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Hello Everyone!
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Hi! I'm sure many of you are new enough to not remember me. I've lurked a bit, but haven't really posted much for quite a while now. I've been busy visiting the boards at Babycenter.com! I'm now 36 weeks pregnant and give all the credit to going gluten free (and, thereby, to you all here as well for all of the help and support you gave me in doing so). If anyone is interested, I can share the whole testimonial (I have posted it on the pregnancy board here...), but there are definately too many things to think it's coincidence. Hubby and I have a little boy due August 19 who looks to be developing 100% perfectly, despite my age and a few other potential issues. I'm also maintaining iron and other levels even throughout the pregnancy better than I have at any other point in my life. I have had severe morning sickness and am still on prescription meds to keep it under control. We're totally looking forward to meeting our new little man in just a few short weeks!

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Congratulations and welcome back!! I do remember you. I'm so happy for you and your husband. You are going to be so busy now you won't believe it! But feel free to post your testimonial because you had quite a road as I recall and it may be of help to someone who is struggling like you did. Hope all continues to go well for you and thanks for letting us know how you are doing!

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I do remember you being on the boards! Congrats on your pregnancy! :)

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Congratulations! Fertility issues is the main reason that keeps me going gluten-free with my silent celiac dd. So glad it all is working out. I hope you will try to breast feed. There is a lot if research that shows that may help protect the development of celiac and type 1 diabetes. I did not do it with my 1st and she got celiac. I did for a year with #2 and she is fine despite still having the genes. So just try! No regrets like me!

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Yay!!!!

We really should have a bulletin board or sumpin' of all 'our' babies. :huh:

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Thanks for sharing your great news.

Welcome Back and Congratulations!

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I remember you very well --and I am so very happy for you, J!!!

yaaaay!! Congrats!

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Yay!!!!

We really should have a bulletin board or sumpin' of all 'our' babies. :huh:

I second that!

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I remember you too. I was wondering when the baby would come. He'll be here before you know it!! So happy for you.

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Congratulations! Fertility issues is the main reason that keeps me going gluten-free with my silent celiac dd. So glad it all is working out. I hope you will try to breast feed. There is a lot if research that shows that may help protect the development of celiac and type 1 diabetes. I did not do it with my 1st and she got celiac. I did for a year with #2 and she is fine despite still having the genes. So just try! No regrets like me!

I'm very pro breastfeeding and think it was the best choice for both of my boys. I cherrish the times we had alone bonding. My youngest son would nurse and play with my hair. To this day when he is tired or not feeling well he plays with it. So sweet.

Well, I breast fed my celiac son for 16 months. In hindsite I think he had celiac as a baby but didn't show positive on blood work until he was almost 6 years old. He was first tested when he was 3 after I was diagnosed. All his symptoms as a baby and toddler make sense now. I was unknowingly gluten light while breastfeeding for the first 10 months. I avoided dairy, rice, oats, and tree nuts. He reacted to all of those. I ate a lot of fresh fruit/veggies and meat but was not gluten free. I also fed him barley cereal.

Oldest son was breastfed for 14 months. He is not celiac but is non celiac gluten intolerent.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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