten reactions can be delayed by up to week. For myself I get digestive upset about 3 days later. If you have been feeling better gluten-free then that is a good indication that you need the diet. If you do decide you want to do more testing you need to go back on a regular gluten filled diet for at least a couple of months before you get more testing. Some doctors are moving away from demanding a biopsy for diagnosis since for many reasons the biopsy can be a false negative. This is especially the case if you have already gone gluten free. False positives on blood and biopsy are really pretty rare so if you have had positive blood work chances are good that you need the gluten free life.

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About a year after I was diagnosed, I chowed down on a huge slice of the warm, fresh-baked crusty loaf of bread I'd made for company... and NOTHING happened. I actually started thinking that perhaps I could "cheat" once a month or so... and started planning monthly treats. The next glutening was an accident and I barely made it to the bathroom 4 hours later. Fast forward years of being absolutely gluten free... you should go to the thread I posted last week (in the Coping section) titled "Holy Glutening." Not only would I not voluntarily cheat... I am being as careful as I was near the beginning... reading every label again because I do not EVER EVER EVER want to be that sick again.

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May I ask what you seasoned the ground turkey with?

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May I ask what you seasoned the ground turkey with?

McCormick Taco seasoning. I read the ingredients and it seemed okay. This is what it says on their website "SPICES (INCLUDING CHILI PEPPER, CUMIN, PAPRIKA, OREGANO), ONION, WHEY (MILK), SALT, SUGAR, GARLIC, POTATO STARCH, AND CITRIC ACID."

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    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
    • Sorry, but this product (supplement) is not even certified gluten free.   Seems odd that a product geared to Non-Celiac Gluten Intolerance would not take the extra step of getting certified.   I guess I am a Nervous Nellie, especially after the reports that several probiotics were contaminated with gluten.   https://celiac.org/blog/2015/06/probiotics-your-friend-or-foe/
    • Thank you for posting that. I've had a lot of that bloodwork done and everything is normal. At the peak of this belly bug I had blood work done and my white count was fine. I think it's just my health anxiety scaring me into thinking this is something scarier (to me) than celiac. Maybe the anxiety will subside once I go gluten-free. The anxiety is brutal.
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